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  1. Reconsidering Genetic Antidiscrimination Legislation.Jon Beckwith & Joseph S. Alper - 1998 - Journal of Law, Medicine and Ethics 26 (3):205-210.
    Until approximately twenty years ago, advances in the study of human genetics had little influence on the practice of medicine. In the 1980s, this changed dramatically with the mapping of the altered genes that cause cystic fibrosis and Huntington disease. In just a few years, these discoveries led to DNA-based tests that enabled clinicians to determine whether prospective parents were carriers of CF or whether an individual carried the Huntington gene and, as a result, would almost certainly develop the disease.Observers (...)
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  • Reconsidering Genetic Antidiscrimination Legislation.Jon Beckwith & Joseph S. Alper - 1998 - Journal of Law, Medicine and Ethics 26 (3):205-210.
    Until approximately twenty years ago, advances in the study of human genetics had little influence on the practice of medicine. In the 1980s, this changed dramatically with the mapping of the altered genes that cause cystic fibrosis and Huntington disease. In just a few years, these discoveries led to DNA-based tests that enabled clinicians to determine whether prospective parents were carriers of CF or whether an individual carried the Huntington gene and, as a result, would almost certainly develop the disease.Observers (...)
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  • Genetic Discrimination in the Workplace.Paul Steven Miller - 1998 - Journal of Law, Medicine and Ethics 26 (3):189-197.
    The surge in genetic research and technology, fuelled in large part by the Human Genome Project, has resulted in the continuing expansion of the range of genetic tests and other genetic information available to physicians, insurance companies, employers, and the general public.’ Genetic tests can provide presymptomatic medical information about an individual, including information about an individual's increased risk of future disease, disability, or early death. These tests can reveal information about an individual's carrier status, that is, the likelihood of (...)
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  • Genetic Discrimination in the Workplace.Paul Steven Miller - 1998 - Journal of Law, Medicine and Ethics 26 (3):189-197.
    The surge in genetic research and technology, fuelled in large part by the Human Genome Project, has resulted in the continuing expansion of the range of genetic tests and other genetic information available to physicians, insurance companies, employers, and the general public.’ Genetic tests can provide presymptomatic medical information about an individual, including information about an individual's increased risk of future disease, disability, or early death. These tests can reveal information about an individual's carrier status, that is, the likelihood of (...)
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  • Heterozygote Carrier Testing in High Schools Abroad: What Are the Lessons for the U.S.?Lainie Friedman Ross - 2006 - Journal of Law, Medicine and Ethics 34 (4):753-764.
    To promote informed reproductive decisions, prenatal carrier testing is offered to women and couples to provide information about the risk of having a child with one or more genetic conditions. Tay Sachs Disease was one of the first conditions for which prenatal carrier testing was developed. Today, many additional conditions can be tested for, depending on prospective parental interest, family history, or ethnicity. Interestingly, most individuals and couples do not request prenatal carrier information prior to conception, and carrier testing early (...)
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  • Heterozygote Carrier Testing in High Schools Abroad: What Are the Lessons for the U.S.?Lainie Friedman Ross - 2006 - Journal of Law, Medicine and Ethics 34 (4):753-764.
    The main value of carrier detection in the general population is to determine reproductive risks. In this manuscript I examine the practice of providing carrier screening programs in the school setting. While the data show that high school screening programs can achieve high uptake, I argue that this may reflect a lack of full understanding about risks, benefits, and alternatives, and the right not to know. It may also reflect the inherent coercion in group testing, particularly for adolescents who are (...)
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  • The Social Responsibilities of Biological Scientists.Stanley Joel Reiser & Ruth E. Bulger - 1997 - Science and Engineering Ethics 3 (2):137-143.
    Biological scientists, like scientists in other disciplines, are uncertain about whether or how to use their knowledge and time to provide society with insight and guidance in handling the effects of inventions and discoveries. This article addresses this issue. It presents a typography of structures in which scientists may contribute to social understanding and decisions. It describes the different ways in which these contributions can be made. Finally it develops the ethical arguments that justify the view that biological scientists have (...)
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  • The Use of Genetic Testing Information in the Insurance Industry: An Ethical and Societal Analysis of Public Policy Options.Paul Thistle, Gene Laczniak & Alexander Nill - 2019 - Journal of Business Ethics 156 (1):105-121.
    Informed by a search of the literature about the usage of genetic testing information by insurance companies, this paper presents a practical ethical analysis of several distinct public policy options that might be used to govern or constrain GTI usage by insurance providers. As medical research advances and the extension to the Human Genome Project moves to its fullness over the next decade, such research efforts will allow the full synthesis of human DNA to be connected to predictive health dispositions. (...)
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  • Distinguishing Genetic From Nongenetic Medical Tests: Some Implications for Antidiscrimination Legislation.Joseph S. Alper & Jon Beckwith - 1998 - Science and Engineering Ethics 4 (2):141-150.
    Genetic discrimination is becoming an increasingly important problem in the United States. Information acquired from genetic tests has been used by insurance companies to reject applications for insurance policies and to refuse payment for the treatment of illnesses. Numerous states and the United States Congress have passed or are considering passage of laws that would forbid such use of genetic information by health insurance companies. Here we argue that much of this legislation is severely flawed because of the difficulty in (...)
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  • Exploring the Concept of Genetic Discrimination.Margaret Otlowski - 2005 - Journal of Bioethical Inquiry 2 (3):165-176.
    The issue of genetic discrimination has attracted growing attention and has been the focus of a recent major Australian inquiry. It is, however, a complex and loaded notion, open to interpretation. This paper explores the concept of genetic discrimination in both its theoretical and practical dimensions. It examines its conceptual underpinnings, how it is understood, and how this understanding fits within the legal framework of disability discrimination. The paper also examines the phenomenon in practice, including the ‘fear factor’ and the (...)
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  • The Symbolic Relevance of Feedback: Return and Disclosure of Genomic Research Results of Breast Cancer Patients in Belgium, Germany and the UK.Imme Petersen Regine Kollek - 2015 - Journal of Clinical Research and Bioethics 6 (4).
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  • Should Children and Adolescents Be Tested for Huntington’s Disease? Attitudes of Future Lawyer.Bernice S. Elger & Timothy W. Harding - 2006 - Bioethics 20 (3):158-167.
  • Genetic Discrimination in Health Insurance: Current Legal Protections and Industry Practices.Karen Pollitz, Beth N. Peshkin, Eliza Bangit & Kevin Lucia - 2007 - Inquiry: The Journal of Health Care Organization, Provision, and Financing 44 (3):350-368.
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