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  1. Two Dilemmas for Medical Ethics in the Treatment of Gender Dysphoria in Youth.Teresa Baron & Geoffrey Dierckxsens - forthcoming - Journal of Medical Ethics:medethics-2021-107260.
    Both the diagnosis and medical treatment of gender dysphoria —particularly in children and adolescents—have been the subject of significant controversy in recent years. In this paper, we outline the means by which GD is diagnosed in children and adolescents, the currently available treatment options, and the bioethical issues these currently raise. In particular, we argue that the families and healthcare providers of children presenting with GD currently face two main ethical dilemmas in decision making regarding treatment: the pathway dilemma and (...)
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  2. The Theorisation of ‘Best Interests’ in Bioethical Accounts of Decision-Making.Giles Birchley - 2021 - BMC Medical Ethics 22 (1):1-18.
    Background Best interests is a ubiquitous principle in medical policy and practice, informing the treatment of both children and adults. Yet theory underlying the concept of best interests is unclear and rarely articulated. This paper examines bioethical literature for theoretical accounts of best interests to gain a better sense of the meanings and underlying philosophy that structure understandings. Methods A scoping review of was undertaken. Following a literature search, 57 sources were selected and analysed using the thematic method. Results Three (...)
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  3. Waiting, Strange: Transplant Recipient Experience, Medical Time and Queer/Crip Temporalities.Sara Wasson - forthcoming - Medical Humanities:medhum-2021-012141.
    People who receive a ‘solid’ organ transplant from a deceased person may experience imaginative challenges in making sense of how the transfer impacts their own past and future, as shown in existing scholarship. Building on such work, this article considers how the temporalities of medical encounter itself may also become temporally ambiguous, posing representational challenges both pre-transplantation and post-transplantation. The dominant narrative of transplant in transplantation journals and hospital communications, both clinical and patient-facing, presents surgery as a healing moment, yet (...)
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  4. Talking It Better: Conversations and Normative Complexity in Healthcare Improvement.Alan Cribb, Vikki Entwistle & Polly Mitchell - forthcoming - Medical Humanities:medhum-2020-012129.
    In this paper, we consider the role of conversations in contributing to healthcare quality improvement. More specifically, we suggest that conversations can be important in responding to what we call ‘normative complexity’. As well as reflecting on the value of conversations, the aim is to introduce the dimension of normative complexity as something that requires theoretical and practical attention alongside the more recognised challenges of complex systems, which we label, for short, as ‘explanatory complexity’. In brief, normative complexity relates to (...)
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  5. Women’s Voices, Emotion and Empathy: Engaging Different Publics with ‘Everyday’ Health Histories.Tracey Loughran, Kate Mahoney & Daisy Payling - forthcoming - Medical Humanities:medhum-2020-012102.
    This article explores our experiences on a Wellcome Trust-funded project on women’s experiences of ‘everyday health’ in Britain between the 1960s and the 1990s. We explore issues around researching ‘everyday health’, including the generation and interpretation of source materials, and the role of empathy and emotion in interactions with different audiences as we share these materials in public engagement activities. We discuss three case studies of engagement activities to draw out potential uses of source materials and the responses of different (...)
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  6. Divinity in Nursing: The Complexities of Adopting a Spiritual Basis for Care.Bernie Garrett - forthcoming - Nursing Philosophy.
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  7. War of Conscience: Antivaccination and the Battle for Medical Freedom During World War I.Susan McPherson - forthcoming - Medical Humanities:medhum-2020-012069.
    The nineteenth century British antivaccination movement attracted popular and parliamentary support and ultimately saw the 1853 law which had made smallpox vaccination compulsory nullified by the 1898 ‘conscientious objector’ clause. In keeping with popular public health discourse of the time, the movement had employed rhetoric associated with sanitary science and liberalism. In the early twentieth century new discoveries in bacteriology were fuelling advances in vaccination and the medical establishment was increasingly pushing for public health to move towards more interventionist medical (...)
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  8. Milk’s Flows: Making and Transmitting Kinship, Health, and Personhood.Roslyn Malcolm - forthcoming - Medical Humanities:medhum-2019-011829.
    Milk provides a way of thinking about how the body is enacted in science, policy and popular culture. This paper follows the currents of moral and biomedical epistemologies circulating around milk, including via notions of inheritance, the practices of wet nursing, and emerging scientific knowledge about the health-related benefits of breastfeeding. By situating milk’s flows historically and culturally it shows how constructions of milk production, lactation, and infant feeding have long served as a ‘cultural signal’ of prevailing conceptions of bodies (...)
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  9. Losing Meaning: Philosophical Reflections on Neural Interventions and Their Influence on Narrative Identity.Muriel Leuenberger - forthcoming - Neuroethics:1-15.
    The profound changes in personality, mood, and other features of the self that neural interventions can induce can be disconcerting to patients, their families, and caregivers. In the neuroethical debate, these concerns are often addressed in the context of possible threats to the narrative self. In this paper, I argue that it is necessary to consider a dimension of impacts on the narrative self which has so far been neglected: neural interventions can lead to a loss of meaning of actions, (...)
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  10. Complexities in Interdisciplinary Community Engagement Projects: Some Reflections and Lessons From an Applied Drama and Theatre Project in Diabetes Care.Jennifer Watermeyer, Victoria Jane Hume, Tshegofatso Seabi & Rhona Nattrass - forthcoming - Medical Humanities:medhum-2019-011822.
    There is a growing interest in using drama techniques and theatrical performance to disseminate health information to lay audiences as part of community engagement projects. This process can be challenging for a number of reasons, however. In this paper, we describe the process and pitfalls of an interdisciplinary project involving the development and performance of a play about diabetes mellitus. The play formed part of a long-term, three-way community engagement project between social science, applied drama and a diabetes clinic in (...)
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  11. The Path Toward Ectogenesis: Looking Beyond the Technical Challenges.Seppe Segers - 2021 - BMC Medical Ethics 22 (1):1-15.
    Background Breakthroughs in animal studies make the topic of human application of ectogenesis for medical and non-medical purposes more relevant than ever before. While current data do not yet demonstrate a reasonable expectation of clinical benefit soon, several groups are investigating the feasibility of artificial uteri for extracorporeal human gestation. Main text This paper offers the first comprehensive and up to date discussion of the most important pros and cons of human ectogenesis in light of clinical application, along with an (...)
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  12. Cultural Sensitivity in Brain Death Determination: A Necessity in End-of-Life Decisions in Japan.Yuri Terunuma & Bryan J. Mathis - 2021 - BMC Medical Ethics 22 (1):1-6.
    Background In an increasingly globalized world, legal protocols related to health care that are both effective and culturally sensitive are paramount in providing excellent quality of care as well as protection for physicians tasked with decision making. Here, we analyze the current medicolegal status of brain death diagnosis with regard to end-of-life care in Japan, China, and South Korea from the perspectives of front-line health care workers. Main body Japan has legally wrestled with the concept of brain death for decades. (...)
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  13. Thinking About the Idea of Consent in Data Science Genomics: How ‘Informed’ is It?Jennifer Greenwood & Andrew Crowden - forthcoming - Nursing Philosophy.
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  14. Cicely Saunders, ‘Total Pain’ and Emotional Evidence at the End of Life.Joe Wood - forthcoming - Medical Humanities:medhum-2020-012107.
    In this article I explore how Cicely Saunders championed the hospice movement and initiated what became palliative care by representing her emotional connections with others. She became friends with dying patients and encouraged others to follow her example in listening to patients’ descriptions of pain. Her approach was radical at a time when she believed doctors routinely ‘deserted’ dying patients because it urged them to understand another’s embodied pain as inextricably bound up with the emotional impact of a terminal diagnosis. (...)
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  15. Lessons From the Frontlines: A Junior Doctor’s Experience of the First Wave of the COVID-19 Pandemic in a Resource-Limited Setting.Brabaharan Subhani, Dilushi Wijayaratne & Saroj Jayasinghe - forthcoming - Medical Humanities:medhum-2020-012109.
    COVID-19 has stressed healthcare systems across the globe. We present the experience of an intern medical officer working in a tertiary care hospital during the first wave of the pandemic in Sri Lanka. Her narrative describes how the stress of the pandemic brought into sharp focus the strengths and weaknesses in the health system. We suggest some strategies to improve our health services as the world faces the second wave and an uncertain future. These include structural changes in healthcare services (...)
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  16. Out of Date: Genetics, History and the British Novel of the 1990s.Natalie Riley - forthcoming - Medical Humanities:medhum-2020-012022.
    This article examines the representation of human genomics in the British historical novel of the 1990s. A form which meditates on the past and its relationship to the present, the historical novel readily lends itself to the exploration of genealogy, heredity and inheritance. Forwarding an understanding of human history, and particularly of family history, as a direct and causal function of the genes, the neo-Darwinian explanation of the genome popular in the 1990s similarly advanced its own teleological relationship between past (...)
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  17. An Ontological Argument Against Mandatory Face-Masks.Michael Kowalik - manuscript
    Face-coverings were widely mandated during the Covid-19 pandemic, on the assumption that they limit the spread of respiratory viruses and are therefore likely to save lives. I examine the following ethical dilemma: if the use of face-masks in social settings can save lives then are we obliged to wear them at all times in those settings? I argue that by en-masking the face in a way that is phenomenally inconsistent with or degraded from what we are innately programmed to detect (...)
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  18. Dilthey’s Philosophy and Methodology of Hermeneutics: An Approach and Contribution to Nursing Science.Dara James & Pauline Komnenich - forthcoming - Nursing Philosophy.
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  19. Resisting the Muddy Notion of the ‘Inclusionary Other’: A Re/Turn to the Philosophical Underpinnings of Othering's Construction.Janina S. Krabbe - forthcoming - Nursing Philosophy.
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  20. Philosophy of Advanced Medical Imaging.Elisabetta Lalumera & Stefano Fanti - 2021 - Springer International.
    This is the first book to explore the epistemology and ethics of advanced imaging tests, in order to improve the critical understanding of the nature of knowledge they provide and the practical consequences of their utilization in healthcare. Advanced medical imaging tests, such as PET and MRI, have gained center stage in medical research and in patients’ care. They also increasingly raise questions that pertain to philosophy: What is required to be an expert in reading images? How are standards for (...)
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  21. Does the "Morning Morality Effect" Apply to Prehospital Anaesthesiologists? An Investigation Into Diurnal Changes in Ethical Behaviour.Caroline Schaffalitzky, Anne Craveiro Brøchner, Lars Grassmè Binderup & Søren Mikkelsen - 2020 - Healthcare 2 (8).
    The "morning morality effect"-the alleged phenomenon that people are more likely to act in unethical ways in the afternoon when they are tired and have less self-control than in the morning-may well be expected to influence prehospital anaesthesiologist manning mobile emergency care units (MECUs). The working conditions of these units routinely entail fatigue, hunger, sleep deprivation and other physical or emotional conditions that might make prehospital units predisposed to exhibit the "morning morality effect". We investigated whether this is in fact (...)
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  22. ‘That is the Skin of My Brother’: Alterity, Hybridity and Media Representations of Facial Transplantation.Marc Lafrance - forthcoming - Medical Humanities:medhum-2020-012031.
    In this paper, I explore the 2012 face transplant performed on US recipient Richard Norris and how it was represented by the media as a ‘makeover story’. Informed by press coverage from the date of the transplant to the present day, I examine a widely viewed and critically acclaimed investigative report that aired on CBS’s 60 Minutes entitled ‘My Brother’s Keeper’. Through a close reading of both its form and content, I claim that the report’s makeover story consists of four (...)
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  23. The Ethics of Single Blind Trials.Paul S. Heckerling - 2005 - IRB: Ethics & Human Research 27 (4):12.
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  24. Respondent Burden in Clinical Research: When Are We Asking Too Much of Subjects?Connie M. Ulrich, Gwenyth R. Wallen, Autumn Feister & Christine Grady - 2005 - IRB: Ethics & Human Research 27 (4):17.
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  25. Can Underpowered Clinical Trials Be Justified?Philip M. Rosoff - 2004 - IRB: Ethics & Human Research 26 (3):16.
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  26. Concepts, Categories, and Value Judgments in Informed Consent Forms.Mark Hochhauser - 2003 - IRB: Ethics & Human Research 25 (5):7.
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  27. Ten Questions Institutional Review Boards Should Ask When Reviewing International Clinical Research Protocols.Daniel W. Fitzgerald, Angela Wasunna & Jean William Pape - 2003 - IRB: Ethics & Human Research 25 (2):14.
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  28. Searching for "Research Involving Human Subjects": What Is Examined? What Is Exempt? What Is Exasperating?Ivor A. Pritchard - 2001 - IRB: Ethics & Human Research 23 (3):5.
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  29. An Evaluation of Human Subjects Protection at CDC / ATSDR.John Santelli, Elizabeth Ginn & Marjorie A. Speers - 2000 - IRB: Ethics & Human Research 22 (4):1.
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  30. Ethical Implications of Pediatric Drug Research Policy Initiatives.John G. Twomey - 2000 - IRB: Ethics & Human Research 22 (2):5.
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  31. IRB Triage of Projects That Involve Medical Record Review.Robert Amdur, Marjorie A. Speers & Elizabeth Bankert - 2000 - IRB: Ethics & Human Research 22 (1):4.
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  32. Ethical Issues Arising When Interim Data in Clinical Trials Is Restricted to Independent Data Monitoring Committees.Robert J. Wells, Peter S. Gartside & Christine L. McHenry - 2000 - IRB: Ethics & Human Research 22 (1):7.
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  33. Adverstising for Clinical Research.Franklin G. Miller & Andrew F. Short - 1999 - IRB: Ethics & Human Research 21 (5):1.
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  34. A Reappraisal of Female Adolescent Participation in Drug Clinical Trials.Terry M. VandenBosch, Becky G. Ward & Debra Mattison - 1999 - IRB: Ethics & Human Research 21 (1):1.
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  35. The Placebo Is Not Dead Three Historical Vignettes.Peter J. Cohen - 1998 - IRB: Ethics & Human Research 20 (2/3):6.
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  36. Toward a More Comprehensive Approach to Protecting Human Subjects: The Interface of Data Safety Monitoring Boards and Institutional Review Boards in Randomized Clinical Trials.Valery M. Gordon, Jeremy Sugarman & Nancy Kass - 1998 - IRB: Ethics & Human Research 20 (1):1.
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  37. Ethical Considerations in Human Investigation Involving Paradigm Shifts: Organ Transplantation in the 1990s.Kenneth F. Schaffner - 1997 - IRB: Ethics & Human Research 19 (6):5.
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  38. Continuing Review of Research Involving Human Subjects: Approach to the Problem and Remaining Areas of Concern.Bruce Gordon & Ernest Prentice - 1997 - IRB: Ethics & Human Research 19 (2):8.
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  39. Collaborative Research Involving Human Subjects: A Survey of Researchers Using International Single Project Assurances.Alison Wichman, Janet Smith, Deloris Mills & Alan L. Sandler - 1997 - IRB: Ethics & Human Research 19 (1):1.
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  40. Proposed Regulations for Research Involving Those Institutionalized as Mentally Infirm: A Consideration of Their Relevance in 1996.Robert J. Levine - 1996 - IRB: Ethics & Human Research 18 (5):1.
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  41. Asking About Asking: Informed Consent in Organ Donation Research.Anita H. Weiss - 1996 - IRB: Ethics & Human Research 18 (1):6.
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  42. Clinical Trials Committees: How Long Is the Protocol Review and Approval Process in Spain? A Prospective Study.Rafael Ortega & Rafael Dal-Ré - 1995 - IRB: Ethics & Human Research 17 (4):6.
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  43. The Ethics of Phase I Pediatric Oncology Trials.Terrence F. Ackerman - 1995 - IRB: Ethics & Human Research 17 (1):1.
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  44. The Incommensurability of Research Risks and Benefits: Practical Help for Research Ethics Committees.Douglas K. Martin, Eric M. Meslin, Nitsa Kohut & Peter A. Singer - 1995 - IRB: Ethics & Human Research 17 (2):8.
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  45. The Ethics of Involving Psychiatrically Impaired Persons in Research.Evan Gaines DeRenzo - 1994 - IRB: Ethics & Human Research 16 (6):7.
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  46. Judging the Ethical Merit of Clinical Trials: What Criteria Do Research Ethics Board Members Use?Eric M. Meslin, James V. Lavery, Heather J. Sutherland & James E. Till - 1994 - IRB: Ethics & Human Research 16 (4):6.
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  47. Study of Protection for Human Subjects Should Examine the Entire Universe of IRBs.Erica J. Heath - 1993 - IRB: Ethics & Human Research 15 (6):10.
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  48. Consistency in Interpreting Federal Regulations Helps Assure Equitable Treatment of Subjects.Ernest D. Prentice - 1993 - IRB: Ethics & Human Research 15 (1):11.
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  49. Methods of Assessing and Improving Patient Compliance in Clinical Trials.Bert Spilker - 1992 - IRB: Ethics & Human Research 14 (3):1.
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  50. Guidelines for Conducting HIV Research with Human Subjects at a U.S. Military Medical Center.Eric S. Marks, Sarkis S. Derderian & H. Linton Wray - 1992 - IRB: Ethics & Human Research 14 (1):7.
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1 — 50 / 19279