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  1. Inducing HIV Remission in Neonates: Child Rights and Research Ethics.Katherine Wade & Armand H. Matheny Antommaria - 2015 - Perspectives in Biology and Medicine 58 (3):348-354.
    International child rights law has the potential to change the way children are viewed and engaged by all social actors. It provides a child-centered perspective on all areas of children’s lives, including research with neonates. It differs from some bioethical perspectives by clearly articulating affirmative obligations owed to children and requiring rigorous monitoring mechanisms. The CRC’s focus on affirmative obligations and establishment of monitoring mechanisms provide additional useful elements that are not present in the dominant form of American pediatric bioethics.An (...)
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  • What’s Human Rights Got to Do with It? On the Proposed Changes to SSHRC Ethics Research Policy.Sonja Grover - 2004 - Journal of Academic Ethics 2 (3):249-262.
    Whats human rights got to do with it? That is, whats human rights got to do with the June 2004 report of the Social Sciences and Humanities Research Ethics Special Working Committee to the Inter-Agency Advisory Panel on Research Ethics. The disturbing answer is not enough. Certain key recommendations of the working committee, it is suggested, would unacceptably weaken the researchers legal and moral accountability to research participants. Those particular recommendations rely on misguided references to academic freedom and the nature (...)
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  • Ethical Issues in School-Based Research.Heike Felzmann - 2009 - Research Ethics 5 (3):104-109.
    This paper provides an introduction to ethical issues arising in children's research that takes place in school-settings. It addresses three main areas of ethical concern: the informed consent process, confidentiality, and harm and benefit. Informed consent in school settings is characterized by the involvement of multiple stakeholders, including not just researchers, parents and individual children but also school principals, teachers and the children's peer group. The added complexity of the setting has implications for the management of the informed consent process, (...)
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  • Involving children in non-therapeutic research: on the development argument. [REVIEW]Linus Broström & Mats Johansson - 2014 - Medicine, Health Care and Philosophy 17 (1):53-60.
    Non-therapeutic research on children raises ethical concerns. Such research is not only conducted on individuals who are incapable of providing informed consent. It also typically involves some degree of risk or discomfort, without prospects of medically benefiting the participating children. Therefore, these children seem to be instrumentalized. Some ethicists, however, have tried to sidestep this problem by arguing that the children may indirectly benefit from participating in such research, in ways not related to the medical intervention as such. It has (...)
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  • Caregivers’ Understanding of Informed Consent in a Randomized Control Trial.Dorothy Helen Boyd, Yinan Zhang, Lee Smith, Lee Adam, L. Foster Page & W. M. Thomson - 2021 - Journal of Bioethical Inquiry 18 (1):141-150.
    There are differences in caregivers’ literacy and health literacy levels that may affect their ability to consent to children participating in clinical research trials. This study aimed to explore the effectiveness, and caregivers’ understandings, of the process of informed consent that accompanied their child’s participation in a dental randomized control trial (RCT). Telephone interviews were conducted with a convenience sample of ten caregivers who each had a child participating in the RCT. Pre-tested closed and open-ended questions were used, and the (...)
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