Switch to: References

Add citations

You must login to add citations.
  1. Currents in Contemporary Bioethics: The Case Against Precipitous, Population-Wide, Whole-Genome Sequencing.Mark A. Rothstein - 2012 - Journal of Law, Medicine and Ethics 40 (3):682-689.
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  • Two Faces of Patient Advocacy: The Current Controversy in Newborn Screening.Cosby G. Arnold - 2014 - Journal of Medical Ethics 40 (8):558-562.
    Newborn screening programmes began in the 1960s, have traditionally been conducted without parental permission and have grown dramatically in the last decade. Whether these programmes serve patients’ best interests has recently become a point of controversy. Privacy advocates, concerned that newborn screening infringes upon individual liberties, are demanding fundamental changes to these programmes. These include parental permission and limiting the research on the blood samples obtained, an agenda at odds with the viewpoints of newborn screening advocates. This essay presents the (...)
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  • What is in a Name? Parent, Professional and Policy-Maker Conceptions of Consent-Related Language in the Context of Newborn Screening.Stuart G. Nicholls, Holly Etchegary, Laure Tessier, Charlene Simmonds, Beth K. Potter, Jamie C. Brehaut, Daryl Pullman, Robin Z. Hayeems, Sari Zelenietz, Monica Lamoureux, Jennifer Milburn, Lesley Turner, Pranesh Chakraborty & Brenda J. Wilson - 2019 - Public Health Ethics 12 (2):158-175.
    Newborn bloodspot screening programs are some of the longest running population screening programs internationally. Debate continues regarding the need for parents to give consent to having their child screened. Little attention has been paid to how meanings of consent-related terminology vary among stakeholders and the implications of this for practice. We undertook semi-structured interviews with parents, healthcare professionals and policy decision makers in two Canadian provinces. Conceptions of consent-related terms revolved around seven factors within two broad domains, decision-making and information (...)
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark  
  • Foundational Ethics of the Health Care System: The Moral and Practical Superiority of Free Market Reforms.R. M. Sade - 2008 - Journal of Medicine and Philosophy 33 (5):461-497.
    Proposed solutions to the problems of this country's health care system range along a spectrum from central planning to free market. Central planners and free market advocates provide various ethical justifications for the policies they propose. The crucial flaw in the philosophical rationale of central planning is failure to distinguish between normative and metanormative principles, which leads to mistaken understanding of the nature of rights. Natural rights, based on the principle of noninterference, provide the link between individual morality and social (...)
    Direct download (8 more)  
     
    Export citation  
     
    Bookmark   3 citations  
  • Currents in Contemporary Ethics.Heather Harrell - 2009 - Journal of Law, Medicine and Ethics 37 (4):846-851.
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark  
  • Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies.Josephine Johnston, John D. Lantos, Aaron Goldenberg, Flavia Chen, Erik Parens & Barbara A. Koenig - 2018 - Hastings Center Report 48 (S2):S2-S6.
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   2 citations