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  1. Research Participants’ Perceptions and Views on Consent for Biobank Research: A Review of Empirical Data and Ethical Analysis.Flavio D'Abramo, Jan Schildmann & Jochen Vollmann - 2015 - BMC Medical Ethics 16 (1):60.
    Appropriate information and consent has been one of the most intensely discussed topics within the context of biobank research. In parallel to the normative debate, many socio-empirical studies have been conducted to gather experiences, preferences and views of patients, healthy research participants and further stakeholders. However, there is scarcity of literature which connects the normative debate about justifications for different consent models with findings gained in empirical research. In this paper we discuss findings of a limited review of socio-empirical research (...)
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  • Study of Laboratory Staff’ Knowledge of Biobanking in Côte D’Ivoire.Ambroise Kouamé Kintossou, Mathias Kouamé N’dri, Marcelle Money, Souleymane Cissé, Simini Doumbia, Man-Koumba Soumahoro, Amadou Founzégué Coulibaly, Joseph Allico Djaman & Mireille Dosso - 2020 - BMC Medical Ethics 21 (1):1-6.
    Background A biobank is a structure which collects and manages biological samples and their associated data. The collected samples will then be made available for various uses. The sharing of those samples raised ethical questions which have been answered through specific rules. Thus, a Biobank functioning under tight ethical rules would be immensely valuable from a scientific and an economic view point. In 2009, Côte d’Ivoire established a biobank, which has been chosen to house the regional biobank of Economic Community (...)
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  • Assessment of Knowledge About Biobanking Among Healthcare Students and Their Willingness to Donate Biospecimens.Leena Merdad, Lama Aldakhil, Rawan Gadi, Mourad Assidi, Salina Y. Saddick, Adel Abuzenadah, Jim Vaught, Abdelbaset Buhmeida & Mohammed H. Al-Qahtani - 2017 - BMC Medical Ethics 18 (1):32.
    Biobanks and biospecimen collections are becoming a primary means of delivering personalized diagnostics and tailoring individualized therapeutics. This shift towards precision medicine requires interactions among a variety of stakeholders, including the public, patients, healthcare providers, government, and donors. Very few studies have investigated the role of healthcare students in biobanking and biospecimen donations. The main aims of this study were to evaluate the knowledge of senior healthcare students about biobanks and to assess the students’ willingness to donate biospecimens and the (...)
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  • Qualitative Study on Custodianship of Human Biological Material and Data Stored in Biobanks.Michiel Verlinden, Herman Nys, Nadine Ectors & Isabelle Huys - 2016 - BMC Medical Ethics 17 (1):1-10.
    BackgroundBalancing the rights and obligations of custodians and applicants in relation to access to biobanks is of utmost importance to guarantee trust and confidence. This study aimed to reveal which issues divide different stakeholders in an attempt to determine the rights and/or obligations held on human biological materials and data.MethodsTwenty-eight informants in the Benelux and Scandinavia were interviewed in order to capture the perspectives of experts and stakeholders in relation to the rights and obligations held by custodians and applicants with (...)
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