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  1. Views of Genetic Testing for Autism Among Autism Self-Advocates: A Qualitative Study.Robert Klitzman, Ekaterina Bezborodko, Wendy K. Chung & Paul S. Appelbaum - forthcoming - AJOB Empirical Bioethics.
    Background Autism self-advocates’ views regarding genetic tests for autism are important, but critical questions about their perspectives arise.Methods We interviewed 11 autism self-advocates, recruited through autism self-advocacy websites, for 1 h each.Results Interviewees viewed genetic testing and its potential pros and cons through the lens of their own indiviudal perceived challenges, needs and struggles, especially concerning stigma and discrimination, lack of accommodations and misunderstandings from society about autism, their particular needs for services, and being blamed by others and by themselves (...)
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  • Negotiating the Relationship Between Addiction, Ethics, and Brain Science.Daniel Z. Buchman, Wayne Skinner & Judy Illes - 2010 - American Journal of Bioethics Neuroscience 1 (1):36-45.
    Advances in neuroscience are changing how mental health issues such as addiction are understood and addressed as a brain disease. Although a brain disease model legitimizes addiction as a medical condition, it promotes neuro-essentialist thinking and categorical ideas of responsibility and free choice, and undermines the complexity involved in its emergence. We propose a “biopsychosocial systems” model where psychosocial factors complement and interact with neurogenetics. A systems approach addresses the complexity of addiction and approaches free choice and moral responsibility within (...)
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  • Imaging the brain: visualising “pathological entities”? Searching for reliable protocols within psychiatry and their impact on the understanding of psychiatric diseases. [REVIEW]Lara Huber - 2008 - Poiesis and Praxis 6 (1-2):27-41.
    Given that visualisations via medical imaging have tremendously increased over the last decades, the overall presence of colour-coded brain slices generated on the basis of functional imaging, i.e. neuroimaging techniques, have led to the assumption of so-called kinds of brains or cognitive profiles that might be especially related to non-healthy humans affected by neurological, neuropsychological or psychiatric syndromes or disorders. In clinical contexts especially, one must consider that visualisations through medical imaging are suggestive in a twofold way. Imaging data not (...)
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  • Interpreting fitness: self-tracking with fitness apps through a postphenomenology lens.Elise Li Zheng - 2023 - AI and Society 38 (6):2255-2266.
    Fitness apps on mobile devices are gaining popularity, as more people are engaging in self-tracking activities to record their status of fitness and exercise routines. These technologies also evolved from simply recording steps and offering exercise suggestions to an integrated lifestyle guide for physical wellbeing, thus exemplify a new era of "quantified self" in the context of health as individual responsibility. There is a considerable amount of literature in science, technology and society (STS) studies looking at this phenomenon from different (...)
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  • Brainhood, anthropological figure of modernity.Fernando Vidal - 2009 - History of the Human Sciences 22 (1):5-36.
    If personhood is the quality or condition of being an individual person, brainhood could name the quality or condition of being a brain. This ontological quality would define the `cerebral subject' that has, at least in industrialized and highly medicalized societies, gained numerous social inscriptions since the mid-20th century. This article explores the historical development of brainhood. It suggests that the brain is necessarily the location of the `modern self', and that, consequently, the cerebral subject is the anthropological figure inherent (...)
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  • The downgrading of pain sufferers’ credibility.Mar Rosàs Tosas - 2021 - Philosophy, Ethics, and Humanities in Medicine 16 (1):1-12.
    BackgroundThe evaluation of pain remains one of the most difficult challenges that healthcare practitioners face. Chronic pain appears to affect more than 35% of the population in the West, and indeed, pain is the most common reason patients seek medical care. Despite its ubiquity, studies in the last decades reveal that many patients feel their pain is dismissed by healthcare practitioners and that, as a result, they are denied proper medical care. Buchman, Ho, and Goldberg (J Bioethic Inq 14:31-42, 2017) (...)
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  • The history of the brain and mind sciences. [REVIEW]Alfred Freeborn - 2019 - History of the Human Sciences 32 (3):145-154.
    This review article critically surveys the following literature by placing it under the historiographical banner of ‘the history of the brain and mind sciences’: Fernando Vidal and Francisco Ortega, Being Brains: Making the Cerebral Subject (New York: Fordham University Press, 2017); Katja Guenther, Localization and its Discontents: A Genealogy of Psychoanalysis & the Neuro Disciplines (Chicago: University of Chicago Press, 2015); Stephen Casper and Delia Gavrus (eds), The History of the Brain and Mind Sciences: Technique, Technology, Therapy (Rochester: University of (...)
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  • Stigma and the politics of biomedical models of mental illness.Angela K. Thachuk - 2011 - International Journal of Feminist Approaches to Bioethics 4 (1):140-163.
    This paper offers a critical analysis of the strategic use of biomedical models of mental illness as a means of challenging stigma. Likening mental illnesses to physical illnesses reinforces notions that persons with mental illnesses are of a fundamentally “different kind,” entrenches misperceptions that they are inherently more violent, and promotes overreliance on diagnostic labeling and pharmaceutical treatments. I conclude that too much has been invested in the claim that the body is somehow morally neutral, and that advocates of this (...)
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  • Stigma and the Politics of Biomedical Models of Mental Illness.Angela K. Thachuk - 2011 - International Journal of Feminist Approaches to Bioethics 4 (1):140-163.
    The word stigma comes from ancient Greece, and was initially used in reference to signs or symbols physically cut into or burned onto the bodies of those deemed to be of an inferior status. It was a marking of one's tarnished and flawed character. Today, stigma is more often attached to one's social standing, personality traits, or psychological makeup. "People are no longer physically branded; instead they are societally labeled—as poor, as criminal, homosexual, mentally ill, and so on. These labels (...)
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  • The Paradox of Addiction Neuroscience.Peter B. Reiner - 2010 - Neuroethics 4 (2):65-77.
    Neuroscience has substantially advanced the understanding of how changes in brain biochemistry contribute to mechanisms of tolerance and physical dependence via exposure to addictive drugs. Many scientists and mental health advocates scaffold this emerging knowledge by adding the imprimatur of disease, arguing that conceptualizing addiction as a brain disease will reduce stigma amongst the folk. Promoting a brain disease concept is grounded in beneficent and utilitarian thinking: the language makes room for individuals living with addiction to receive the same level (...)
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  • Reading Friedan: Toward a Feminist Articulation of Heart Disease.Anne Pollock - 2010 - Body and Society 16 (4):77-97.
    This article uses Betty Friedan’s idiosyncratic invocations of heart disease in her work from the 1960s through the 1990s, as well as her autobiographical comments about it and her theory of the feminine mystique, to grapple with a feminist articulation of heart disease. Although this leading cause of death for women in industrialized countries has been peripheral to feminist health discourse and most women’s preoccupations, heart disease played an interesting narrative role in Friedan’s work and life. Drawing on Friedan’s unconventional (...)
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  • Public Understandings of Addiction: Where do Neurobiological Explanations Fit?Carla Meurk, Adrian Carter, Wayne Hall & Jayne Lucke - 2013 - Neuroethics 7 (1):51-62.
    Developments in the field of neuroscience, according to its proponents, offer the prospect of an enhanced understanding and treatment of addicted persons. Consequently, its advocates consider that improving public understanding of addiction neuroscience is a desirable aim. Those critical of neuroscientific approaches, however, charge that it is a totalising, reductive perspective–one that ignores other known causes in favour of neurobiological explanations. Sociologist Nikolas Rose has argued that neuroscience, and its associated technologies, are coming to dominate cultural models to the extent (...)
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  • Diagnostic misconceptions? A closer look at clinical research on Alzheimer's disease.Lara K. Kutschenko - 2012 - Journal of Medical Ethics 38 (1):57-59.
    Next SectionThe current focus on early intervention trials in Alzheimer's disease research raises particular ethical issues. These arise out of problems of validating study results and translating them into general practice for one thing and out of unwanted effects of an uncertain diagnosis for diagnosed people for another. The first addresses the demands of scientific research compared to those of medical practice, questioning how the medical value of clinical trials is evaluated. The second relates the scientific and medical value of (...)
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  • “How Do You Know Unless You Look?”: Brain Imaging, Biopower and Practical Neuroscience. [REVIEW]Davi Johnson - 2008 - Journal of Medical Humanities 29 (3):147-161.
    Brain imaging is a persuasive visual rhetoric by which neuroscience is articulated as relevant to the construction and maintenance of desirable selves. In this essay, I describe how “brain-based self-help” literature disseminates neuroscientific vocabularies to public audiences. In this genre, brain images are an authoritative visual resource for translating neuroscience into a comprehensive program for living. I use Foucault’s discussion of biopower to describe the ways in which brain-based self-help literature enables self-constitution in a biosocial age where health is a (...)
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  • Medicine in a Neurocentric World: About the Explanatory Power of Neuroscientific Models in Medical Research and Practice. [REVIEW]Lara Huber & Lara K. Kutschenko - 2009 - Medicine Studies 1 (4):307-313.
    Medicine in a Neurocentric World: About the Explanatory Power of Neuroscientific Models in Medical Research and Practice Content Type Journal Article Category Editorial Notes Pages 307-313 DOI 10.1007/s12376-009-0036-2 Authors Lara Huber, University Medical Center of the Johannes Gutenberg University Mainz Institute for History, Philosophy and Ethics of Medicine Am Pulverturm 13 55131 Mainz Germany Lara K. Kutschenko, University Medical Center of the Johannes Gutenberg University Mainz Institute for History, Philosophy and Ethics of Medicine Am Pulverturm 13 55131 Mainz Germany Journal (...)
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  • Michel Foucault and the Problematics of Power: Theorizing DTCA and Medicalized Subjectivity.Black Hawk Hancock - 2018 - Journal of Medicine and Philosophy 43 (4):439-468.
    This article explores Foucault’s two different notions of power: one where the subject is constituted by power–knowledge relations and another that emphasizes how power is a central feature of human action. By drawing out these two conceptualizations of power, Foucault’s work contributes three critical points to the formation of medicalized subjectivities: the issue of medicalization needs to be discussed both in terms of both specific practices and holistically ; we need to think how we as human beings are “disciplined” and (...)
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  • The history of the brain and mind sciences.Alfred Freeborn - 2019 - History of the Human Sciences 32 (3):145-154.
    This review article critically surveys the following literature by placing it under the historiographical banner of ‘the history of the brain and mind sciences’: Fernando Vidal and Francisco Ortega, Being Brains: Making the Cerebral Subject (New York: Fordham University Press, 2017); Katja Guenther, Localization and its Discontents: A Genealogy of Psychoanalysis & the Neuro Disciplines (Chicago: University of Chicago Press, 2015); Stephen Casper and Delia Gavrus (eds), The History of the Brain and Mind Sciences: Technique, Technology, Therapy (Rochester: University of (...)
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  • The Puzzle of Neuroimaging and Psychiatric Diagnosis: Technology and Nosology in an Evolving Discipline.Martha J. Farah & Seth J. Gillihan - 2012 - American Journal of Bioethics Neuroscience 3 (4):31-41.
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  • Stigma and Addiction: Being and Becoming.Daniel Buchman & Peter Reiner - 2009 - American Journal of Bioethics 9 (9):18-19.
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  • Conversion disorder and/or functional neurological disorder: How neurological explanations affect ideas of self, agency, and accountability.Jonna Brenninkmeijer - 2020 - History of the Human Sciences 33 (5):64-84.
    An estimated 15% of patients seen by neurologists have neurological symptoms, such as paralysis, tremors, dystonia, or seizures, that cannot be medically explained. For a long time, such patients were diagnosed as having conversion disorder and referred to psychiatrists, but for the last two decades or so, neurologists have started to pay more serious attention to this patient group. Instead of maintaining the commonly used label of conversion disorder – which refers to Freud’s idea that traumatic events can be converted (...)
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  • Brainwaves and psyches: A genealogy of an extended self.Jonna Brenninkmeijer - 2015 - History of the Human Sciences 28 (3):115-133.
    This article presents an ethnographical and historical analysis of the mode of being that is constituted when people use neurofeedback for self-improvement. I analyse how human brainwaves have been associated with the psyche since their first demonstration by the psychiatrist Hans Berger, how they were connected to personality types by the cybernetician Grey Walter, and made trainable by the psychologists Joe Kamiya and Barry Sterman. I compare these cases with the reports of contemporary neurofeedback practitioners and users, and demonstrate that (...)
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