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  1. Ethics Parallel Research: An Approach for (Early) Ethical Guidance of Biomedical Innovation.Karin R. Jongsma & Annelien L. Bredenoord - 2020 - BMC Medical Ethics 21 (1):1-9.
    BackgroundOur human societies and certainly also medicine are more and more permeated with technology. There seems to be an increasing awareness among bioethicists that an effective and comprehensive approach to ethically guide these emerging biomedical innovations into society is needed. Such an approach has not been spelled out yet for bioethics, while there are frequent calls for ethical guidance of biomedical innovation, also by biomedical researchers themselves. New and emerging biotechnologies require anticipation of possible effects and implications, meaning the scope (...)
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  • Prioritarian Principles for Digital Health in Low Resource Settings.Niall Winters, Sridhar Venkatapuram, Anne Geniets & Emma Wynne-Bannister - 2020 - Journal of Medical Ethics 46 (4):259-264.
    This theoretical paper argues for prioritarianism as an ethical underpinning for digital health in contexts of extreme disadvantage. In support of this claim, the paper develops three prioritarian principles for making ethical decisions for digital health programme design, grounded in the normative position that the greater the need, the stronger the moral claim. The principles are positioned as an alternative view to the prevailing utilitarian approach to digital health, which the paper argues is not sufficient to address the needs of (...)
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  • Exploring Human Values in the Design of a Web-Based QoL-Instrument for People with Mental Health Problems: A Value Sensitive Design Approach.Ivo Maathuis, Maartje Niezen, David Buitenweg, Ilja L. Bongers & Chijs van Nieuwenhuizen - 2020 - Science and Engineering Ethics 26 (2):871-898.
    Quality of life is an important outcome measure in mental health care. Currently, QoL is mainly measured with paper and pencil questionnaires. To contribute to the evaluation of treatment, and to enhance substantiated policy decisions in the allocation of resources, a web-based, personalized, patient-friendly and easy to administer QoL instrument has been developed: the QoL-ME. While human values play a significant role in shaping future use practices of technologies, it is important to anticipate on them during the design of the (...)
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  • Diversity of Scholarship in Medical Ethics.Rosalind J. McDougall - 2018 - Journal of Medical Ethics 44 (10):655-656.
    In their essay arguing for ethical review of social research, Sheehan et al write: > Inquiry and human life are intertwined and interdependent. To be human is to be curious, to ask questions about yourself, the world, and your place in the world. This process of inquiry is undertaken individually, but is a social activity.1 As researchers in medical ethics, all the authors in this issue have chosen to ask a particular type of question about the world: questions about ethical (...)
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  • The Limits of Empowerment: How to Reframe the Role of mHealth Tools in the Healthcare Ecosystem.Jessica Morley & Luciano Floridi - 2020 - Science and Engineering Ethics 26 (3):1159-1183.
    This article highlights the limitations of the tendency to frame health- and wellbeing-related digital tools as empowering devices, especially as they play an increasingly important role in the National Health Service in the UK. It argues that mHealth technologies should instead be framed as digital companions. This shift from empowerment to companionship is advocated by showing the conceptual, ethical, and methodological issues challenging the narrative of empowerment, and by arguing that such challenges, as well as the risk of medical paternalism, (...)
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  • Digital Medicine: An Opportunity to Revisit the Role of Bioethicists.Karin R. Jongsma, Annelien L. Bredenoord & Federica Lucivero - 2018 - American Journal of Bioethics 18 (9):69-70.
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