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  1. Evidence of Broad-Based Family Support for the Use of Archival Childhood Tumour Samples in Future Research.Alexandra Sexton-Oates, Andrew Dodgshun, Duncan MacGregor, Louise E. Ludlow, Michael Sullivan & Richard Saffery - 2016 - Journal of Medical Ethics 42 (7):460-465.
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  • Ethical Issues Related to Computerised Family Medical Histories in Sickle Cell Disease: Inforare.S. Franrenet, N. Duchange, F. Galacteros, C. Quantin, O. Cohen, R. Nzouakou, S. Sudraud, C. Herve & G. Moutel - 2010 - Journal of Medical Ethics 36 (10):604-607.
    The Inforare project aims to set up a system for the sharing of clinical and familial data, in order to study how genes are related to the severity of sickle cell disease. While the computerisation of clinical records represents a valuable research goal, an ethical framework is necessary to guarantee patients' protection and their rights in this developing field. Issues relating to patient information during the Inforare study were analysed by the steering committee. Several major concerns were discussed by the (...)
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  • Qualitative Study of Participants' Perceptions and Preferences Regarding Research Dissemination.Rachel S. Purvis, Traci H. Abraham, Christopher R. Long, M. Kathryn Stewart, T. Scott Warmack & Pearl Anna McElfish - 2017 - Ajob Empirical Bioethics 8 (2):69-74.
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  • Disclosing Results to Genomic Research Participants: Differences That Matter.Alessandro Blasimme, Alexandra Soulier, Sophie Julia, Samantha Leonard & Anne Cambon-Thomsen - 2012 - American Journal of Bioethics 12 (10):20-22.
    The American Journal of Bioethics, Volume 12, Issue 10, Page 20-22, October 2012.
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  • Clinically Significant? Depends on Whom You Ask.Liza-Marie Johnson, Christopher L. Church, Michael F. Walsh & Justin N. Baker - 2012 - American Journal of Bioethics 12 (10):18-20.
    The American Journal of Bioethics, Volume 12, Issue 10, Page 18-20, October 2012.
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  • Health Research Participants' Preferences for Receiving Research Results.C. R. Long, M. K. Stewart, T. V. Cunningham, T. S. Warmack & P. A. McElfish - 2016 - Clinical Trials 13:1-10.
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  • Utilizing Focus Groups with Potential Participants and Their Parents: An Approach to Inform Study Design in a Large Clinical Trial.Sandeep Kadimpati, Jennifer B. McCormick, Yichen Chiu, Ashley B. Parker, Aliya Z. Iftikhar, Randall P. Flick & David O. Warner - 2014 - Ajob Empirical Bioethics 5 (3):31-38.
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  • Recruiting Children for Clinical Trials: Lessons From Pediatric Oncology.Liza-Marie Johnson & Yoram Unguru - 2015 - American Journal of Bioethics 15 (11):24-26.
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