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  1. Introduction to the Article Collection ‘Translation in Healthcare: Ethical, Legal, and Social Implications’.Michael Morrison, Donna Dickenson & Sandra Soo-Jin Lee - 2016 - BMC Medical Ethics 17 (1):74.
    New technologies are transforming and reconfiguring the boundaries between patients, research participants and consumers, between research and clinical practice, and between public and private domains. From personalised medicine to big data and social media, these platforms facilitate new kinds of interactions, challenge longstanding understandings of privacy and consent, and raise fundamental questions about how the translational patient pathway should be organised.This editorial introduces the cross-journal article collection "Translation in healthcare: ethical, legal, and social implications", briefly outlining the genesis of the (...)
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  • Patient Data and Patient Rights: Swiss Healthcare Stakeholders’ Ethical Awareness Regarding Large Patient Data Sets – a Qualitative Study.Corine Mouton Dorey, Holger Baumann & Nikola Biller-Andorno - 2018 - BMC Medical Ethics 19 (1):20.
    There is a growing interest in aggregating more biomedical and patient data into large health data sets for research and public benefits. However, collecting and processing patient data raises new ethical issues regarding patient’s rights, social justice and trust in public institutions. The aim of this empirical study is to gain an in-depth understanding of the awareness of possible ethical risks and corresponding obligations among those who are involved in projects using patient data, i.e. healthcare professionals, regulators and policy makers. (...)
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  • Personalized Medicine in a New Genomic Era: Ethical and Legal Aspects.Maria Shoaib, Mansoor Ali Merchant Rameez, Syed Ather Hussain, Mohammed Madadin & Ritesh G. Menezes - 2017 - Science and Engineering Ethics 23 (4):1207-1212.
    The genome of two completely unrelated individuals is quite similar apart from minor variations called single nucleotide polymorphisms which contribute to the uniqueness of each and every person. These single nucleotide polymorphisms are of great interest clinically as they are useful in figuring out the susceptibility of certain individuals to particular diseases and for recognizing varied responses to pharmacological interventions. This gives rise to the idea of ‘personalized medicine’ as an exciting new therapeutic science in this genomic era. Personalized medicine (...)
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