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  1. Conceptual Engineering of Medical Concepts.Elisabetta Lalumera - forthcoming - In Manuel Gustavo Isaac, Kevin Scharp & Steffen Koch (eds.), New Perspectives on Conceptual Engineering. Synthese Library.
    There is a lot of conceptual engineering going on in medical research. I substantiate this claim with two examples, the medical debate about cancer classification and about obesity as a disease I also argue that the proper target of conceptual engineering in medical research are experts’ conceptions. These are explicitly written down in documents and guidelines, and they bear on research and policies. In the second part of the chapter, I propose an externalist framework in which conceptions have both the (...)
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  2. The Medical Model of “Obesity” and the Values Behind the Guise of Health.Kayla R. Mehl - forthcoming - Synthese 201 (6):1-28.
    Assumptions about obesity—e.g., its connection to ill health, its causes, etc.—are still prevalent today, and they make up what I call the medical model of fatness. In this paper, I argue that the medical model was established on the basis of insufficient evidence and has nevertheless continued to be relied upon to justify methodological choices that further entrench the assumptions of the medical model. These choices are illegitimate in so far as they conflict with both the epistemic and social aims (...)
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  3. Affective scaffolding and chronic illness.Eleanor Alexandra Byrne - 2024 - Philosophical Psychology 37 (4):921-946.
    ABSTRACT Current attempts to understand unusually high rates of psychiatric illness in complex, chronic illnesses can be guilty of operating within an explanatory framework whereby there are two options. Either (a) that the psychiatric predicaments are secondary to the bodily condition, and (b) that they are primary. In this paper, I draw upon philosophical work on affect, contemporary empirical work, and qualitative first-person patient data to illustrate a much messier reality. I argue that affective experience is generally more complex in (...)
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  4. “I am happy to be alive, but I prefer to have children without my chronic disease”: chronically ill persons’ views on reproduction and genetic testing for their own condition.Anika König & Stefan Reinsch - 2024 - New Genetics and Society 43 (1).
    In Germany, the debate on preimplantation and prenatal testing is heavily influenced by the idea of an antagonism between prospective parents and their potential children. Underlying this antagonism is the assumption that prospective parents follow an ableist logic and do not regard the lives of children with a chronic illness as “worth living”. Taking the example of two rare genetic illnesses, Marfan Syndrome and Cystic Fibrosis, we investigate how persons who themselves are affected by these conditions view preimplantation or prenatal (...)
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  5. Understanding Rare Disease Experiences Through the Concept of Morally Problematic Situations.Ariane Quintal, Élissa Hotte, Caroline Hébert, Isabelle Carreau, Annie-Danielle Grenier, Yves Berthiaume & Eric Racine - 2024 - HEC Forum 36 (3):441-478.
    Rare diseases, defined as having a prevalence inferior to 1/2000, are poorly understood scientifically and medically. Appropriate diagnoses and treatments are scarce, adding to the burden of living with chronic medical conditions. The moral significance of rare disease experiences is often overlooked in qualitative studies conducted with adults living with rare diseases. The concept of morally problematic situations arising from pragmatist ethics shows promise in understanding these experiences. The objectives of this study were to (1) acquire an in-depth understanding of (...)
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  6. Conceptualizing Endometriosis Pain Through Metaphors.Julia M. Abraham & V. Rajasekaran - 2023 - Perspectives in Biology and Medicine 66 (3):478-491.
    ABSTRACT:Biomedical and philosophical traditions postulate the experience of pain either as quantifiable or as sociocultural phenomena. This critical assessment offers a close reading of Lara Parker’s Vagina Problems: Endometriosis, Painful Sex, and Other Taboo Topics (2020) and Abby Norman’s Ask Me About My Uterus: A Quest to Make Doctors Believe in Women’s Pain (2018), analyzing the authors’ use of language as a tool to comprehend and communicate pain. Norman’s and Parker’s memoirs narrate the lived experience of endometriosis, a condition diagnosed (...)
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  7. Social capital in chronic disease: an ethnographic study.Davide Costa, Michele Andreucci, Nicola Ielapi, Umberto Marcello Bracale & Raffaele Serra - 2023 - Science and Philosophy 11 (2):29-50.
    Chronically ill conditions are particularly difficult to manage because of their impact both on the social and on the corporal sphere to such an extent as to involve a series of problems that negatively alter the quality of life of affected patients. Chronicity has also a considerable ef-fect on social capital. In the current literature, it is known that social capital may contribute to a range of advantages to people health. Chronic Venous Disease (CVD) includes several pathologi-cal alterations of the (...)
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  8. It Is Going to Be a Long Clinic Day.Salvador Cruz-Flores - 2023 - Narrative Inquiry in Bioethics 13 (1):29-30.
    In lieu of an abstract, here is a brief excerpt of the content:It Is Going to Be a Long Clinic DaySalvador Cruz-FloresIt was a routine neurology clinic day. I entered the room where one of the residents was seeing a patient that we will call Patty, a 32-year-old long-standing epilepsy patient. Patty was sitting in the chair with her husband by her side. She started screaming at me, complaining that she was tired of feeling sick and unable to do anything. (...)
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  9. Producing ME/CFS in Dutch Newspapers. A Social-Discursive Analysis About Non/credibility.Marjolein Lotte de Boer & Jenny Slatman - 2023 - Social Epistemology 37 (5):592-609.
    Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) is a highly contested illness. This paper analyzes the discursive production of knowledge about, and recognition of ME/CFS. By mobilizing insights from social epistemology and epistemic injustice studies, this paper reveals how actors, through their social-discursive practices, attribute to establishing, sustaining, and disregarding their own and others’ epistemological position. In focusing on the case of the Dutch newspaper reporting about ME/CFS, this paper shows that the debate about this condition predominantly revolves around the ways (...)
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  10. Chronicity: a key concept to deliver ethically driven chronic care.Francisca Stutzin Donoso - 2023 - Journal of Medical Ethics 49 (6):447-448.
    Chronic diseases are the main disease burden worldwide, leading to premature deaths and poor individual and population health outcomes. Although modern medicine has made significant progress in developing effective treatments, only around 50% of people follow long-term treatment recommendations in high-income countries and presumably even less in low-income and middle-income countries.1 Health outcomes for chronic diseases follow a social gradient across socioeconomic groups, suggesting that the 50% adherence rate distributes unequally across social groups, affecting those who live in disadvantage the (...)
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  11. Imagination and idealism in the medical sciences of an ageing world.Colin Farrelly - 2023 - Journal of Medical Ethics 49 (4):271-274.
    Imagination and idealism are particularly important creative epistemic virtues for the medical sciences if we hope to improve the health of the world’s ageing population. To date, imagination and idealism within the medical sciences have been dominated by a paradigm of disease control, a paradigm which has realised significant, but also limited, success. Disease control proved particularly successful in mitigating the early-life mortality risks from infectious diseases, but it has proved less successful when applied to the chronic diseases of late (...)
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  12. Moving beyond Table 1: A critical review of the literature addressing social determinants of health in chronic condition symptom cluster research.Susan C. Grayson, Sofie A. Patzak, Gabriela Dziewulski, Lingxue Shen, Caitlin Dreisbach, Maichou Lor, Alex Conway & Theresa A. Koleck - 2023 - Nursing Inquiry 30 (1):e12519.
    Variability in the symptom experience in patients diagnosed with chronic conditions may be related to social determinants of health (SDoH). The purpose of this critical review was to (1) summarize the existing literature on SDoH and symptom clusters (i.e., multiple, co‐occurring symptoms) in patients diagnosed with common chronic conditions, (2) evaluate current variables and measures used to represent SDoH, (3) identify gaps in the evidence base, and (4) provide recommendations for the incorporation of SDoH into future symptom cluster research. We (...)
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  13. (1 other version)Ignorance is Not Bliss: The Case for Comprehensive Reproductive Counseling for Women with Chronic Kidney Disease.Ana S. Iltis, Maya Mehta & Deirdre Sawinski - 2023 - HEC Forum 35 (3):223-236.
    The bioethics literature has paid little attention to matters of informed reproductive decision-making among women of childbearing age who have chronic kidney disease (CKD), including women who are on dialysis or women who have had a kidney transplant. Women with CKD receive inconsistent and, sometimes, inadequate reproductive counseling, particularly with respect to information about pursuing pregnancy. We identify four factors that might contribute to inadequate and inconsistent reproductive counseling. We argue that women with CKD should receive comprehensive reproductive counseling, including (...)
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  14. Asthma: Strangling the Caged Bird (Something Like a Prayer).Imani Perry - 2023 - Substance 52 (1):213-216.
    In lieu of an abstract, here is a brief excerpt of the content:Asthma:Strangling the Caged Bird (Something Like a Prayer)Imani Perry (bio)Yet do a marvel at this curious thing; To make a poet black and bid him sing!– Countee CullenI know why the caged bird sings, ah me,When his wing is bruised and his bosom sore,—When he beats his bars and he would be free;It is not a carol of joy or glee,But a prayer that he sends from his heart's (...)
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  15. Using Foucault to (re)think localisation in chronic disease care: Insights for nursing practice.Dr Margo Turnbull & Ann Reich - 2023 - Nursing Philosophy 24 (1):e12392.
    Ageing populations and rising rates of chronic disease globally have shifted key elements of disease management to ideas of integrated care and self‐management. The associated policies and programmes often focus on intervention and support beyond the sites of the hospital and clinic. These shifts have significantly impacted the delivery and practice of nursing for both nurses and the clients with whom they work. This article argues that Foucault's comments on space, place and heterotopia (1986) are useful in exploring these changes (...)
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  16. The ceiling outside: the science and experience of the disrupted mind.Noga Arikha - 2022 - New York: Basic Books.
    A diabetic woman awakens from a coma having forgotten the last ten years of her life. A Haitian immigrant has nightmares that begin bleeding into his waking hours. A retired teacher loses the use of her right hand due to pain of no known origin. Noga Arikha began studying these patients and their confounding symptoms in order to explore how our physical experiences inform our identities. Soon after she initiated her work, the question took on unexpected urgency as Arikha's own (...)
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  17. Unfathomed Dangers from Aluminum — Alzheimer’s? Autism? Multiple Sclerosis?Henry Bauer - 2022 - Journal of Scientific Exploration 35 (4).
    That aluminum is fatally toxic is beyond doubt, demonstrated by mass human poisoning at Camelford in Cornwall in Britain in 1988 (chapter 18) and by occasional fish kills (p. 49). Aluminum may also be a contributing factor in a number of human diseases, in particular those involving brain and nerves (p. 124) — autism, Alzheimer’s disease (AD) (chapter 14), Parkinson’s disease, multiple sclerosis. Aluminum salts used in kidney dialysis may be responsible for dialysis-related encephalopathy (pp. 38, 79). Aluminum adjuvants in (...)
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  18. Chronically ill Patients, Life Incidents and Reactive Strategies: A Qualitative Study among Patients Suffering from four Types of Diseases, Followed-up in the North-Eastern of Italy.Natascia Bobbo, Chiara Bottaro & Estella Musacchio - 2022 - ENCYCLOPAIDEIA 26 (64):45-58.
    Living with a chronic condition represents a strenuous experience that often could be lived as a sequence of waiting and crisis times. Therapeutic path incidents could represent however a catalysts and revelatory time, useful to patients to discover their own resources. A qualitative study according to the phenomenological hermeneutic perspective was conducted to understand the kind of skills expressed by the patients during a difficult episode, and the characteristics that identify patients who can overcome them better. From September 2019 to (...)
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  19. Grief in Chronic Illness: A Case Study of CFS/ME.Eleanor Alexandra Byrne - 2022 - Journal of Consciousness Studies 29 (9-10):175-200.
    This paper points to a more expansive conception of grief by arguing that the losses of illness can be genuine objects of grief. I argue for this by illuminating underappreciated structural features of typical grief — that is, grief over a bereavement — which are shared but under-recognized. I offer a common chronic illness, chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME), as a striking case study. I then use this analysis to highlight some clinical challenges that arise should this claim receive uptake (...)
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  20. Promoting participatory research in chronicity: The ESPRIMO biopsychosocial intervention for young adults with multiple sclerosis.Valeria Donisi, Silvia Poli, Maria Angela Mazzi, Francesca Gobbin, Federico Schena, Lidia Del Piccolo, Valeria Bigardi, Alberto Gajofatto & Michela Rimondini - 2022 - Frontiers in Psychology 13.
    BackgroundCo-creation allows to develop tailored interventions in chronicity and to increase patients’ engagement. Considering the interacting nature of physical, psychological, and social domains in multiple sclerosis, a biopsychosocial approach to care is crucial.AimsThis paper aims to present an example of a co-creation process in the context of chronic diseases preferences and perspectives of young adults with multiple sclerosis and healthcare professionals on the relevance, objectives, and modalities of a biopsychosocial intervention and on strategies/barriers to participation.MethodsA participatory mixed-method approach in three (...)
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  21. Neural Response to Low Energy and High Energy Foods in Bulimia Nervosa and Binge Eating Disorder: A Functional MRI Study.Brooke Donnelly, Nasim Foroughi, Mark Williams, Stephen Touyz, Sloane Madden, Michael Kohn, Simon Clark, Perminder Sachdev, Anthony Peduto, Ian Caterson, Janice Russell & Phillipa Hay - 2022 - Frontiers in Psychology 13.
    ObjectiveBulimia nervosa and binge eating disorder are eating disorders characterized by recurrent binge eating episodes. Overlap exists between ED diagnostic groups, with BE episodes presenting one clinical feature that occurs transdiagnostically. Neuroimaging of the responses of those with BN and BED to disorder-specific stimuli, such as food, is not extensively investigated. Furthermore, to our knowledge, there have been no previous published studies examining the neural response of individuals currently experiencing binge eating, to low energy foods. Our objective was to examine (...)
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  22. Disease-Specific Anxiety in Chronic Obstructive Pulmonary Disease: Translation and Initial Validation of a Questionnaire.Ingeborg Farver-Vestergaard, Sandra Rubio-Rask, Signe Timm, Camilla Fischer Christiansen, Ole Hilberg & Anders Løkke - 2022 - Frontiers in Psychology 13.
    BackgroundCommonly applied measures of symptoms of anxiety are not sensitive to disease-specific anxiety in patients with chronic obstructive pulmonary disease. There is a need for validated instruments measuring COPD-specific anxiety. Therefore, we translated the COPD-Anxiety Questionnaire into Danish and performed an initial validation of the psychometric properties in a sample of patients with COPD.Materials and MethodsTranslation procedures followed the World Health Organization guidelines. Participants with COPD completed questionnaires measuring COPD-specific anxiety, general psychological distress as well as variables related to COPD, (...)
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  23. The Effects of an Acceptance and Commitment-Informed Interdisciplinary Rehabilitation Program for Chronic Airway Diseases on Health Status and Psychological Symptoms.Emanuele Maria Giusti, Barbara Papazian, Chiara Manna, Valentina Giussani, Milena Perotti, Francesca Castelli, Silvia Battaglia, Pietro Galli, Agnese Rossi, Valentina Re, Karine Goulene, Gianluca Castelnuovo & Marco Stramba-Badiale - 2022 - Frontiers in Psychology 12.
    BackgroundChronic airway diseases are prevalent and costly conditions. Interdisciplinary rehabilitation programs that include Acceptance and Commitment-based components could be important to tackle the vicious circle linking progression of the disease, inactivity, and psychopathological symptoms.MethodsA retrospective evaluation of routinely collected data of an interdisciplinary rehabilitation program was performed. The program included group sessions including patient education, breathing exercise, occupational therapy and an ACT-based psychological treatment, and individual sessions of physical therapy. Demographic data, clinical characteristics of the patients and the values of (...)
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  24. Night Eating Syndrome in Patients With Obesity and Binge Eating Disorder: A Systematic Review.Jasmine Kaur, An Binh Dang, Jasmine Gan, Zhen An & Isabel Krug - 2022 - Frontiers in Psychology 12.
    Night eating syndrome is currently classified as an Other Specified Feeding or Eating Disorder under the Diagnostic Statistical Manual−5. This systematic review aims to consolidate the studies that describe the sociodemographic, clinical and psychological features of NES in a population of patients with eating disorders, obesity, or those undergoing bariatric surgery, and were published after the publication of the DSM-5. A further aim was to compare, where possible, NES with BED on the aforementioned variables. Lastly, we aimed to appraise the (...)
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  25. Anhedonia in endometriosis: An unexplored symptom.Aida Mallorquí, María-Angeles Martínez-Zamora & Francisco Carmona - 2022 - Frontiers in Psychology 13.
    Anhedonia is the diminished motivation and sensitivity to pleasurable stimuli. It has been reported to be more prevalent in patients with chronic pain as compared to healthy controls. Endometriosis is a chronic inflammatory systemic disease with a significant psychosocial impact that compromises wellbeing and the day-to-day life of patients. Women with endometriosis show significant psychological distress, even more pervasive when chronic pelvic pain is present. In the current review we will discuss the role of anhedonia in endometriotic chronic pelvic pain. (...)
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  26. An Argument in Favor of Deep Brain Stimulation for Uncommon Movement Disorders: The Case for N-of-1 Trials in Holmes Tremor.Marcelo Mendonça, Gonçalo Cotovio, Raquel Barbosa, Miguel Grunho & Albino J. Oliveira-Maia - 2022 - Frontiers in Human Neuroscience 16.
    Deep brain stimulation is part of state-of-the-art treatment for medically refractory Parkinson’s disease, essential tremor or primary dystonia. However, there are multiple movement disorders that present after a static brain lesion and that are frequently refractory to medical treatment. Using Holmes tremor as an example, we discuss the effectiveness of currently available treatments and, performing simulations using a Markov Chain approach, propose that DBS with iterative parameter optimization is expected to be more effective than an approach based on sequential trials (...)
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  27. A review on voice pathology: Taxonomy, diagnosis, medical procedures and detection techniques, open challenges, limitations, and recommendations for future directions. [REVIEW]Mazin Abed Mohammed, Belal Al-Khateeb & Nuha Qais Abdulmajeed - 2022 - Journal of Intelligent Systems 31 (1):855-875.
    Speech is a primary means of human communication and one of the most basic features of human conduct. Voice is an important part of its subsystems. A speech disorder is a condition that affects the ability of a person to speak normally, which occasionally results in voice impairment with psychological and emotional consequences. Early detection of voice problems is a crucial factor. Computer-based procedures are less costly and easier to administer for such purposes than traditional methods. This study highlights the (...)
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  28. Ambient struggling: food, chronic disease, and spatial isolation among the urban poor.Adam Pine - 2022 - Agriculture and Human Values 40 (3):1105-1116.
    This paper uses the survival strategies of food shelf clients to explore how food access, chronic disease, and spatial isolation shape the lives of low- and no- income urban citizens. The abundant availability of unhealthy food intersects with the presence of long-term health conditions to create a marginalized urban space where low quality commodity food is available, but exacerbates existing health conditions, is difficult to access, and does little to create food security. To survive, clients have normalized a sustenance strategy (...)
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  29. Diagnosis and Psychotherapeutic Needs by Early Maladaptive Schemas in Patients With Inflammatory Bowel Disease.Cornelia Rada, Dan Gheonea, Cristian George Ţieranu & Denisa Elena Popa - 2022 - Frontiers in Psychology 12.
    Inflammatory bowel disease is chronic and incurable. Imperious diarrhea, rectal bleeding, fatigue, and weight loss, the main manifestations, cause a decrease in the quality of the patient’s personal and professional life. The objectives of this study were to identify a possible relationship between early maladaptive schemas and disease activity status using logistic regression, to identify the prevalence of early maladaptive schemes in patients and to propose a psychotherapeutic intervention plan. The following were found in a sample of 46 patients aged (...)
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  30. Assessing the needs and perspectives of patients with obesity and obstructive sleep apnea syndrome following continuous positive airway pressure therapy to inform health care practice: A focus group study.Giada Rapelli, Giada Pietrabissa, Licia Angeli, Ilaria Bastoni, Ilaria Tovaglieri, Paolo Fanari & Gianluca Castelnuovo - 2022 - Frontiers in Psychology 13.
    ObjectiveThis study aims to investigate the lived experience in patients with obstructive sleep apnea syndrome and comorbid obesity following after continuous positive airway pressure therapy made with the disease the device, and to identify barriers and facilitators to the use of CPAP to improve rehabilitation provision and aid in disease self-management.MethodsQualitative research was conducted using three focus groups with a representative sample of 32 inpatients undergoing a 1-month pulmonary rehabilitation program at the IRCSS Istituto Auxologico Italiano San Giuseppe Hospital, Verbania, (...)
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  31. Feel to Heal: Negative Emotion Differentiation Promotes Medication Adherence in Multiple Sclerosis.T. H. Stanley Seah, Shaima Almahmoud & Karin G. Coifman - 2022 - Frontiers in Psychology 12.
    Multiple Sclerosis is a debilitating chronic autoimmune disease of the central nervous system that results in lower quality of life. Medication adherence is important for reducing relapse, disease progression, and MS-related symptoms, particularly during the early stages of MS. However, adherence may be impacted by negative emotional states. Therefore, it is important to identify protective factors. Past research suggests that the ability to discriminate between negative emotional states, also known as negative emotion differentiation, may be protective against enactment of maladaptive (...)
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  32. Integrating Chronic Obstructive Pulmonary Disease Treatment With 8-Week Tai Chi Chuan Practice: An Exploration of Mind-Body Intervention and Neural Mechanism.Haoran Shen, Li-Zhen Chen, Zhuoer Hu, Xiaoyan Yao, Tao Yang, Lan Zhang, Qiang Tu, Guangxi Li & Gao-Xia Wei - 2022 - Frontiers in Human Neuroscience 16.
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  33. Asking the right questions: towards a person-centered conception of shared decision-making regarding treatment of advanced chronic kidney disease in older patients.Johannes J. M. van Delden, Willem Jan W. Bos, Anne M. Stiggelbout & Wouter R. Verberne - 2022 - BMC Medical Ethics 23 (1):1-8.
    An increasing number of older patients have to decide on a treatment plan for advanced chronic kidney disease, involving dialysis or conservative care. Shared decision-making is recommended as the model for decision-making in such preference-sensitive decisions. The aim of SDM is to come to decisions that are consistent with the patient’s values and preferences and made by the patient and healthcare professional working together. In clinical practice, however, SDM appears to be not yet routine and needs further implementation. A shift (...)
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  34. Effect of Deep Brain Stimulation on Cerebellar Tremor Compared to Non-Cerebellar Tremor Using a Wearable Device in a Patient With Multiple Sclerosis: Case Report.Tao Xie, Mahesh Padmanaban, Adil Javed, David Satzer, Theresa E. Towle, Peter Warnke & Vernon L. Towle - 2022 - Frontiers in Human Neuroscience 15.
    Tremor of the upper extremity is a significant cause of disability in some patients with multiple sclerosis. The MS tremor is complex because it contains an ataxic intentional tremor component due to the involvement of the cerebellum and cerebellar outflow pathways by MS plaques, which makes the MS tremor, in general, less responsive to medications or deep brain stimulation than those associated with essential tremor or Parkinson's disease. The cerebellar component has been thought to be the main reason for making (...)
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  35. Online and Face-to-Face Performance on Two Cognitive Tasks in Children With Williams Syndrome.Maria Ashworth, Olympia Palikara, Elizabeth Burchell, Harry Purser, Dritan Nikolla & Jo Van Herwegen - 2021 - Frontiers in Psychology 11.
    There has been an increase in cognitive assessment via the Internet, especially since the coronavirus disease 2019 surged the need for remote psychological assessment. This is the first study to investigate the appropriability of conducting cognitive assessments online with children with a neurodevelopmental condition and intellectual disability, namely, Williams syndrome. This study compared Raven’s Colored Progressive Matrices and British Picture Vocabulary Scale scores from two different groups of children with WS age 10–11 years who were assessed online or face-to-face. Bayesian (...)
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  36. Different Dimensions of Affective Processing in Patients With Irritable Bowel Syndrome: A Multi-Center Cross-Sectional Study.Sabrina Berens, Rainer Schaefert, Johannes C. Ehrenthal, David Baumeister, Wolfgang Eich & Jonas Tesarz - 2021 - Frontiers in Psychology 12.
    Objective: Deficits in affective processing are associated with impairments in both mental and physical health. The role of affective processing in patients with functional somatic complaints such as irritable bowel syndrome remains unclear. Most studies have focused on the capacity for emotional awareness and expression, but neglect other dimensions of affective processing. Therefore, this study aimed to systematically analyze differences in six different dimensions of affective processing between patients with IBS and healthy controls. Additionally, we exploratively investigated the impact of (...)
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  37. Harnessing Neuroimaging to Reduce Socioeconomic Disparities in Chronic Disease: A Conceptual Framework for Improving Health Messaging.Samantha N. Brosso, Paschal Sheeran, Allison J. Lazard & Keely A. Muscatell - 2021 - Frontiers in Human Neuroscience 15.
    Socioeconomic status -related health disparities persist for numerous chronic diseases, with lower-SES individuals exhibiting greater risk of morbidity and mortality compared to their higher-SES counterparts. One likely contributor is disparities in health messaging efforts, which are currently less effective for motivating health behavior change among those lower in SES. Drawing on communication neuroscience and social neuroscience research, we describe a conceptual framework to improve health messaging effectiveness in lower SES communities. The framework is based on evidence that health-message-induced activity in (...)
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  38. Creative Thinking in Tourette's Syndrome: An Uncharted Topic.Laura Colautti, Sara Magenes, Sabrina Rago, Carlotta Zanaboni Dina, Alice Cancer & Alessandro Antonietti - 2021 - Frontiers in Psychology 12.
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  39. Primum Non Nocere: Should Gene Therapy Be Used to Prevent Potentially Fatal Disease but Enable Potentially Destructive Behavior?Inmaculada de Melo-Martin & Ronald G. Crystal - 2021 - Human Gene Therapy 32 (11-12):529-534.
    Aldehyde dehydrogenase 2 (ALDH2) deficiency constitutes one of the most common hereditary enzyme deficiencies, affecting 35% to 40% of East Asians and 8% of the world population. It causes the well-known Asian Alcohol Flush Syndrome, characterized by facial flushing, palpitation, tachycardia, nausea, and other unpleasant feelings when alcohol is consumed. It is also associated with a marked increase in the risk of a variety of serious disorders, including esophageal cancer and osteoporosis. Our recent studies with murine models have demonstrated that (...)
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  40. Meaning and dimensionality of state of comfort in patients with chronic hemodialysis kidney disease.Sinara de Menezes Lisboa Freire, Renan Alves Silva, Geórgia Alcântara Alencar Melo, Letícia Lima Aguiar, Joselany Áfio Caetano & Jênifa Cavalcante dos Santos Santiago - 2021 - Texto and Contexto - Enfermagem 30:e20200037.
    ABSTRACT Objective: to understand the meaning and dimensionality of state of comfort from chronic hemodialysis patients’ perspectives. Method: this is a qualitative study conducted with 30 patients from a hemodialysis clinic from May to June 2018. A semi-structured interview with guiding questions was used. Data were analyzed according to Bardin’s content analysis method, supported by Kolcaba’s theoretical framework. Results: five subcategories for being and feeling comfortable emerged: psychological well-being; Silent environment; Good quality of care; No health changes; Reduction in the (...)
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  41. Healthcare professionals’ responsibility for informing relatives at risk of hereditary disease.Kalle Grill & Anna Rosén - 2021 - Journal of Medical Ethics 47 (12):e12-e12.
    Advances in genetic diagnostics lead to more patients being diagnosed with hereditary conditions. These findings are often relevant to patients’ relatives. For example, the success of targeted cancer prevention is dependent on effective disclosure to relatives at risk. Without clear information, individuals cannot take advantage of predictive testing and preventive measures. Against this background, we argue that healthcare professionals have a duty to make actionable genetic information available to their patients’ at-risk relatives. We do not try to settle the difficult (...)
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  42. Functional Network Alterations as Markers for Predicting the Treatment Outcome of Cathodal Transcranial Direct Current Stimulation in Focal Epilepsy.Jiaxin Hao, Wenyi Luo, Yuhai Xie, Yu Feng, Wei Sun, Weifeng Peng, Jun Zhao, Puming Zhang, Jing Ding & Xin Wang - 2021 - Frontiers in Human Neuroscience 15.
    Background and PurposeTranscranial direct current stimulation is an emerging non-invasive neuromodulation technique for focal epilepsy. Because epilepsy is a disease affecting the brain network, our study was aimed to evaluate and predict the treatment outcome of cathodal tDCS by analyzing the ctDCS-induced functional network alterations.MethodsEither the active 5-day, −1.0 mA, 20-min ctDCS or sham ctDCS targeting at the most active interictal epileptiform discharge regions was applied to 27 subjects suffering from focal epilepsy. The functional networks before and after ctDCS were (...)
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  43. (1 other version)Ignorance is Not Bliss: The Case for Comprehensive Reproductive Counseling for Women with Chronic Kidney Disease.Ana S. Iltis, Maya Mehta & Deirdre Sawinski - 2021 - HEC Forum 35 (3):1-14.
    The bioethics literature has paid little attention to matters of informed reproductive decision-making among women of childbearing age who have chronic kidney disease (CKD), including women who are on dialysis or women who have had a kidney transplant. Women with CKD receive inconsistent and, sometimes, inadequate reproductive counseling, particularly with respect to information about pursuing pregnancy. We identify four factors that might contribute to inadequate and inconsistent reproductive counseling. We argue that women with CKD should receive comprehensive reproductive counseling, including (...)
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  44. Dialysis decisions concerning cognitively impaired adults: a scoping literature review.Jonathan Ives & Jordan A. Parsons - 2021 - BMC Medical Ethics 22 (1):1-17.
    BackgroundChronic kidney disease is a significant cause of global deaths. Those who progress to end-stage kidney disease often commence dialysis as a life-extending treatment. For cognitively impaired patients, the decision as to whether they commence dialysis will fall to someone else. This scoping review was conducted to map existing literature pertaining to how decisions about dialysis are and should be made with, for, and on behalf of adult patients who lack decision-making capacity. In doing so, it forms the basis of (...)
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  45. Role of Manual Therapy and Massage in the Treatment of Fibromyalgia: Testing the Hypothesis.Burhan Fatih Koçyiğit, Ahmet Akyol & Serkan Usgu - 2021 - Central Asian Journal of Medical Hypotheses and Ethics 2 (4):182-189.
    Fibromyalgia syndrome (FMS) is a chronic rheumatic disease in which pain is predominant and accompanied by fatigue, anxiety, depression, sleep disturbance and cognitive dysfunction. Although there are numerous pharmacological and non-pharmacological therapeutic alternatives, symptom control is frequently problematic. Manual therapy covers manipulating soft tissue and various joints using the hands. It is organized by mapping of soft tissue structures with rhythmically applied pressure to improve physical function, facilitate daily activities, promote rehabilitation procedures and decrease pain. Massage is generally accepted as (...)
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  46. “It didn’t mean anything” – moving within a landscape of knowledge to interpret genetics and genetic test results within familial cancer concerns.Mavis Machirori, Christine Patch & Alison Metcalfe - 2021 - New Genetics and Society 40 (4):570-598.
    Genetics is increasingly defining how we understand health and disease, affecting for some, their understanding of inherited disease, and the meaning of medical genetic information. When interpretations of hereditary conditions are determined, partly, by one’s familial experience of heritable characteristics and partly by various other lived experiences, the meaning of genetics becomes highly personal. Through descriptions of stocks of knowledge, this paper describes findings from a qualitative study with a cohort of Black and Asian women with family and personal histories (...)
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  47. Alexithymia, Emotional Distress, and Perceived Quality of Life in Patients With Hashimoto’s Thyroiditis.Gabriella Martino, Andrea Caputo, Carmelo M. Vicario, Ulla Feldt-Rasmussen, Torquil Watt, Maria C. Quattropani, Salvatore Benvenga & Roberto Vita - 2021 - Frontiers in Psychology 12.
    Emotion-processing impairment represents a risk factor for the development of somatic illness, affecting negatively both health-related quality of life and disease management in several chronic diseases. The present pilot study aims at investigating the associations between alexithymia and depression, anxiety, and HRQoL in patients with Hashimoto’s thyroiditis ; examining the association between these three psychological conditions together with HRQoL, and thyroid autoantibodies status as well as thyroid echotexture in patients with HT; and comparing the intensity of all these clinical psychological (...)
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  48. Unhealthy attachments : myalgic encephalomyelitis/chronic fatigue syndrome and the commitment to endure.Sally R. Munt - 2021 - In Scott Herring & Lee Wallace (eds.), Long term: essays on queer commitment. Durham: Duke University Press.
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  49. Community nurses and chronic disease in Israel: Professional dominance as a social justice issue.Rachel Nissanholtz–Gannot & Ephraim Shapiro - 2021 - Nursing Inquiry 28 (1):e12376.
    Chronic diseases are major causes of health inequalities. Community nurses can potentially make large contributions to chronic illness prevention and management in Israel but may be obstructed by professional dominance of physicians. However, insufficient research exists about community nursing in Israel, and how it may differ from other countries. This study aims to document chronic disease‐related community nursing roles in Israel, identify changes and trends in community nursing roles that may increase social justice, and understand how the roles and trends (...)
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  50. Couples Coping With the Serious Illness of One of the Partners.Hélène Riazuelo - 2021 - Frontiers in Psychology 12.
    Chronic kidney failure is a serious somatic disease. Addressing the issue of living with a chronic disease means fully considering the patients’ entourage, their families, and those close to them, especially their children and spouses.Objectives: The present paper focuses on the couple’s psychological experience when one of them suffers from a chronic disease, in this instance kidney disease. In particular, how is the spouse affected by the treatment provided? The aim is not only to see how care for sick people (...)
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