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  1. Phenomenology of the Locked-In Syndrome: an Overview and Some Suggestions.Fernando Vidal - 2018 - Neuroethics 13 (2):119-143.
    There is no systematic knowledge about how individuals with Locked-in Syndrome experience their situation. A phenomenology of LIS, in the sense of a description of subjective experience as lived by the ill persons themselves, does not yet exist as an organized endeavor. The present article takes a step in that direction by reviewing various materials and making some suggestions. First-person narratives provide the most important sources, but very few have been discussed. LIS barely appears in bioethics and neuroethics. Research on (...)
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  • Brain–Computer Interfaces, Completely Locked-In State in Neurodegenerative Diseases, and End-of-Life Decisions.Christopher Poppe & Bernice S. Elger - forthcoming - Journal of Bioethical Inquiry:1-9.
    In the future, policies surrounding end-of-life decisions will be faced with the question of whether competent people in a completely locked-in state should be enabled to make end-of-life decisions via brain-computer interfaces (BCI). This article raises ethical issues with acting through BCIs in the context of these decisions, specifically self-administration requirements within assisted suicide policies. We argue that enabling patients to end their life even once they have entered completely locked-in state might, paradoxically, prolong and uphold their quality of life.
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  • Ethical Considerations in Ending Exploratory Brain–Computer Interface Research Studies in Locked-in Syndrome.Eran Klein, Betts Peters & Matt Higger - 2018 - Cambridge Quarterly of Healthcare Ethics 27 (4):660-674.
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