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  1. Patient and Citizen Participation in Health: The Need for Improved Ethical Support.Laura Williamson - 2014 - American Journal of Bioethics 14 (6):4-16.
    Patient and citizen participation is now regarded as central to the promotion of sustainable health and health care. Involvement efforts create and encounter many diverse ethical challenges that have the potential to enhance or undermine their success. This article examines different expressions of patient and citizen participation and the support health ethics offers. It is contended that despite its prominence and the link between patient empowerment and autonomy, traditional bioethics is insufficient to guide participation efforts. In addition, the turn to (...)
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  • Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity.Helena Machado & Susana Silva - 2015 - Journal of Medical Ethics 41 (10):820-824.