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  1. Genetic Research Using Archival Tissue: Ethical, Social, and Legal Considerations in the United Arab Emirates.Saeeda Almarzooqi & Carol Campbell - 2018 - Asian Bioethics Review 10 (3):219-230.
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  • Introduction to the Article Collection ‘Translation in Healthcare: Ethical, Legal, and Social Implications’.Michael Morrison, Donna Dickenson & Sandra Soo-Jin Lee - 2016 - BMC Medical Ethics 17 (1):74.
    New technologies are transforming and reconfiguring the boundaries between patients, research participants and consumers, between research and clinical practice, and between public and private domains. From personalised medicine to big data and social media, these platforms facilitate new kinds of interactions, challenge longstanding understandings of privacy and consent, and raise fundamental questions about how the translational patient pathway should be organised.This editorial introduces the cross-journal article collection "Translation in healthcare: ethical, legal, and social implications", briefly outlining the genesis of the (...)
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  • Balancing the Local and the Universal in Maintaining Ethical Access to a Genomics Biobank.Catherine Heeney & Shona M. Kerr - 2017 - BMC Medical Ethics 18 (1):80.
    Issues of balancing data accessibility with ethical considerations and governance of a genomics research biobank, Generation Scotland, are explored within the evolving policy landscape of the past ten years. During this time data sharing and open data access have become increasingly important topics in biomedical research. Decisions around data access are influenced by local arrangements for governance and practices such as linkage to health records, and the global through policies for biobanking and the sharing of data with large-scale biomedical research (...)
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