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| Summary | Genetic ethics is the study of the moral and political implications of (A) discoveries in the field of genetics (B) advances in genetic technology. For example, a study of the ethical, legal and social issues (ELSI) of (A) and (B) was funded as part of the Human Genome Project, started in 1986 and concluded in 2003, whose main goal was to identify all the genes in the human DNA and determine the sequence of all DNA chemical bases of a human being. Genes are units of biological hereditary information, which can be coded by different molecules (sharing similar characteristics), the most stable of which is the DNA. Since the information stored in genes influences the development of a whole organism, it is often regarded as having special importance, thus raising issues of privacy protection or discrimination. It is also apt to be used in controversial ways, e.g. deciding whether a future human person ought to exist or not (such as in selective preimplantation genetic diagnosis or abortion). |
| Key works | Harris 1992 argues that it is mandatory to use advances in gene therapy to remove vulnerability to infections and pollutants or to radiation damage. It advances an argument that, beside removing the genetic causes of what we regard today as "disability", it is equally mandatory to retard the ageing process, remove predispositions to heart disease, destroy carcinogens and permit human beings to tolerate other environmental pollutants. Buchanan et al 2000 focuses on justice in the access to human genetic technology, but considers a broad range of themes and arguments: the moral heredity of eugenics, the distinction between therapy and enhancement, constrains and permissions on parental choices of genetic selection, and the disability critique of liberal eugenics. It maintains a position that is liberal, in that it permits individuals a wide range of choices concerning the genetic endowments of their future children, yet constrains it by blocking interventions which would harm the future person (by reducing future options) or society (by causing an unfair distribution of social goods). Fukuyama 2002 regards genetic technology the practice that will radically change human nature with irreversible moral implications. Genetic technology is thus objectionable, in that undermines the natural presuppositions of egalitarian liberalism. Habermas 2003 defends a principled distinction between gene-therapy to cure disease and genetic manipulation allowing parents to select the traits of future children. The latter is seen as incompatible with egalitarian relationships between human beings and their freedom of choice. |
| Introductions | Buchanan et al manuscript; Brock 2003. |
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Related
Subcategories
Eugenics (670)
Cloning* (457)
Genetic Engineering (336)
Genetic Testing (982)
Genetic Ethics, Misc (300)
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- El hombre, la persona, la personalidad y sus modificaciones: discurso leído el día 14 de diciembre de 1983, en el acto de recepción como Académico de Número.de Pascual Y. Martínez & José Antonio - 1983 - Murcia: Real Academia de Legislación y Jurisprudencia. Edited by Mariano López Alarcón.Remove from this listExport citation
Bookmark - Bioetica, poder y derecho.Serrano Ruiz-Calderon & José Miguel - 1993 - Madrid: Servicio Publicaciones Facultad Derecho, Universidad Complutense Madrid.
- Saengmyŏng konghak kwa pŏp.Mun-Hwan Kim - 1993 - Sŏul Tʻŭkpyŏlsi: Samyŏngsa.
- Idenshi sōsa to hō: shirisugiru chi no tōsei.Ichirō Hokimoto - 1994 - Tōkyō: Nihon Hyōronsha.
- Derecho y manipulación genética: calificación jurídica de la clonación.Enrique Varsi Rospigliosi - 1997 - Lima: Universidad de Lima, Fondo de Desarrollo Editorial.Remove from this listExport citation Bookmark
- El proyecto genoma humano: algunas reflexiones sobre sus relaciones con el derecho.Angela Aparisi Miralles - 1997 - Valencia: Universitat de València.
- Entre el nacer y el morir.Ascensión Cambrón & Manuel Atienza (eds.) - 1998 - Granada: Editorial Comares.
- Biotecnología y derecho: perspectivas en derecho comparado.Romeo Casabona & Carlos María (eds.) - 1998 - Bilbao: Cátedra Interuniversitaria Fundación BBV-Diputación Foral de Bizkaia de Derecho y Genoma Humano, Universidad de Deusto, Universidad del País Vasco/EHU.
- Gentechnologie: Fakten und Meinungen zum Kernthema des 21. Jahrhunderts.Dirk Harreus (ed.) - 1999 - Berlin: Ullstein.
- Bioética y derecho: fundamentos y problemas actuales.Rodolfo Vázquez & Manuel Atienza (eds.) - 1999 - México: Fondo de Cultura Económica.
- Etica y manipulación genética.Evandro Agazzi - 2000 - [Argentina]: Universidad Nacional de Córdoba.
- Saengmyong konghak sidae ŭi pŏp kwa yulli.Ŭn-jŏng Pak - 2000 - Sŏul: Ihwa Yŏja Taehakkyo Chʻulpʻanbu.
- Biotecnologie: profili scientifici e giuridico-sociali: atti del convegno, Catania, Villa Cerami, 28 maggio 1999.Bruno Montanari (ed.) - 2000 - Milano: Giuffrè.
- Le nuove frontiere della scienza.Carlo Casini (ed.) - 2001 - Roma: Editoriale Pantheon.Remove from this listExport citation Bookmark
- Prueba del ADN.Primarosa Chieri - 1999 - Ciudad de Buenos Aires: Editorial Astrea de Alfredo y Ricardo Depalma. Edited by Eduardo A. Zannoni.
- L'eugénisme, la science et le droit.Catherine Bachelard-Jobard - 2001 - Paris: Presses universitaires de France.Catherine Bachelard-Jobard a choisi une approche pluridisciplinaire afin de comprendre, sans aucun manichéisme, si notre société est réellement en marche vers l'eugénisme. En d'autres termes, sommes-nous en train de nous diriger vers un monde d'enfants parfaits procédant de la sélection pré-natale, décidée par les parents et autorisée par la loi? Les parents peuvent-ils encore choisir de mettre au monde un enfant différent? Enfin, les barrières posées par le législateur aux désirs individuels sont-elles suffisantes? C'est ce débat passionnant que l'auteur se (...)
- Le droit face à l'éthique dans le domaine des thérapies géniques.Damian König - 2002 - Berne: Stæmpfli Editions.
- Ji yin zhi liao yu lun li, fa lü, she hui yi han lun wen xuan ji.Ruiquan Li & Dujian Cai (eds.) - 2003 - Taibei Shi: Tang shan chu ban she.
- Bioética y derecho.Salvador Darío Bergel, Nelly Minyersky & Agustín V. Estévez (eds.) - 2003 - Buenos Aires: Rubinzal-Culzoni.
- Epilogue : cross-cultural discourse in bioethics : it's a small world after all.Nikola Biller-Andorno - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- Human reproductive cloning : a test case for individual rights?Florian Braune, Nikola Biller-Andorno & Claudia Wiesemann - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- Let probands and patients decide about moral risk in stem cell research and medical treatment.Hans-Martin Sass - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- Human cloning as a challenge to traditional health care cultures.Ilhan Ilkilic - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- Primordial ownership versus dispossession of the body : a contribution to the problem of cloning from the perspective of classical European philosophy of law.Thomas Sören Hoffmann - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- The American debate on human cloning.Nigel M. De S. Cameron - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- Bioethics in the perspective of Universalization.Christofer Frey - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- The debate on human cloning : some contributions from the Jewish tradition.Y. Michael Barilan - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- The debate about human cloning among Muslim religious scholars since 1997.Thomas Eich - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- Cultural and religious in Islamic biomedicine : the case of human cloning.Abdulaziz Sachedina - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- The charm of biotechnology : human cloning and Hindu bioethics in perspective.Heinz Werner Wessler - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- The ethics of human cloning : with reference to the Malaysian bioethical discourse.Siti Nurani Mohd Nor - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- Human cloning : Thai Buddhist perspectives.Pinit Ratanakul - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- The cloning debate in South Korea.Marion Eggert & Phillan Joung - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- Some observations on Buddhist thoughts on human cloning.Jens Schlieter - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- Current debates on 'human cloning' in Korea.Chin Kyo-hun - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- Chinese ethics and human cloning : a view from Hong King.Gerhold Becker - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- Culture and bioethics in the debate on the ethics of human cloning in China.Ole Döring - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- Cloning in Japan : public opinion, expert counselling, and bioethical reasoning.Robert Horres, Hans Dieter Ölschleger & Christian Steineck - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- Cloning issues in China.Uiu Renzong - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- The ethics of human cloning and the sprouts of human life.Masahiro Morioka - 2006 - In Heiner Roetz (ed.), Cross-cultural issues in bioethics: the example of human cloning. Rodopi.
- Régimen jurídico de la bioseguridad de los organismos genéticamente modificados.Fausto Kubli-García - 2009 - México: Universidad Nacional Autónoma de México.
- La bioética en el siglo XXI: una práctica en la incertidumbre.Octavio Márquez Mendoza, Huitrón Bravo, G. Gabriel & Marcela Veytia López (eds.) - 2011 - Toluca, México: Universidad Autónoma del Estado de México.
- Hold-up sur le vivant, ou, Le bal des sémenteurs: éthique & manipulations.Pierre Sartor - 2012 - Paris: Sang de la Terre.Avec l'arrivée dans les années 1990 du développement des OGM et de méthodes de séquençage de l'ADN, la question de la brevetabilité du vivant est devenue un débat d'ordre éthique majeur. Encore aujourd'hui, la possibilité de déposer des brevets dans le domaine des biotechnologies est un thème d'actualité. Face à la complexité d'un sujet peu ou mal connu du grand public, Pierre Sartor nous propose d'aborder avec clarté les différents domaines touchés par les brevets du vivant, afin d'en comprendre les (...)
- Genetics and justice, non-ideal theory and the role of patents : the case of CRISPR-Cas9.Oliver Feeney - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
- The object-based and process-based regulation of genome editing.Michal Koščík & Eliška Vladíková - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
- A room with a view (and with a gene therapy drug) : gene therapy medicinal products and genetic tourism in Europe.Vera Lucia Raposo - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
- The European Court of Human Rights and the emergence of human germline genome editing-'The right to life' and 'the right to (artificial) procreation'.Merel M. Spaander - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
- Regulating heritable human genome editing : drawing the line between legitimate and controversial use.Noemi Conditi - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
- Addressing cognitive vulnerabilities through genome and epigenome editing : techno-legal adaptations for persons with intellectual disabilities.Pin Lean Lau - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
- Transformation of medical care through gene therapy and human rights to life and health -balancing risks and benefits.Anne Kjersti Befring - 2023 - In Santa Slokenberga, Timo Minssen & Ana Nordberg (eds.), Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of Elspi Perspectives. Brill/Nijhoff.
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