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  1. Constructing Authentic Decisions: Proxy Decision Making for Research Involving Adults Who Lack Capacity to Consent.Victoria Shepherd, Mark Sheehan, Kerenza Hood, Richard Griffith & Fiona Wood - forthcoming - Journal of Medical Ethics:medethics-2019-106042.
    Research involving adults who lack capacity to consent relies on proxy decision making. Proxy decisions about participation are ethically complex, with a disparity between normative accounts and empirical evidence. Concerns about the accuracy of proxies’ decisions arise, in part, from the lack of an ethical framework which takes account of the complex and morally pluralistic world in which proxy decisions are situated. This qualitative study explored the experiences of family members who have acted as a research proxy in order to (...)
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  • Implementation Science and Bioethics: Lessons From European Empirical Bioethics Research?Jonathan Ives, Giles Birchley & Richard Huxtable - 2020 - American Journal of Bioethics 20 (4):80-82.
    Volume 20, Issue 4, May 2020, Page 80-82.
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