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  1. The Moral Distress of Patients and Families.Connie M. Ulrich - 2020 - American Journal of Bioethics 20 (6):68-70.
    Volume 20, Issue 6, June 2020, Page 68-70.
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  • The value of nurse bioethicists.Connie M. Ulrich & Christine Grady - 2023 - Nursing Ethics 30 (5):701-709.
    Background The field of nursing has long been concerned with ethical issues. The history of the nursing profession has a rich legacy of attention to social justice and to societal questions regarding issues of fairness, access, equity, and equality. Some nurses have found that their clinical experiences spur an interest in ethical patient care, and many are now nurse bioethicists, having pursued additional training in bioethics and related fields (e.g., psychology, sociology). Purpose The authors describe how the clinical and research (...)
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  • Structural Equation Modeling Analysis on Associations of Moral Distress and Dimensions of Organizational Culture in Healthcare: A Cross-Sectional Study of Healthcare Professionals.Tessy A. Thomas, Shelley Kumar, F. Daniel Davis, Peter Boedeker & Satid Thammasitboon - forthcoming - AJOB Empirical Bioethics.
    Moral distress is a complex phenomenon experienced by individuals across multiple healthcare professions, teams, organizations, and educational settings. It arises when any healthcare professional...
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  • Moral distress in long-term care questionnaire modification and psychometric evaluation.Amil Kusain Tan, William Ellery Samuels, Ramona Backhaus & Elizabeth Capezuti - 2023 - Nursing Ethics 30 (6):789-802.
    Background Licensed nurses working in long-term care facilities experience ethical challenges if not resolved can lead to moral distress. There is a lack of an English-language validated tool to adequately measure moral distress in the long-term care setting. Aims To describe the modification and psychometric evaluation of the Moral Distress Questionnaire. Methods Instrument development and psychometric evaluation. Internal consistency using Cronbach’s α to establish reliability was conducted using SPSS version 27.0 while SPSS Amos version 27.0 was used to perform a (...)
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  • Nurses’ Participation in Limited Resuscitation: Gray Areas in End of Life Decision-Making.Felicia Stokes & Rick Zoucha - 2021 - AJOB Empirical Bioethics 12 (4):239-252.
    Historically nurses have lacked significant input in end-of-life decision-making, despite being an integral part of care. Nurses experience negative feelings and moral conflict when forced to aggressively deliver care to patients at the EOL. As a result, nurses participate in slow codes, described as a limited resuscitation effort with no intended benefit of patient survival. The purpose of this study was to explore and understand the process nurses followed when making decisions about participation in limited resuscitation. Five core categories emerged (...)
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  • Moral distress in nurses caring for patients with Covid-19.Henry J. Silverman, Raya Elfadel Kheirbek, Gyasi Moscou-Jackson & Jenni Day - 2021 - Nursing Ethics 28 (7-8):1137-1164.
    Background:Moral distress occurs when constraints prevent healthcare providers from acting in accordance with their core moral values to provide good patient care. The experience of moral distress in nurses might be magnified during the current Covid-19 pandemic.Objective:To explore causes of moral distress in nurses caring for Covid-19 patients and identify strategies to enhance their moral resiliency.Research design:A qualitative study using a qualitative content analysis of focus group discussions and in-depth interviews. We purposively sampled 31 nurses caring for Covid-19 patients in (...)
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  • Team members perspectives on conflicts in clinical ethics committees.Anika Scherer, Bernd Alt-Epping, Friedemann Nauck & Gabriella Marx - 2019 - Nursing Ethics 26 (7-8):2098-2112.
    Background:Clinical ethics committees have been broadly implemented in university hospitals, general hospitals and nursing homes. To ensure the quality of ethics consultations, evaluation should be...
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  • Everyday ethical challenges of nurse-physician collaboration.Motshedisi Sabone, Pelonomi Mazonde, Francesca Cainelli, Maseba Maitshoko, Renatha Joseph, Judith Shayo, Baraka Morris, Marjorie Muecke, Barbra Mann Wall, Linda Hoke, Lilian Peng, Kim Mooney-Doyle & Connie M. Ulrich - 2020 - Nursing Ethics 27 (1):206-220.
    Background:Collaboration between physicians and nurses is key to improving patient care. We know very little about collaboration and interdisciplinary practice in African healthcare settings.Research question/aim:The purpose of this study was to explore the ethical challenges of interdisciplinary collaboration in clinical practice and education in Botswana Participants and research context: This qualitative descriptive study was conducted with 39 participants (20 physicians and 19 nurses) who participated in semi-structured interviews at public hospitals purposely selected to represent the three levels of hospitals in (...)
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  • Moral distress among nurses: A mixed-methods study.Chuleeporn Prompahakul, Jessica Keim-Malpass, Virginia LeBaron, Guofen Yan & Elizabeth G. Epstein - 2021 - Nursing Ethics 28 (7-8):1165-1182.
    Background:Moral distress is recognized as a problem affecting healthcare professionals globally. Unaddressed moral distress may lead to withdrawal from the moral dimensions of patient care, burnout, or leaving the profession. Despite the importance, studies related to moral distress are scant in Thailand.Objective:This study aims to describe the experience of moral distress and related factors among Thai nurses.Design:A convergent parallel mixed-methods design was used. The quantitative and qualitative data were collected in parallel using the Measure of Moral Distress for Healthcare Professionals (...)
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  • Moral distress experienced by non-Western nurses: An integrative review.Chuleeporn Prompahakul & Elizabeth G. Epstein - 2020 - Nursing Ethics 27 (3):778-795.
    Background: Moral distress has been identified as a significant issue in nursing practice for many decades. However, most studies have involved American nurses or Western medicine settings. Cultural differences between Western and non-Western countries might influence the experience of moral distress. Therefore, the literature regarding moral distress experiences among non-Western nurses is in need of review. Aim: The aim of this integrative review was to identify, describe, and synthesize previous primary studies on moral distress experienced by non-Western nurses. Review method: (...)
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  • Sub-categories of moral distress among nurses: A descriptive longitudinal study.Georgina Morley, James F. Bena, Shannon L. Morrison & Nancy M. Albert - 2023 - Nursing Ethics 30 (6):885-903.
    Background There is ongoing debate regarding how moral distress should be defined. Some scholars argue that the standard “narrow” definition overlooks morally relevant causes of distress, while others argue that broadening the definition of moral distress risks making measurement impractical. However, without measurement, the true extent of moral distress remains unknown. Research aims To explore the frequency and intensity of five sub-categorizations of moral distress, resources used, intention to leave, and turnover of nurses using a new survey instrument. Research design (...)
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  • “Please, Don’t Make Me Do This”: The Role of the Ethics Consultant in Responding to and Mitigating Moral Distress.Georgina Morley & Steven Bocchese - 2024 - American Journal of Bioethics 24 (1):134-137.
    In response to the case study of Mr. Rivers, we will speak to three critical elements for an ethics consultant to address when a consult is requested due to moral distress. First, discern if the re...
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  • Nurturing moral community: A novel moral distress peer support navigator tool.Georgina Morley & Lauren R. Sankary - forthcoming - Nursing Ethics.
    Moral distress is a pervasive phenomenon in healthcare for which there is no straightforward “solution.” Rhetoric surrounding moral distress has shifted over time, with some scholars arguing that moral distress needs to be remedied, resolved, and eradicated, while others recognize that moral distress can have some positive value. The authors of this paper recognize that moral distress has value in its function as a warning sign, signaling the presence of an ethical issue related to patient care that requires deeper exploration, (...)
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  • Mitigating Moral Distress through Ethics Consultation.Georgina Morley, Lauren R. Sankary & Cristie Cole Horsburgh - 2022 - American Journal of Bioethics 22 (4):61-63.
    While the phenomenon of ‘moral distress’ has been of interest to the nursing community since Jameton first described it in 1984, moral distress is now understood to effect healthcare professionals...
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  • Parent moral distress in serious pediatric illness: A dimensional analysis.Kim Mooney-Doyle & Connie M. Ulrich - 2020 - Nursing Ethics 27 (3):821-837.
    Background: Moral distress is an important and well-studied phenomenon among nurses and other healthcare providers, yet the conceptualization of parental moral distress remains unclear. Objective: The objective of this dimensional analysis was to describe the nature of family moral distress in serious pediatric illness. Design and methods: A dimensional analysis of articles retrieved from a librarian-assisted systematic review of Scopus, CINAHL, and PsychInfo was conducted, focusing on how children, parents, other family members, and healthcare providers describe parental moral distress, both (...)
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  • The ethical implications of verbal autopsy: responding to emotional and moral distress.Sassy Molyneux, Marylene Wamukoya, Amek Nyaguara, Vicki Marsh & Alex Hinga - 2021 - BMC Medical Ethics 22 (1):1-16.
    BackgroundVerbal autopsy is a pragmatic approach for generating cause-of-death data in contexts without well-functioning civil registration and vital statistics systems. It has primarily been conducted in health and demographic surveillance systems (HDSS) in Africa and Asia. Although significant resources have been invested to develop the technical aspects of verbal autopsy, ethical issues have received little attention. We explored the benefits and burdens of verbal autopsy in HDSS settings and identified potential strategies to respond to the ethical issues identified.MethodsThis research was (...)
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  • Moral distress among nurse leaders: A qualitative systematic review.Preston H. Miller, Elizabeth G. Epstein, Todd B. Smith, Teresa D. Welch, Miranda Smith & Jennifer R. Bail - 2023 - Nursing Ethics 30 (7-8):939-959.
    Moral distress (MD) is well-documented within the nursing literature and occurs when constraints prevent a correct course of action from being implemented. The measured frequency of MD has increased among nurses over recent years, especially since the COVID-19 Pandemic. MD is less understood among nurse leaders than other populations of nurses. A qualitative systematic review was conducted with the aim to synthesize the experiences of MD among nurse leaders. This review involved a search of three databases (Medline, CINAHL, and APA (...)
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  • Ethical Awareness Scale: Replication Testing, Invariance Analysis, and Implications.Aimee Milliken, Larry Ludlow & Pamela Grace - 2019 - AJOB Empirical Bioethics 10 (4):231-240.
    Ethical awareness enables nurses to recognize the ethical implications of all practice actions, and is an important component of safe and high quality nursing care (Milliken 2016; Milliken and Grac...
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  • Giving nurses a voice during ethical conflict in the Intensive Care Unit.Natalie S. McAndrew & Joshua B. Hardin - 2020 - Nursing Ethics 27 (8):1631-1644.
    Background:Ethical conflict and subsequent nurse moral distress and burnout are common in the intensive care unit (ICU). There is a gap in our understanding of nurses’ perceptions of how organizational resources support them in addressing ethical conflict in the intensive care unit.Research question/objectives/methods:The aim of this qualitative, descriptive study was to explore how nurses experience ethical conflict and use organizational resources to support them as they address ethical conflict in their practice.Participants and research context:Responses to two open-ended questions were collected (...)
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  • Clinician distress in seriously ill patient care: A dimensional analysis.Anessa M. Foxwell, Salimah H. Meghani & Connie M. Ulrich - 2022 - Nursing Ethics 29 (1):72-93.
    Background:Caring for patients with serious illness may severely strain clinicians causing distress and probable poor patient outcomes. Unfortunately, clinician distress and its impact historically has received little attention.Research purpose:The purpose of this article was to investigate the nature of clinician distress.Research design:Qualitative inductive dimensional analysis.Participants and research context:After review of 577 articles from health sciences databases, a total of 33 articles were eligible for analysis.Ethical considerations:This study did not require ethical review and the authors adhered to appropriate academic standards in (...)
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  • Measure for Measure: Condemning the Actor and Not the Fault.Elizabeth G. Epstein, Ashley R. Hurst, Dawn Bourne & Mary Faith Marshall - 2023 - American Journal of Bioethics 23 (4):66-68.
    Kolbe and de Melo-Martin’s (2023) arguments draw attention to what is most useful about moral distress—identifying its causes is at least as important as measuring its severity. Jameton’s original...
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  • Enhancing Understanding of Moral Distress: The Measure of Moral Distress for Health Care Professionals.Elizabeth G. Epstein, Phyllis B. Whitehead, Chuleeporn Prompahakul, Leroy R. Thacker & Ann B. Hamric - 2019 - AJOB Empirical Bioethics 10 (2):113-124.
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  • Effect of a Moral Distress Consultation Service on Moral Distress, Empowerment, and a Healthy Work Environment.Elizabeth G. Epstein, Ruhee Shah & Mary Faith Marshall - 2021 - HEC Forum 35 (1):21-35.
    Background: Healthcare providers who are accountable for patient care safety and quality but who are not empowered to actualize them experience moral distress. Interventions to mitigate moral distress in the healthcare organization are needed. Objective: To evaluate the effect on moral distress and clinician empowerment of an established, health-system-wide intervention, Moral Distress Consultation. Methods: A quasi-experimental, mixed methods study using pre/post surveys, structured interviews, and evaluation of consult themes was used. Consults were requested by staff when moral distress was present. (...)
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  • Moral Distress and the Marginalization of Nurses.Georgina Campelia & Carina Fourie - 2024 - American Journal of Bioethics 24 (1):132-134.
    Responding to the nurse’s moral distress in this case depends on a deeper understanding of the source. It is possible that there is concern that resuscitation is morally wrong—perhaps because it wo...
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  • Moral Stress and Moral Distress: Confronting Challenges in Healthcare Systems under Pressure.Mara Buchbinder, Alyssa Browne, Nancy Berlinger, Tania Jenkins & Liza Buchbinder - forthcoming - American Journal of Bioethics:1-15.
    Stresses on healthcare systems and moral distress among clinicians are urgent, intertwined bioethical problems in contemporary healthcare. Yet conceptualizations of moral distress in bioethical inquiry often overlook a range of routine threats to professional integrity in healthcare work. Using examples from our research on frontline physicians working during the COVID-19 pandemic, this article clarifies conceptual distinctions between moral distress, moral injury, and moral stress and illustrates how these concepts operate together in healthcare work. Drawing from the philosophy of healthcare, we (...)
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  • The Swedish translation and cultural adaptation of the Measure of Moral Distress for Healthcare Professionals (MMD-HP).Margareta Brännström & Catarina Fischer-Grönlund - 2021 - BMC Medical Ethics 22 (1):1-7.
    BackgroundMoral distress has been described as an emotionally draining condition caused by being prevented from providing care according to one’s convictions. Studies have described the impact of moral distress on healthcare professionals, their situations and experiences. The Measure of Moral Distress for Healthcare Professionals (MMD-HP) is a questionnaire that measures moral distress experienced by healthcare professionals at three levels: patient, system and team. The aim of this project was to translate and make a cultural adaption of the MMD -HP to (...)
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  • The Experience of Moral Distress in an Academic Family Medicine Clinic.Dawn Worsham Bourne & Elizabeth Epstein - 2023 - HEC Forum 35 (1):37-54.
    Background and Objectives Primary care providers (PCPs) report decreased job satisfaction and high levels of burnout, yet little is known about their experience of moral distress. The aim of this study was to gain insight into the experiences of PCPs regarding moral distress including causative factors and proposed mitigation strategies. Methods This qualitative pilot study used semi-structured interviews to identify causes of moral distress in PCPs in an academic family medicine department. Interviews were analyzed using conventional content analysis. Results Of (...)
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  • From moral distress to burnout through work-family conflict: the protective role of resilience and positive refocusing.Chiara Bernuzzi, Ilaria Setti, Marina Maffoni & Valentina Sommovigo - 2022 - Ethics and Behavior 32 (7):578-600.
    This study analyses for the first time whether and when moral distress may be related to work-family conflict and burnout. Additionally, this study examines whether resilience and positive refocusing might protect healthcare professionals from the negative effects of moral distress. A total of 153 Italian healthcare professionals completed self-report questionnaires. Simple and moderated mediation models revealed that moral distress was positively related to burnout, directly and indirectly, as mediated by work-family conflict. Highly resilient professionals experienced low work-family conflict, regardless of (...)
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  • Moral distress interventions: An integrative literature review.Vanessa K. Amos & Elizabeth Epstein - 2022 - Nursing Ethics 29 (3):582-607.
    Moral distress has been well reviewed in the literature with established deleterious side effects for all healthcare professionals, including nurses, physicians, and others. Yet, little is known about the quality and effectiveness of interventions directed to address moral distress. The aim of this integrative review is to analyze published intervention studies to determine their efficacy and applicability across hospital settings. Of the initial 1373 articles discovered in October 2020, 18 were appraised as relevant, with 1 study added by hand search (...)
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  • Emergency, Values and Evidence.Allen Alvarez, Espen Dyrnes Stabell & May Thorseth - 2020 - Etikk I Praksis - Nordic Journal of Applied Ethics 1:1-6.
    This open issue of the Nordic Journal of Applied Ethics consists of four papers that discuss the topics covering vaccination, sustainability, development ethics research and family ethics. It also includes a book review.
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