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  1. Valuing Biomarker Diagnostics for Dementia Care: Enhancing the Reflection of Patients, Their Care-Givers and Members of the Wider Public.Simone van der Burg, Floris H. B. M. Schreuder, Catharina J. M. Klijn & Marcel M. Verbeek - 2019 - Medicine, Health Care and Philosophy 22 (3):439-451.
    What is the value of an early diagnosis of dementia in the absence of effective treatment? There has been a lively scholarly debate over this question, but until now patients have not played a large role in it. Our study supplements biomedical research into innovative diagnostics with an exlporation of its meanings and values according to patients. Based on seven focusgroups with patients and their care-givers, we conclude that stakeholders evaluate early diagnostics with respect to whether and how they expect (...)
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  • Epistemic Injustice in Dementia and Autism Patient Organizations: An Empirical Analysis.Karin Jongsma, Elisabeth Spaeth & Silke Schicktanz - 2017 - Ajob Empirical Bioethics 8 (4):221-233.
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