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  1. Experiences From a Community Advisory Board in the Implementation of Early Access to ART for All in Eswatini: A Qualitative Study.Charmaine Khudzie Mlambo, Eva Vernooij, Roos Geut, Eliane Vrolings, Buyisile Shongwe, Saima Jiwan, Yvette Fleming & Gavin Khumalo - 2019 - BMC Medical Ethics 20 (1):50.
    Engaging communities in community-based health research is increasingly being adopted in low- and middle-income countries. The use of community advisory boards is one method of practicing community involvement in health research. To date, few studies provide in-depth accounts of the strategies that CAB members use to practice community engagement. We assessed the perspectives, experiences and practices of the first local CAB in Eswatini, which was implemented as part of the MaxART Early Access to ART for All study. Trained Swazi research (...)
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  • Community Involvement in Biomedical Research Conducted in the Global Health Context; What Can Be Done to Make It Really Matter?Federica Fregonese - 2018 - BMC Medical Ethics 19 (S1).
    Background Community involvement in research has been advocated by researchers, communities, regulatory agencies, and funders with the aim of reinforcing subjects’ protection and improving research efficiency. Community involvement also has the potential to improve dissemination, uptake, and implementation of research findings. The fields of community based participatory research conducted with indigenous populations and of participatory action research offer a large base of experience in community involvement in research. Rules on involving the population affected when conducting research have been established in (...)
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  • Engaging with Community Advisory Boards in Lusaka Zambia: Perspectives From the Research Team and CAB Members.Alwyn Mwinga & Keymanthri Moodley - 2015 - BMC Medical Ethics 16 (1):1-11.
    BackgroundThe use of a Community Advisory Board is one method of ensuring community engagement in community based research. To identify the process used to constitute CABs in Zambia, this paper draws on the perspectives of both research team members and CAB members from research groups who used CABs in Lusaka. Enabling and restricting factors impacting on the functioning of the CAB were identified.MethodsAll studies approved by the University of Zambia Bioethics Research Committee from 2008 – 2012 were reviewed to identify (...)
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  • “Losing the Tombola”: A Case Study Describing the Use of Community Consultation in Designing the Study Protocol for a Randomised Controlled Trial of a Mental Health Intervention in Two Conflict-Affected Regions.Leslie Shanks, Claudio Moroni, Isabel Cristina Rivera, Debbie Price, Sifa Banzira Clementine & Giovanni Pintaldi - 2015 - BMC Medical Ethics 16 (1):38.
    Community consultation is increasingly recommended, and in some cases, required by ethical review boards for research that involves higher levels of ethical risk such as international research and research with vulnerable populations. In designing a randomised control trial of a mental health intervention using a wait list control, we consulted the community where the research would be undertaken prior to finalising the study protocol. The study sites were two conflict-affected locations: Grozny in the Chechen Republic and Kitchanga in eastern Democratic (...)
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