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  1. Evaluating models of consent in changing health research environments.Svenja Wiertz & Joachim Boldt - 2022 - Medicine, Health Care and Philosophy 25 (2):269-280.
    While Specific Informed Consent has been the established standard for obtaining consent for medical research for many years, it does not appear suitable for large-scale biobank and health data research. Thus, alternative forms of consent have been suggested, based on a variety of ethical background assumptions. This article identifies five main ethical perspectives at stake. Even though Tiered Consent, Dynamic Consent and Meta Consent are designed to the demands of the self-determination perspective as well as the perspective of research as (...)
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  • Digital participatory democracy: A normative framework for the democratic governance of the digital commons.Alec Stubbs - 2022 - Journal of Social Philosophy 54 (3):385-403.
    This paper serves a dual function: (1) it is intended to proffer a stable understanding of our digital engagement on the Internet as a form of labor that is co-opted by digital firms for private profit; (2) it extends the concept of participatory democracy to our digital world, arguing that our collective or common production of value for digital firms (in the form of what I call“knowledge goods”) requires the implementation of participatory democratic governance mechanisms over these digital firms and (...)
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  • Against “Democratizing AI”.Johannes Himmelreich - 2023 - AI and Society 38 (4):1333-1346.
    This paper argues against the call to democratize artificial intelligence (AI). Several authors demand to reap purported benefits that rest in direct and broad participation: In the governance of AI, more people should be more involved in more decisions about AI—from development and design to deployment. This paper opposes this call. The paper presents five objections against broadening and deepening public participation in the governance of AI. The paper begins by reviewing the literature and carving out a set of claims (...)
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  • On the ethics of algorithmic decision-making in healthcare.Thomas Grote & Philipp Berens - 2020 - Journal of Medical Ethics 46 (3):205-211.
    In recent years, a plethora of high-profile scientific publications has been reporting about machine learning algorithms outperforming clinicians in medical diagnosis or treatment recommendations. This has spiked interest in deploying relevant algorithms with the aim of enhancing decision-making in healthcare. In this paper, we argue that instead of straightforwardly enhancing the decision-making capabilities of clinicians and healthcare institutions, deploying machines learning algorithms entails trade-offs at the epistemic and the normative level. Whereas involving machine learning might improve the accuracy of medical (...)
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  • Protecting Democracy by Extending It: Democratic Management Reconsidered.Carol C. Gould - 2019 - Journal of Social Philosophy 50 (4):513-535.
    Journal of Social Philosophy, EarlyView.
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  • Negotiating the reuse of health-data: Research, Big Data, and the European General Data Protection Regulation.Ulrike Felt & Johannes Starkbaum - 2019 - Big Data and Society 6 (2).
    Before the EU General Data Protection Regulation entered into force in May 2018, we witnessed an intense struggle of actors associated with data-dependent fields of science, in particular health-related academia and biobanks striving for legal derogations for data reuse in research. These actors engaged in a similar line of argument and formed issue alliances to pool their collective power. Using descriptive coding followed by an interpretive analysis, this article investigates the argumentative repertoire of these actors and embeds the analysis in (...)
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