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  1. Balancing the Local and the Universal in Maintaining Ethical Access to a Genomics Biobank.Catherine Heeney & Shona M. Kerr - 2017 - BMC Medical Ethics 18 (1):80.
    Issues of balancing data accessibility with ethical considerations and governance of a genomics research biobank, Generation Scotland, are explored within the evolving policy landscape of the past ten years. During this time data sharing and open data access have become increasingly important topics in biomedical research. Decisions around data access are influenced by local arrangements for governance and practices such as linkage to health records, and the global through policies for biobanking and the sharing of data with large-scale biomedical research (...)
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  • A Systematic Review of Empirical Bioethics Methodologies.Rachel Davies, Jonathan Ives & Michael Dunn - 2015 - BMC Medical Ethics 16 (1):15.
    Despite the increased prevalence of bioethics research that seeks to use empirical data to answer normative research questions, there is no consensus as to what an appropriate methodology for this would be. This review aims to search the literature, present and critically discuss published Empirical Bioethics methodologies.
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  • Cameras on Beds: The Ethics of Surveillance in Nursing Home Rooms.Clara Berridge, Jodi Halpern & Karen Levy - forthcoming - Ajob Empirical Bioethics:1-8.
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  • Precarity, Clinical Labour and Graduation From Ebola Clinical Research in West Africa.Arsenii Alenichev & Vinh-Kim Nguyen - 2019 - Global Bioethics 30 (1):1-18.
    ABSTRACTThe provision of gifts and payments for healthy volunteer subjects remains an important topic in global health research ethics. This paper provides empirical insights into theoretical debates by documenting participants' perspectives on an Ebola vaccine trial in West Africa. This trial provided hundreds of Africans with regular payments, food packages and certificates for participation. The researchers conducting the trials considered these socioeconomic provisions to be gifts in accordance with contemporary ethical standards and principles. Trial participants viewed them differently, however, approaching (...)
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  • The Normative Background of Empirical-Ethical Research: First Steps Towards a Transparent and Reasoned Approach in the Selection of an Ethical Theory.Sabine Salloch, Sebastian Wäscher, Jochen Vollmann & Jan Schildmann - 2015 - BMC Medical Ethics 16 (1):20.
    Empirical-ethical research constitutes a relatively new field which integrates socio-empirical research and normative analysis. As direct inferences from descriptive data to normative conclusions are problematic, an ethical framework is needed to determine the relevance of the empirical data for normative argument. While issues of normative-empirical collaboration and questions of empirical methodology have been widely discussed in the literature, the normative methodology of empirical-ethical research has seldom been addressed. Based on our own research experience, we discuss one aspect of this normative (...)
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  • Responsible Research and Innovation: A Manifesto for Empirical Ethics?J. Gardner & C. Williams - 2015 - Clinical Ethics 10 (1-2):5-12.
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  • Research Across the Disciplines: A Road Map for Quality Criteria in Empirical Ethics Research.Marcel Mertz, Julia Inthorn, Günter Renz, Lillian G. Rothenberger, Sabine Salloch, Jan Schildmann, Sabine Wöhlke & Silke Schicktanz - 2014 - BMC Medical Ethics 15 (1):17.
    Research in the field of Empirical Ethics (EE) uses a broad variety of empirical methodologies, such as surveys, interviews and observation, developed in disciplines such as sociology, anthropology, and psychology. Whereas these empirical disciplines see themselves as purely descriptive, EE also aims at normative reflection. Currently there is literature about the quality of empirical research in ethics, but little or no reflection on specific methodological aspects that must be considered when conducting interdisciplinary empirical ethics. Furthermore, poor methodology in an EE (...)
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  • Engaging Diverse Social and Cultural Worlds: Perspectives on Benefits in International Clinical Research From South African Communities.Olga Zvonareva, Nora Engel, Eleanor Ross, Ron Berghmans, Ames Dhai & Anja Krumeich - 2015 - Developing World Bioethics 15 (1):8-17.
    The issue of benefits in international clinical research is highly controversial. Against the background of wide recognition of the need to share benefits of research, the nature of benefits remains strongly contested. Little is known about the perspectives of research populations on this issue and the extent to which research ethics discourses and guidelines are salient to the expectations and aspirations existing on the ground. This exploratory study contributes to filling this void by examining perspectives of people in low-income South (...)
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  • Was Ist Ein Ethisches Problem Und Wie Finde Ich Es? Theoretische, Methodologische Und Forschungspraktische Fragen der Identifikation Ethischer Probleme Am Beispiel Einer Empirisch-Ethischen InterventionsstudieWhat is an Ethical Problem and How Do I Find It? Theoretical, Methodological and Practical Questions to Identify Ethical Problems in an Empirical–Ethical Intervention Study.Sabine Salloch, Peter Ritter, Sebastian Wäscher, Jochen Vollmann & Jan Schildmann - 2016 - Ethik in der Medizin 28 (4):267-281.
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  • On the Nature and Sociology of Bioethics.Mark Sheehan & Michael Dunn - 2013 - Health Care Analysis 21 (1):54-69.
    Much has been written in the last decade about how we should understand the value of the sociology of bioethics. Increasingly the value of the sociology of bioethics is interpreted by its advocates directly in terms of its relationship to bioethics. It is claimed that the sociology of bioethics (and related disciplinary approaches) should be seen as an important component of work in bioethics. In this paper we wish to examine whether, and how, the sociology of bioethics can be defended (...)
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  • What Ethical Resources Are Available to Alcohol and Other Drug Practitioners? A Systematic Review.David Silkoff, Marilys Guillemin, Richard Chenhall & Rosalind McDougall - 2017 - Clinical Ethics 13 (1):34-52.
    Clinical work in Alcohol and Other Drugs has not generally been an area of focus for ethicists. Likewise, ethics is not usually part of Alcohol and Other Drugs training or practice. This means that resources available to Alcohol and Other Drugs clinicians navigating ethical challenges are not widely available. This paper describes a systematic review of literature at the intersection of ethics and clinical practice in Alcohol and Other Drugs. The review will potentially benefit Alcohol and Other Drug practitioners by (...)
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  • Evidence, Emotion and Eminence: A Qualitative and Evaluative Analysis of Doctors’ Skills in Macroallocation.Siun Gallagher, Miles Little & Claire Hooker - forthcoming - Health Care Analysis:1-17.
    In this analysis of the ethical dimensions of doctors’ participation in macroallocation we set out to understand the skills they use, how they are acquired, and how they influence performance of the role. Using the principles of grounded moral analysis, we conducted a semi-structured interview study with Australian doctors engaged in macroallocation. We found that they performed expertise as argument, bringing together phronetic and rhetorical skills founded on communication, strategic thinking, finance, and health data. They had made significant, purposeful efforts (...)
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  • The Values and Ethical Commitments of Doctors Engaging in Macroallocation: A Qualitative and Evaluative Analysis.Siun Gallagher, Miles Little & Claire Hooker - 2018 - BMC Medical Ethics 19 (1):75.
    In most socialised health systems there are formal processes that manage resource scarcity and determine the allocation of funds to health services in accordance with their priority. In this analysis, part of a larger qualitative study examining the ethical issues entailed in doctors’ participation as technical experts in priority setting, we describe the values and ethical commitments of doctors who engage in priority setting and make an empirically derived contribution towards the identification of an ethical framework for doctors’ macroallocation work. (...)
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  • The Use of Empirical Research in Bioethics: A Survey of Researchers in Twelve European Countries.Tenzin Wangmo & Veerle Provoost - 2017 - BMC Medical Ethics 18 (1):79.
    The use of empirical research methods in bioethics has been increasing in the last decades. It has resulted in discussions about the ‘empirical turn of bioethics’ and raised questions related to the value of empirical work for this field, methodological questions about its quality and rigor, and how this integration of the normative and the empirical can be achieved. The aim of this paper is to describe the attitudes of bioethics researchers in this field towards the use of empirical research, (...)
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  • Consulting Communities on Feedback of Genetic Findings in International Health Research: Sharing Sickle Cell Disease and Carrier Information in Coastal Kenya. [REVIEW]Vicki Marsh, Francis Kombe, Raymond Fitzpatrick, Thomas N. Williams, Michael Parker & Sassy Molyneux - 2013 - BMC Medical Ethics 14 (1):41.
    International health research in malaria-endemic settings may include screening for sickle cell disease, given the relationship between this important genetic condition and resistance to malaria, generating questions about whether and how findings should be disclosed. The literature on disclosing genetic findings in the context of research highlights the role of community consultation in understanding and balancing ethically important issues from participants’ perspectives, including social forms of benefit and harm, and the influence of access to care. To inform research practice locally, (...)
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  • Making the Evidence Count.M. Dunn - 2015 - Journal of Medical Ethics 41 (2):141-142.
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  • The Role of Emotion in Ethics and Bioethics: Dealing with Repugnance and Disgust.Mark Sheehan - 2016 - Journal of Medical Ethics 42 (1):1-2.
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  • Beyond Integrating Social Sciences: Reflecting on the Place of Life Sciences in Empirical Bioethics Methodologies.Marcel Mertz & Jan Schildmann - 2018 - Medicine, Health Care and Philosophy 21 (2):207-214.
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  • Developing Clinical Research Relationship: Views From Within.Olga Zvonareva & Lloyd Akrong - 2015 - Developing World Bioethics 15 (3):257-266.
    The nature of the relationship between clinical investigator and research participant continues to be contested. The related discussions have largely focused on the doctor-researcher dichotomy thought to permeate the work of a clinical investigator with research participants, whom in turn occupy two corresponding roles: patient and subject. This paper contributes to current debates on the topic by providing a voice to research participants, whose perspectives have been largely invisible. It draws on 42 in-depth interviews conducted in Ghana and South Africa (...)
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