Switch to: References

Add citations

You must login to add citations.
  1. What Ethical and Legal Principles Should Guide the Genotyping of Children as Part of a Personalised Screening Programme for Common Cancer?N. Hallowell, S. Chowdhury, A. E. Hall, P. Pharoah, H. Burton & N. Pashayan - 2014 - Journal of Medical Ethics 40 (3):163-167.
    Increased knowledge of the gene–disease associations contributing to common cancer development raises the prospect of population stratification by genotype and other risk factors. Individual risk assessments could be used to target interventions such as screening, treatment and health education. Genotyping neonates, infants or young children as part of a systematic programme would improve coverage and uptake, and facilitate a screening package that maximises potential benefits and minimises harms including overdiagnosis. This paper explores the potential justifications and risks of genotyping children (...)
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark  
  • Personal Genome Testing: Test Characteristics to Clarify the Discourse on Ethical, Legal and Societal Issues.Eline M. Bunnik, Maartje H. N. Schermer & A. Cecile J. W. Janssens - 2011 - BMC Medical Ethics 12 (1):11.
    Background: As genetics technology proceeds, practices of genetic testing have become more heterogeneous: many different types of tests are finding their way to the public in different settings and for a variety of purposes. This diversification is relevant to the discourse on ethical, legal and societal issues (ELSI) surrounding genetic testing, which must evolve to encompass these differences. One important development is the rise of personal genome testing on the basis of genetic profiling: the testing of multiple genetic variants simultaneously (...)
    Direct download (9 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  • Direct-to-Consumer Personal Genome Testing: The Problem Is Not Ignorance–It Is Market Failure.Christopher F. C. Jordens, Ian H. Kerridge & Gabrielle N. Samuel - 2009 - American Journal of Bioethics 9 (6-7):13-15.
  • ‘Just a Bit of Fun’: How Recreational is Direct-to-Customer Genetic Testing?Heike Felzmann - 2015 - The New Bioethics 21 (1):20-32.
    Direct to consumer genetic testing has given rise to much controversy, especially in relation to testing for health diagnostic purposes. This paper will consider whether consumers' use of DTC genetic testing should be understood as predominantly recreational. It will be argued that recreational testing can encompass all information domains, including most kinds of predictive health risk information. In relation to recreational testing the potential identity implications for the consumer become a significant concern, more so than the risks more traditionally associated (...)
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark  
  • Re-Examining the Gene in Personalized Genomics.Jordan Bartol - 2013 - Science & Education 22 (10):2529-2546.
    Personalized genomics companies (PG; also called ‘direct-to-consumer genetics’) are businesses marketing genetic testing to consumers over the Internet. While much has been written about these new businesses, little attention has been given to their roles in science communication. This paper provides an analysis of the gene concept presented to customers and the relation between the information given and the science behind PG. Two quite different gene concepts are present in company rhetoric, but only one features in the science. To explain (...)
    Direct download (6 more)  
     
    Export citation  
     
    Bookmark   3 citations  
  • Introducing Personal Genomics to College Athletes: Potentials and Pitfalls.Dov Greenbaum - 2012 - American Journal of Bioethics 12 (4):45-47.
    The American Journal of Bioethics, Volume 12, Issue 4, Page 45-47, April 2012.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark  
  • Stem Cell Tourism and Doctors' Duties to Minors—A View From Canada.Amy Zarzeczny & Timothy Caulfield - 2010 - American Journal of Bioethics 10 (5):3-15.
    While the clinical promise of much stem cell research remains largely theoretical, patients are nonetheless pursuing unproven stem cell therapies in jurisdictions around the world?a phenomenon referred to as ?stem cell tourism.? These treatments are generally advertised on a direct-to-consumer basis via the Internet. Research shows portrayals of stem cell medicine on such websites are overly optimistic and the claims made are unsubstantiated by published evidence. However, anecdotal evidence suggests that parents are pursing these ?treatments? for their children, despite potential (...)
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   14 citations  
  • Social Networking and Personal Genomics: Suggestions for Optimizing the Interaction.Dov Greenbaum & Mark Gerstein - 2009 - American Journal of Bioethics 9 (6-7):15-19.
  • Networking Genetics, Populations, and Race.Lynette Reid - 2009 - American Journal of Bioethics 9 (6-7):50-52.
  • Are Social Networkers and Genome Testers One in the Same? The Limitations of Public Opinion Research for Guiding Clinical Practice.Michelle L. McGowan & Marcie A. Lambrix - 2009 - American Journal of Bioethics 9 (6-7):21-23.
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark  
  • How Attitudes Research Contributes to Overoptimistic Expectations of Personal Genome Testing.Eline Bunnik, A. Cecile Janssens & Maartje Schermer - 2009 - American Journal of Bioethics 9 (6-7):23-25.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  • The Ethical Justification for the Use of Non-Human Primates in Research: The Weatherall Report Revisited.Gardar Arnason - 2018 - Journal of Medical Ethics 44 (5):328-331.
    The Weatherall report on the use of non-human primates in research was published in 2006. Its main conclusion was that there is a strong scientific case for the use of non-human primates in some cases, but the report stressed the importance of evaluating each case in the light of the availability of alternatives. In addition to arguing for the scientific necessity of using non-human primates in research, the report also provided an ethical justification. As could be expected, the report was (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   3 citations  
  • Raising Genomic Citizens: Adolescents and the Return of Secondary Genomic Findings.Maya Sabatello & Paul S. Appelbaum - 2016 - Journal of Law, Medicine and Ethics 44 (2):292-308.
    No categories
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   5 citations  
  • We Are the Genes We've Been Waiting For: Rational Responses to the Gathering Storm of Personal Genomics.Misha Angrist - 2009 - American Journal of Bioethics 9 (6-7):30-31.
  • A Pragmatic Consideration of Ethical Issues Relating to Personal Genomics.Andro Hsu, Joanna Mountain, Anne Wojcicki & Linda Avey - 2009 - American Journal of Bioethics 9 (6-7):1-2.
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  • Personal Genomics as an Interactive Web Broadcast.Ainsley J. Newson - 2009 - American Journal of Bioethics 9 (6-7):27-29.
  • Challenges in the Use of Direct-to-Consumer Personal Genome Testing in Children.Holly Tabor & Maureen Kelley - 2009 - American Journal of Bioethics 9 (6-7):32-34.
  • Direct-To-Consumer Genetics and Health Policy: A Worst-Case Scenario?Timothy Caulfield - 2009 - American Journal of Bioethics 9 (6-7):48-50.
  • Genethics 2.0: Phenotypes, Genotypes, and the Challenge of Databases Generated by Personal Genome Testing.Karin Esposito & Kenneth Goodman - 2009 - American Journal of Bioethics 9 (6-7):19-21.
  • Personal Genome Testing: Do You Know What You Are Buying?Heidi Howard & Pascal Borry - 2009 - American Journal of Bioethics 9 (6-7):11-13.
  • Apomediation and the Significance of Online Social Networking.Dan O'Connor - 2009 - American Journal of Bioethics 9 (6-7):25-27.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   4 citations  
  • Currents in Contemporary Ethics.Cynthia Marietta & Amy L. McGuire - 2009 - Journal of Law, Medicine and Ethics 37 (2):369-374.
  • Personalized Genomic Educational Testing: What Do the Undergrads Think?Nicanor Pier Giorgio Austriaco - 2012 - American Journal of Bioethics 12 (4):43-45.