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Enacting illness stories: When, what, and why

In Hilde Lindemann (ed.), Stories and Their Limits: Narrative Approaches to Bioethics. Routledge. pp. 31--49 (1997)

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  1. Recombinant Identities: Biometrics and Narrative Bioethics. [REVIEW]Btihaj Ajana - 2010 - Journal of Bioethical Inquiry 7 (2):237-258.
    In recent years, there has been a growing interest in finding stronger means of securitising identity against the various risks presented by the mobile globalised world. Biometric technology has featured quite prominently on the policy and security agenda of many countries. It is being promoted as the solution du jour for protecting and managing the uniqueness of identity in order to combat identity theft and fraud, crime and terrorism, illegal work and employment, and to efficiently govern various domains and services (...)
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  • Relational Narratives, Suffering, and Counselling Psychology.S. Kinyany-Schlachter - 2017 - Dissertation, City, University of London
    A diagnosis of glioblastoma multiforme, a World Health Organisation grade IV brain tumour, is devastating for patients and their families who bear the impetus of caregiving. GBM caregivers act as de facto health professionals when their loved ones are discharged prematurely from hospitals. Faced with complex healthcare needs, GBM caregivers report the highest psychological burden, and highest unmet needs of all cancer caregivers. Despite this, they rarely accessed rehabilitation services. Researchers hardly engaged with their stories. The current research on GBM (...)
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  • Narrative Constructions of Health Care Issues and Policies: The Case of President Clinton’s Apology-by-Proxy for the Tuskegee Syphilis Experiment. [REVIEW]Heather J. Carmack, Benjamin R. Bates & Lynn M. Harter - 2008 - Journal of Medical Humanities 29 (2):89-109.
    The Tuskegee Syphilis Experiment (TSE) has shaped African Americans’ views of the American health care system, contributing to a reluctance to participate in biomedical research and a suspicion of the medical system. This essay examines public discourses surrounding President Clinton’s attempt to restore African Americans’ trust by apologizing for the TSE. Through a narrative reading, we illustrate the failure of this text as an attempt to reconcile the United States Public Health Service and the African American public. We conclude by (...)
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