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  1. Who Should Decide About Children’s and Adolescents’ Participation in Health Research? The Views of Children and Adults in Rural Kenya.Vicki Marsh, Nancy Mwangome, Irene Jao, Katharine Wright, Sassy Molyneux & Alun Davies - 2019 - BMC Medical Ethics 20 (1):41.
    International research guidance has shifted towards an increasingly proactive inclusion of children and adolescents in health research in recognition of the need for more evidence-based treatment. Strong calls have been made for the active involvement of children and adolescents in developing research proposals and policies, including in decision-making about research participation. Much evidence and debate on this topic has focused on high-income settings, while the greatest health burdens and research gaps occur in low-middle income countries, highlighting the need to take (...)
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  • Child's Assent in Research: Age Threshold or Personalisation?Marcin Waligora, Vilius Dranseika & Jan Piasecki - 2014 - BMC Medical Ethics 15 (1):44.
    Assent is an important ethical and legal requirement of paediatric research. Unfortunately, there are significant differences between the guidelines on the details of assent.
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  • How Should Assent to Research Be Sought in Low Income Settings? Perspectives From Parents and Children in Southern Malawi.Helen Mangochi, Kate Gooding, Aisleen Bennett, Michael Parker, Nicola Desmond & Susan Bull - 2019 - BMC Medical Ethics 20 (1):32.
    Paediatric research in low-income countries is essential to tackle high childhood mortality. As with all research, consent is an essential part of ethical practice for paediatric studies. Ethics guidelines recommend that parents or another proxy provide legal consent for children to participate, but that children should be involved in the decision through providing assent. However, there remain uncertainties about how to judge when children are ready to give assent and about appropriate assent processes. Malawi does not yet have detailed guidelines (...)
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  • Child’s Objection to Non-Beneficial Research: Capacity and Distress Based Models.Marcin Waligora, Joanna Różyńska & Jan Piasecki - 2016 - Medicine, Health Care and Philosophy 19 (1):65-70.