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Rogeer Hoedemaekers, Bert Gordijn & Martien Pijnenburg (2007). Solidarity and Justice as Guiding Principles in Genomic Research.

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  1.  12
    From “Personalized” to “Precision” Medicine: The Ethical and Social Implications of Rhetorical Reform in Genomic Medicine.Eric Juengst, Michelle L. McGowan, Jennifer R. Fishman & Richard A. Settersten - 2016 - Hastings Center Report 46 (5):21-33.
    Since the late 1980s, the human genetics and genomics research community has been promising to usher in a “new paradigm for health care”—one that uses molecular profiling to identify human genetic variants implicated in multifactorial health risks. After the completion of the Human Genome Project in 2003, a wide range of stakeholders became committed to this “paradigm shift,” creating a confluence of investment, advocacy, and enthusiasm that bears all the marks of a “scientific/intellectual social movement” within biomedicine. Proponents of this (...)
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  2. Research Participants’ Perceptions and Views on Consent for Biobank Research: A Review of Empirical Data and Ethical Analysis.Flavio D'Abramo, Jan Schildmann & Jochen Vollmann - 2015 - BMC Medical Ethics 16 (1):60.
    Appropriate information and consent has been one of the most intensely discussed topics within the context of biobank research. In parallel to the normative debate, many socio-empirical studies have been conducted to gather experiences, preferences and views of patients, healthy research participants and further stakeholders. However, there is scarcity of literature which connects the normative debate about justifications for different consent models with findings gained in empirical research. In this paper we discuss findings of a limited review of socio-empirical research (...)
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  3.  36
    Biobanking Research on Oncological Residual Material: A Framework Between the Rights of the Individual and the Interest of Society. [REVIEW]Luciana Caenazzo, Pamela Tozzo & Renzo Pegoraro - 2013 - BMC Medical Ethics 14 (1):17.
    The tissue biobanking of specific biological residual materials, which constitutes a useful resource for medical/scientific research, has raised some ethical issues, such as the need to define which kind of consent is applicable for biological residual materials biobanks.
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  4.  58
    Benefit Sharing: An Exploration on the Contextual Discourse of a Changing Concept. [REVIEW]Bege Dauda & Kris Dierickx - 2013 - BMC Medical Ethics 14 (1):36.
    The concept of benefit sharing has been a topical issue on the international stage for more than two decades, gaining prominence in international law, research ethics and political philosophy. In spite of this prominence, the concept of benefit sharing is not devoid of controversies related to its definition and justification. This article examines the discourses and justifications of benefit sharing concept.
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  5.  46
    Aspirational Solidarity as Bioethical Norm: The Case of Reproductive Justice.Alexis Shotwell - 2013 - International Journal of Feminist Approaches to Bioethics 6 (1):103-120.
    It is foundational to ethics and bioethics that individuals will have to make hard decisions, frequently in challenging circumstances. But the scenarios and standard modes of theorizing in bioethics may fail to address important ethical questions, in part because of a paradigmatic focus on individual rights and freedoms in the context of decision making. There is a growing conviction that theorists of ethics and bioethics must reframe our core units of analysis to attend to health in public, collective, relational terms.1 (...)
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    Aspirational Solidarity as Bioethical Norm: The Case of Reproductive Justice.Alexis Shotwell - 2013 - International Journal of Feminist Approaches to Bioethics 6 (1):103.
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  7.  58
    Changing Ethical Frameworks: From Individual Rights to the Common Good?Margit Sutrop - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (4):533-545.
    Whereas in the 1970s early bioethicists believed that bioethics is an arena for the application of philosophical theories of utilitarianism, deontology, and natural law thinking, contemporary policy-oriented bioethicists seem rather to be keen on framing ethical issues through political ideologies. Bioethicists today are often labeled “liberal” or “communitarian,” referring to their different understandings of the relationship between the individual and society. Liberal individualism, with its conceptual base of autonomy, dignity, and privacy, enjoyed a long period of dominance in bioethics, but (...)
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  8.  78
    A Relational Account of Public Health Ethics.Françoise Baylis, Nuala P. Kenny & Susan Sherwin - 2008 - Public Health Ethics 1 (3):196-209.
    oise Baylis, 1234 Le Marchant Street, Halifax, Nova Scotia, Canada B3H 3P7. Tel.: (902)-494–2873; Fax: (902)-494-2924; Email: francoise.baylis{at}dal.ca ' + u + '@' + d + ' '//--> . Abstract Recently, there has been a growing interest in public health and public health ethics. Much of this interest has been tied to efforts to draw up national and international plans to deal with a global pandemic. It is common for these plans to state the importance of drawing upon a well-developed (...)
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