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Amy McGuire, Christina Diaz, Tao Wang & Susan Hilsenbeck (2009). Social Networkers' Attitudes Toward Direct-to-Consumer Personal Genome Testing.

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  1.  1
    Raising Genomic Citizens: Adolescents and the Return of Secondary Genomic Findings.Maya Sabatello & Paul S. Appelbaum - 2016 - Journal of Law, Medicine and Ethics 44 (2):292-308.
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  2.  15
    What Ethical and Legal Principles Should Guide the Genotyping of Children as Part of a Personalised Screening Programme for Common Cancer?N. Hallowell, S. Chowdhury, A. E. Hall, P. Pharoah, H. Burton & N. Pashayan - 2014 - Journal of Medical Ethics 40 (3):163-167.
    Increased knowledge of the gene–disease associations contributing to common cancer development raises the prospect of population stratification by genotype and other risk factors. Individual risk assessments could be used to target interventions such as screening, treatment and health education. Genotyping neonates, infants or young children as part of a systematic programme would improve coverage and uptake, and facilitate a screening package that maximises potential benefits and minimises harms including overdiagnosis. This paper explores the potential justifications and risks of genotyping children (...)
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  3. Re-Examining the Gene in Personalized Genomics.Jordan Bartol - 2013 - Science and Education: Academic Journal of Ushynsky University 22 (10):2529-2546.
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  4. Re-Examining the Gene in Personalized Genomics.Jordan Bartol - 2013 - Science & Education 22 (10):2529-2546.
    Personalized genomics companies (PG; also called ‘direct-to-consumer genetics’) are businesses marketing genetic testing to consumers over the Internet. While much has been written about these new businesses, little attention has been given to their roles in science communication. This paper provides an analysis of the gene concept presented to customers and the relation between the information given and the science behind PG. Two quite different gene concepts are present in company rhetoric, but only one features in the science. To explain (...)
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  5.  18
    Personalized Genomic Educational Testing: What Do the Undergrads Think?Nicanor Pier Giorgio Austriaco - 2012 - American Journal of Bioethics 12 (4):43-45.
  6.  9
    Stem Cell Tourism and Doctors' Duties to Minors—A View From Canada.Amy Zarzeczny & Timothy Caulfield - 2010 - American Journal of Bioethics 10 (5):3-15.
    While the clinical promise of much stem cell research remains largely theoretical, patients are nonetheless pursuing unproven stem cell therapies in jurisdictions around the world?a phenomenon referred to as ?stem cell tourism.? These treatments are generally advertised on a direct-to-consumer basis via the Internet. Research shows portrayals of stem cell medicine on such websites are overly optimistic and the claims made are unsubstantiated by published evidence. However, anecdotal evidence suggests that parents are pursing these ?treatments? for their children, despite potential (...)
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  7.  14
    We Are the Genes We've Been Waiting For: Rational Responses to the Gathering Storm of Personal Genomics.Misha Angrist - 2009 - American Journal of Bioethics 9 (6-7):30-31.
  8.  22
    How Attitudes Research Contributes to Overoptimistic Expectations of Personal Genome Testing.Eline Bunnik, A. Cecile Janssens & Maartje Schermer - 2009 - American Journal of Bioethics 9 (6-7):23-25.
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  9.  8
    Direct-To-Consumer Genetics and Health Policy: A Worst-Case Scenario?Timothy Caulfield - 2009 - American Journal of Bioethics 9 (6-7):48-50.
  10.  17
    Genethics 2.0: Phenotypes, Genotypes, and the Challenge of Databases Generated by Personal Genome Testing.Karin Esposito & Kenneth Goodman - 2009 - American Journal of Bioethics 9 (6-7):19-21.
  11.  5
    Personal Genome Testing: Do You Know What You Are Buying?Heidi Howard & Pascal Borry - 2009 - American Journal of Bioethics 9 (6-7):11-13.
  12.  6
    A Pragmatic Consideration of Ethical Issues Relating to Personal Genomics.Andro Hsu, Joanna Mountain, Anne Wojcicki & Linda Avey - 2009 - American Journal of Bioethics 9 (6-7):1-2.
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  13.  21
    Direct-to-Consumer Personal Genome Testing: The Problem Is Not Ignorance–It Is Market Failure.Christopher Jordens, Ian Kerridge & Gabrielle Samuel - 2009 - American Journal of Bioethics 9 (6-7):13-15.
  14.  10
    Currents in Contemporary Ethics.Cynthia Marietta & Amy L. McGuire - 2009 - Journal of Law, Medicine and Ethics 37 (2):369-374.
  15.  5
    Are Social Networkers and Genome Testers One in the Same? The Limitations of Public Opinion Research for Guiding Clinical Practice.Michelle McGowan & Marcie Lambrix - 2009 - American Journal of Bioethics 9 (6-7):21-23.
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  16.  3
    Personal Genomics as an Interactive Web Broadcast.Ainsley J. Newson - 2009 - American Journal of Bioethics 9 (6-7):27-29.
  17.  16
    Apomediation and the Significance of Online Social Networking.Dan O'Connor - 2009 - American Journal of Bioethics 9 (6-7):25-27.
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  18.  4
    Challenges in the Use of Direct-to-Consumer Personal Genome Testing in Children.Holly Tabor & Maureen Kelley - 2009 - American Journal of Bioethics 9 (6-7):32-34.