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  1. added 2020-05-22
    Parental Responsibility: A Moving Target.Dorothee Horstkötter, Daniela Cutas & Kristien Hens - 2017 - In Kristien Hens, Daniela Cutas & Dorothee Horstkötter (eds.), Parental Responsibility in the Context of Neuroscience and Genetics. Springer.
    Beliefs about the moral status of children have changed significantly in recent decades in the Western world. At the same time, knowledge about likely consequences for children of individual, parental, and societal choices has grown, as has the array of choices that (prospective) parents may have at their disposal. The intersection between these beliefs, this new knowledge, and these new choices has created a minefield of expectations from parents and a seemingly ever-expanding responsibility towards their children. Some of these new (...)
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  2. added 2020-03-10
    Skapat liv och livets värde.Erik Persson - 2017 - In LIV – Utomjordiskt, Syntetiskt, Artificiellt. Lund, Sverige: Pufendorfinstitutet. pp. 219-237.
    Om människan någon gång kommer att få förmågan att skapa nya livsformer, hur kommer det att påverka livets värde? Detta är en fråga som kan vara en källa till oro när man diskuterar konstgjort liv, men är oron befogad? I ett försök att svara på den frågan kommer jag att gå igenom några möjliga skäl till varför förmågan att skapa konstgjort liv skulle hota livets värde, och se om de verkligen ger oss skäl att oroa oss.
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  3. added 2019-11-13
    Improving the Justice‐Based Argument for Conducting Human Gene Editing Research to Cure Sickle Cell Disease.Berman Chan - 2020 - Bioethics 34 (2):200-202.
    In a recent article, Marilyn Baffoe-Bonnie offers three arguments for conducting CRISPR/Cas9 biotechnology research to cure sickle-cell disease (SCD) based on addressing historical and current injustices in SCD research and care. I show that her second and third arguments suffer from roughly the same defect, which is that they really argue for something else rather than for conducting CRISPR/Cas9 research in particular to cure SCD. For instance, the second argument argues that conducting this gene therapy research would improve the relationship (...)
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  4. added 2019-06-27
    Cloning Centering at Egoism.Yusuke Kaneko - 2019 - The Basis : The Annual Bulletin of Research Center for Liberal Education 9:245-260.
    Cloning research caught a great deal of attention when Dolly the sheep was born (§4). While some fear surrounded the attainment (§§14-15), Wilmutʼs research itself has grown well, providing a less vicious manner to gain ES cells (§12). In this article, we review the progress of cloning research along with the concern of medical circles about its application to reproductive cloning, that is to say, making replicas of human beings (§§16-21). Note that all the content is ascribed to the author (...)
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  5. added 2019-06-19
    Patently Paradoxical? 'Public Order' and Genetic Patents.Donna Dickenson - 2004 - Nature Reviews Genetics 5 (2):86.
    How heavily should ethical considerations weigh in allowing or disallowing genetic patents? The concept of 'ordre public' can be useful in offsetting a simple utilitarian view.
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  6. added 2019-06-19
    Review of Graeme Laurie, Genetic Privacy. [REVIEW]Donna Dickenson - 2003 - Journal of Medical Ethics 29:271-374.
    Review of Graeme Laurie, Genetic Privacy: A Challenge to Medico-Legal Norms.
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  7. added 2019-06-18
    Body Shopping: The Economy Fuelled by Flesh and Blood.Donna Dickenson - 2008 - Oxford: Oneworld.
    'An alarming and illuminating book. The story of how we have allowed private corporations to patent genes, to stockpile human tissue, and in short to make profits out of what many people feel ought to be common goods is a shocking one. No one with any interest at all in medicine and society and how they interact should miss this book, and it should be required reading for every medical student,'--Philip Pullman.
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  8. added 2019-06-17
    Personalised Medicine, Individual Choice and the Common Good.Britta van Beers, Sigrid Sterckx & Donna Dickenson (eds.) - 2018 - Cambridge: Cambridge University Press.
    This is a volume of twelve essays concerning the fundamental tension in personalised medicine between individual choice and the common good.
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  9. added 2019-06-17
    Bioethics: All That Matters.Donna Dickenson - 2012 - London: Hodder.
    Should we do whatever science lets us do? This short introduction in the 'All That Matters' series shows how developments in biotechnology, such as genetics, stem cell research and artificial reproduction, arouse both our greatest hopes and our greatest fears. Many people invest the new biotechnology with all the aspirations and faith once accorded to religious salvation. But does everyone benefit equally from scientific progress? This book argues that although we've entered new scientific territory, there is no need to jettison (...)
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  10. added 2019-06-15
    Biomarkers for the Rich and Dangerous: Why We Ought to Extend Bioprediction and Bioprevention to White-Collar Crime.Hazem Zohny, Thomas Douglas & Julian Savulescu - 2019 - Criminal Law and Philosophy 13 (3):479-497.
    There is a burgeoning scientific and ethical literature on the use of biomarkers—such as genes or brain scan results—and biological interventions to predict and prevent crime. This literature on biopredicting and biopreventing crime focuses almost exclusively on crimes that are physical, violent, and/or sexual in nature—often called blue-collar crimes—while giving little attention to less conventional crimes such as economic and environmental offences, also known as white-collar crimes. We argue here that this skewed focus is unjustified: white-collar crime is likely far (...)
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  11. added 2019-06-06
    When the Milk of Human Kindness Becomes a Luxury Good.Inmaculada de Melo-Martin - 2017 - Cambridge Quarterly of Healthcare Ethics 26 (1):159-165.
    A new reprogenetic technology, mitochondrial replacement, is making its appearance and, unsurprisingly given its promise to wash off our earthly stains --or at least the scourges of sexual reproduction--, John Harris finds only reasons to celebrate this new scientific feat.1 In fact, he finds mitochondrial replacement techniques (MRTs) so “unreservedly welcome” that he believes those who reject them suffer from “a large degree of desperation and not a little callousness.”2 Believing myself to be neither desperate nor callous, but finding myself (...)
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  12. added 2019-06-06
    Social Epigenetics and Equality of Opportunity.Michele Loi, Lorenzo Del Savio & Elia Stupka - 2013 - Public Health Ethics 6 (2):142-153.
    Recent epidemiological reports of associations between socioeconomic status and epigenetic markers that predict vulnerability to diseases are bringing to light substantial biological effects of social inequalities. Here, we start the discussion of the moral consequences of these findings. We firstly highlight their explanatory importance in the context of the research program on the Developmental Origins of Health and Disease (DOHaD) and the social determinants of health. In the second section, we review some theories of the moral status of health inequalities. (...)
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  13. added 2019-06-06
    What is Fair and Equitable Benefit-Sharing?Bram Jonge - 2011 - Journal of Agricultural and Environmental Ethics 24 (2):127-146.
    "Fair and equitable benefit-sharing" is one of the objectives of the UN Convention on Biological Diversity and the FAO International Treaty on Plant Genetic Resources for Food and Agriculture. In essence, benefit-sharing holds that countries, farmers, and indigenous communities that grant access to their plant genetic resources and/or traditional knowledge should share in the benefits that users derive from these resources. But what exactly is understood by "fair" and "equitable" in this context? Neither term is defined in the international treaties. (...)
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  14. added 2019-06-06
    Neuroethical Issues in Neurogenetic and Neuro-Implantation Technology: The Need for Pragmatism and Preparedness in Practice and Policy.James Giordano - 2010 - Studies in Ethics, Law, and Technology 4 (3).
    This comment responds to a remark made by Meloni et al concerning brain implants and brain-gene transfer—that we ought to give primacy to ethical issues inherent to medical utility rather than speculating on issues of potential misuse. It foregrounds the benefits, burdens and risks as well as how to validate consent to the use of such novel and uncertain techniques. It asks how legal claims would be handled in the absence of historical casuistry—constructs of responsibility and culpability for resultant harms. (...)
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  15. added 2019-06-06
    The New Biology and its Impact in Biomedical Strategies Against HIV\Textfractionsolidus{}AIDS.Gayle E. Woloschak - 2004 - Zygon 39 (2):481-486.
    . The sequencing of the human genome and the initiation of the structural genomics projects have ushered in a new age of biology that involves multi-lab, high-cost projects with broad task-oriented goals rather than the more conventional hypothesis-driven approach of the past. The new biology has led to the development of new sets of tools for the scientist to use in the quest to solve mysteries of human disease, biomolecular structure-function relationships, and other burning biological questions. Nevertheless, the impact of (...)
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  16. added 2019-06-06
    Genetic Information: Acquisition, Access, and Control: Edited by Alison K Thompson and Ruth F Chadwick, New York, Kluwer Academic/Plenum Publishers, 1999, 348 Pages, $115 (Hc). [REVIEW]Lenore Abramsky - 2001 - Journal of Medical Ethics 27 (3):213-214.
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  17. added 2019-06-06
    Reconstruing Genetic Research as Research.M. Therese Lysaught - 1998 - Journal of Law, Medicine and Ethics 26 (1):48-54.
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  18. added 2019-06-05
    Review of Who Owns You?: The Corporate Gold Rush to Patent Your Genes. [REVIEW]David Resnik - 2010 - Studies in Ethics, Law, and Technology 4 (1).
  19. added 2019-02-26
    The Trust Game CRISPR for Human Germline Editing Unsettles Scientists and Society.Matthias Braun & Darian Meacham - 2019 - EMBO Reports 20 (2).
  20. added 2019-01-31
    Book Review: The Challenges of Increased Genetic Knowledge. [REVIEW]John Twomey - 2000 - Ethics and Behavior 10 (4):403-406.
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  21. added 2019-01-08
    Pharmacogenomic Inequalities: Strategies for Justice in Biomedical Research and Healthcare.Giovanni De Grandis - 2017 - Diametros 51:153-172.
    The paper discusses the possibility that the benefits of pharmacogenomics will not be distributed equally and will create orphan populations. I argue that since these inequalities are not substantially different from those produced by ‘traditional’ drugs and are not generated with the intention to discriminate, their production needs not be unethical. Still, the final result is going against deep-seated moral feelings and intuitions, as well as broadly accepted principles of just distribution of health outcomes and healthcare. I thus propose two (...)
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  22. added 2018-12-03
    Changing Kinds: Aristotle and the Aristotelians.Stephen R. L. Clark - 2015 - Diametros 45:19-34.
    Aristotle is routinely blamed for several errors that, it is supposed, held 'science' back for centuries - among others, a belief in distinct, homogenous and unchanging species of living creatures, an essentialist account of human nature, and a suggestion that 'slavery' was a natural institution. This paper briefly examines Aristotle's own arguments and opinions, and the perils posed by a contrary belief in changeable species. Contrary to received opinion even amongst some of his followers, Aristotle was not a species essentialist (...)
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  23. added 2018-12-03
    Finansowanie testów genetycznych ze źródeł publicznych.Olga Dryla - 2015 - Diametros 44:1-19.
    One of the signs of the rapid development of medical genetics is a gradual increase in the number of genetic tests available. Different aspects of this phenomenon have been addressed and debated in the source literature, but so far relatively little has been said about the obligation to provide equal access – in the social context – to selected kinds of tests. In this article, I attempt to reconstruct those few suggestions, dealing with the principles of funding genetic tests from (...)
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  24. added 2018-12-03
    Ewolucja koncepcji świadomej zgody w kontekście badań naukowych z użyciem ludzkiego materiału biologicznego.Jakub Pawlikowski - 2015 - Diametros 44:89-109.
    The development of research based on human biological material has contributed to a lively debate on the concept of informed consent in these studies, particularly its scope, form and length of validity. The biggest disputes and doubts concern the range of consent for research that will be conducted in the future, whose aim and place are unknown at the time of the sample collection, as are the future researchers and the ability to use the previously collected materials again. This situation (...)
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  25. added 2018-03-17
    Funding and Forums for ELSI Research: Who (or What) Is Setting the Agenda?Clair Morrissey & Rebecca Walker - 2012 - American Journal of Bioethics Primary Research 3 (3):41-50.
    Background: Discussion of the influence of money on bioethics research seems particularly salient in the context of research on the ethical, legal, and social implications (ELSI) of human genomics, as this research may be financially supported by the ELSI Research Program. Empirical evidence regarding the funding of ELSI research and where such research is disseminated, in relation to the specific topics of the research and methods used, can help to further discussions regarding the appropriate influence of specific institutions and institutional (...)
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  26. added 2018-03-17
    Charting ELSI’s Future Course: Lessons From the Recent Past.Rebecca Walker & Clair Morrissey - 2012 - Genetics in Medicine 14 (2):259-267.
    Purpose: We sought to examine the ethical, legal, and social implications (ELSI) literature research and scholarship types, topics, and contributing community fields of training as a first step to charting the broader ELSI community’s future priorities and goals. Methods: We categorized 642 articles and book chapters meeting inclusion criteria for content in both human genetics or genomics and ethics or ELSI during a 5-year period (2003–2008) according to research and scholarship types, topics, and the area of advanced training of the (...)
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  27. added 2018-03-08
    The Ethics of General Population Preventive Genomic Sequencing: Rights and Social Justice.Clair Morrissey & Rebecca L. Walker - 2018 - Journal of Medicine and Philosophy 43 (1):22-43.
    Advances in DNA sequencing technology open new possibilities for public health genomics, especially in the form of general population preventive genomic sequencing. Such screening programs would sit at the intersection of public health and preventive health care, and thereby at once invite and resist the use of clinical ethics and public health ethics frameworks. Despite their differences, these ethics frameworks traditionally share a central concern for individual rights. We examine two putative individual rights—the right not to know, and the child’s (...)
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  28. added 2018-03-06
    Identità e determinismo genetico. Bioetica e filosofia delle scienze genetiche.Gregory Tranchesi - 2013 - Edizioni Nuova Prhomos.
  29. added 2018-02-17
    What Research Ethics Should Learn From Genomics and Society Research: Lessons From the ELSI Congress of 2011.Gail E. Henderson, Eric T. Juengst, Nancy M. P. King, Kristine Kuczynski & Marsha Michie - 2012 - Journal of Law, Medicine and Ethics 40 (4):1008-1024.
    Research on the ethical, legal, and social implications (ELSI) of human genomics has devoted significant attention to the research ethics issues that arise from genomic science as it moves through the translational process. Given the prominence of these issues in today's debates over the state of research ethics overall, these studies are well positioned to contribute important data, contextual considerations, and policy arguments to the wider research ethics community's deliberations, and ultimately to develop a research ethics that can help guide (...)
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  30. added 2018-02-17
    Stem Cell Research on Embryonic Persons Is Just.Aaron Rizzieri - 2012 - Journal of Bioethical Inquiry 9 (2):195-203.
    Abstract I argue that embryonic stem cell research is fair to the embryo, even on the assumption that the embryo has attained full personhood and an attendant right to life at conception. This is because the only feasible alternatives open to the embryo are to exist briefly in an unconscious state and be killed or to not exist at all. Hence, one is neither depriving the embryo of an enduring life it would otherwise have had nor is one causing the (...)
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  31. added 2018-01-19
    Bioethics: Reincarnation of Natural Philosophy in Modern Science.Valentin Teodorovich Cheshko, Valery I. Glazko & Yulia V. Kosova - 2017 - Biogeosystem Technique 4 (2):111-121.
    The theory of evolution of complex and comprising of human systems and algorithm for its constructing are the synthesis of evolutionary epistemology, philosophical anthropology and concrete scientific empirical basis in modern (transdisciplinary) science. «Trans-disciplinary» in the context is interpreted as a completely new epistemological situation, which is fraught with the initiation of a civilizational crisis. Philosophy and ideology of technogenic civilization is based on the possibility of unambiguous demarcation of public value and descriptive scientific discourses (1), and the object and (...)
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  32. added 2017-09-29
    Benefit Sharing in a Global Context: Working Towards Solutions for Implementation.J. Hurst Daniel - 2017 - Developing World Bioethics 17 (2):70-76.
    Due to the state of globalized clinical research, questions have been raised as to what, if any, benefits those who contribute to research should receive. One model for compensating research participants is “benefit sharing,” and the basic premise is that, as a matter of justice, those who contribute to scientific research should share in its benefits. While incorporated into several international documents for over two decades, benefit sharing has only been sparsely implemented. This analysis begins by addressing the concept of (...)
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  33. added 2017-07-19
    Age of Genetics and the age of biotechnology on the way to editing of, human genome.Valentin Teodorovich Cheshko (ed.) - 2016 - Moscow Russia: Kurs-INFRA-M.
    The book discusses some of the stages in the development of genetics, biotechnology in terms of basic strategy of humanity towards the formation of a modern agrarian civilization. Agricultural civilization is seen as part of the biosphere and primary user of its energy flows. Consistently a steps of creation of management tools for live objects to increasing the number of food security of mankind are outlines. The elements of the biosphere degradation started in the results of human activities, and the (...)
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  34. added 2017-07-08
    Designing Babies: Morally Permissible Ways to Modify the Human Genome1.Nicholas Agar - 1995 - Bioethics 9 (1):1-15.
    My focus in this paper is the question of the moral acceptability of attempts to modify the human genome. Much of the debate in this area has revolved around the distinction between supposedly therapeutic modification on the one hand, and eugenic modification on the other. In the first part of the paper I reject some recent arguments against genetic engineering. In the second part I seek to distinguish between permissible and impermissible forms of intervention in such a way that does (...)
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  35. added 2017-03-10
    Genetic Selection and Modal Harms.Anthony Wrigley - 2006 - The Monist 89 (4):505-525.
    Parfit’s (1984) Non-Identity Problem provides a strong line of argument that we cannot be harmed by pre-conception choices or actions. I argue that we can no longer appeal to the Non-Identity problem in order to justify using pre-conception genetic screening and selection techniques as a harmless tool to determine the genetic constitution of future individuals. My criticism of the Non-Identity problem is based on a rejection of the metaphysical foundations of Parfit’s argument - Kripke’s (1980) essentialist arguments for the necessity (...)
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  36. added 2017-02-15
    Gender and Vulnerable Populations in Benefit Sharing: An Exploration of Conceptual and Contextual Points.Fatima Alvarez-Castillo, Julie Lucas & Rosa Castillo - 2009 - Cambridge Quarterly of Healthcare Ethics 18 (2):130-137.
    Vulnerable populations have been defined as those who face a significant probability of incurring an identifiable harm while substantially lacking ability and/or means to protect themselves. Vulnerabilities within population groups can be differentiated by factors that determine the different probabilities of incurring identifiable harms people face and the means available to them to protect themselves . Among these factors is gender.
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  37. added 2017-02-15
    Case Study: For the Benefit of All.Sharon J. Durfy & June A. Peters - 1993 - Hastings Center Report 23 (5):28.
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  38. added 2017-02-14
    Studying Benefit in Gene Transfer Research.Gail E. Henderson & Nancy M. P. King - forthcoming - IRB: Ethics & Human Research.
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  39. added 2017-02-14
    Sharing Time Across Unshared Horizons.Gail Weiss - 2011 - In Christina Schües, Dorothea Olkowski & Helen Fielding (eds.), Time in Feminist Phenomenology. Indiana University Press. pp. 171.
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  40. added 2017-02-14
    Genetic Imaginations: Ethical, Legal and Social Issues in Human Genome Research. Edited by Peter Glasner and Harry Rothman.P. S. Timiras - 2001 - The European Legacy 6 (1):122-122.
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  41. added 2017-02-14
    Towards a Sharing of Sacramental Consciousness.Frank Fletcher - 2000 - The Australasian Catholic Record 77 (3):292.
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  42. added 2017-02-14
    Some Thoughts on Sharing Science.Ivan Brady & Alok Kumar - 2000 - Science Education 84 (4):507-523.
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  43. added 2017-02-14
    Disclosing: Benefit or Burden?J. N. Hartz - 1997 - Cambridge Quarterly of Healthcare Ethics 6:95-96.
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  44. added 2017-02-14
    Larry May, Sharing Responsibility Reviewed By.Gregory Pence - 1994 - Philosophy in Review 14 (3):189-190.
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  45. added 2017-02-14
    Opportunity, Access, Help and Benefit in Public Schools.Nicholas V. Costantino - 1981 - Journal of Thought 16 (2):3-10.
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  46. added 2017-02-13
    Technology Indicators Based on Patents and Patent Citations.Francis Narin & David Olivastro - 1988 - In A. F. J. van Raan (ed.), Handbook of Quantitative Studies of Science and Technology. Elsevier. pp. 465--507.
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  47. added 2017-02-12
    User on the Payroll–The Challenges of Revenue Sharing in Commercial Mediaspace.Juhani Linna & Mari Ainasoja - 2014 - Iris 35.
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  48. added 2017-02-12
    The Out-of-Network Benefit: Problems and Policy Solutions.Kelly A. Kyanko & Susan H. Busch - 2012 - Inquiry: The Journal of Health Care Organization, Provision, and Financing 49 (4):352-361.
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  49. added 2017-02-12
    In the Ruins of Babel: Pitfalls on the Way Toward a Universal Language for Research Ethics and Benefit Sharing.Jan Helge Solbakk - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (3):341-355.
    At the end of a paper on international research ethics published in the July-August 2010 issue of the Hastings Center Report, London and Zollman argue the need for grounding our duties in international medical and health-related research within a broader normative framework of social, distributive, and rectificatory justice. The same goes for Thomas Pogge, who, in a whole range of publications during the past years, has argued for a human-rights-based approach to international research. In a thought-provoking paper in the June (...)
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  50. added 2017-02-12
    The Self-Dual Serial Cost-Sharing Rule.M. J. Albizuri - 2010 - Theory and Decision 69 (4):555-567.
    In this study, we present a cost-sharing rule for cost-sharing problems. This rule prescribes the same allocations in a problem and in its dual one. Moreover, in some specific problems it gives the same allocations as the serial cost-sharing rule (Moulin and Shenker, Econometrica, 60, 1009–1037, 1992) does in a related problem. That is why we call it as the self-dual serial cost-sharing rule. We give two axiomatizations of this new rule and another one for the serial cost-sharing rule.
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