The author traces the ways in which various patients and collective associations of patients come to regard themselves as the users of future stem cell technologies. The author uses Althusser’s notion of interpellation, whereby an identity is the result of the situated encounter of a subject and an authority, to analyze the ways in which patient associations’ current involvement with basic research is related to the enactment of science as a series of technology development projects. The author argues that this (...) ‘‘project-ness’’ forms a certain privileged logic that interpellates patients and their associations in specific ways. Through the listings of illnesses circulated in the mass media, which are hoped to be treatable or curable with stem cell therapies, patients come to recognize themselves as the projected users of stem cell technologies. The author fleshes out the process of this userfication and the various responses made by patients and their associations when hailed by the entrepreneurial projects of stem cell research. (shrink)

Scientists continually face public concerns over the potential risks of biotechnology. This article reflects on the 1970s when leading molecular biologists established a moratorium, and initiated the second international Asilomar conference, on recombinant DNA molecules. Since then, this event has been widely perceived as an important historical moment when scientific actors took into account public concerns. Yet, by focusing on the history of the Public Understanding of Science discourse, we gain new insight into how ‘‘science’’ and the ‘‘public’’ have in (...) the meantime been framed in political discourses as homogeneous but antagonistic concepts. This sheds new light on the ways scientific, political, and administrative actors in biotechnology perceive the events, which occurred in the 1970s. Through interviews, we found that, with the Asilomar II conference serving as a quasi role model, the quest to reconcile ‘‘science’’ and the ‘‘public’’ is being traced back to a moment in history when such divisions had yet to be considered. This leads us to ask whether the politics of PUS contributed as much to the production of these two entities as it is claimed to have done in bridging the differences between them. (shrink)

In 2007 a social scientist and a designer created a spatial installation to communicate social science research about the regulation of emerging science and technology. The rationale behind the experiment was to improve scientific knowledge production by making the researcher sensitive to new forms of reactions and objections. Based on an account of the conceptual background to the installation and the way it was designed, the paper discusses the nature of the engagement enacted through the experiment. It is argued that (...) experimentation is a crucial way of making social science about science communication and engagement more robust. (shrink)

Studies of protests against mobile phone masts typically concentrate on the potential health risks associated with mobile phones and their masts. Beck’s Risk Society has been particularly influential in informing this debate. This focus on health, however, has merely served to limit the discussion to those concerns legitimated by science conveniently ignoring other disputed issues. In contrast, this article contends that it is necessary to use a wider notion of risk to understand fully how the current political emphasis on active (...) citizenship may have contributed to the protests. It examines how neoliberal governmentality and the move to empower people are in contention with one another. The study draws upon case material from a small village protest group in United Kingdom and argues that much of the tension arises from the encouragement of the public on one hand to become active citizens but on the other to be passive consumers. (shrink)

Via a historical reconstruction, this paper primarily demonstrates how the societal debate on genetically modified organisms (GMOs) gradually extended in terms of actors involved and concerns reflected. It is argued that the implementation of recombinant DNA technology out of the laboratory and into civil society entailed a “complex of concerns.” In this complex, distinctions between environmental, agricultural, socio-economic, and ethical issues proved to be blurred. This fueled the confusion between the wider debate on genetic modification and the risk assessment of (...) transgenic crops in the European Union. In this paper, the lasting skeptical and/or ambivalent attitude of Europeans towards agro-food biotechnology is interpreted as signaling an ongoing social request – and even a quest – for an evaluation of biotechnology with Sense and Sensibility. In this (re)quest, a broader-than-scientific dimension is sought for that allows addressing the GMO debate in a more “sensible” way, whilst making “sense” of the different stances taken in it. Here, the restyling of the European regulatory frame on transgenic agro-food products and of science communication models are discussed and taken to be indicative of the (re)quest to move from a merely scientific evaluation and risk-based policy towards a socially more robust evaluation that takes the “non-scientific” concerns at stake in the GMO debate seriously. (shrink)

According to recent literature in the sociology of expectations, expectations about the future are “performative” in that they provide guidance for activities, attract attention, mobilize political and economic resources, coordinate between groups, link technical and social concerns, create visions, and enroll supporters. While this framework has blossomed over the past decade in science and technology studies, it has yet to be applied towards a more refined understanding of how the future of the modern agrofood system is being actively contested and (...) understood. I seek to redress this gap by using the sociology of expectations to explain the discursive topography surrounding in vitro meat, a nascent agrofood technology whereby processed meat products are developed from stem cells as opposed to live animals. In discussing the obstacles and challenges which confront the proponents of this technology, I utilize three key concepts from the sociology of expectations: (1) hype, (2) retrospective prospects, and (3) the role of myth, metaphor, and ideology. I find that despite sluggish results and financial setbacks, the controversial legacy of previous agrofood technologies, and persistent cultural skepticism, the core ideological justifications for in vitro meat have proven to be resilient in buoying the technology through rough discursive waters. (shrink)

Ocular gene transfer clinical trials are raising hopes for blindness treatments and attracting media attention. News media provide an accessible health information source for patients and the public, but are often criticized for overemphasizing benefits and underplaying risks of novel biomedical interventions. Overly optimistic portrayals of unproven interventions may influence public and patient expectations; the latter may cause patients to downplay risks and over-emphasize benefits, with implications for informed consent for clinical trials. We analyze the news media communications landscape about (...) ocular gene transfer and make recommendations for improving communications between clinicians and potential trial participants in light of media coverage. (shrink)