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  1. Forming and implementing community advisory boards in low- and middle-income countries: a scoping review.Yang Zhao, Thomas Fitzpatrick, Bin Wan, Suzanne Day, Allison Mathews & Joseph D. Tucker - 2019 - BMC Medical Ethics 20 (1):1-11.
    Background Community advisory boards have expanded beyond high-income countries and play an increasing role in low- and middle-income country research. Much research has examined CABs in HICs, but less is known about CABs in LMICs. The purposes of this scoping review are to examine the creation and implementation of CABs in LMICs, including identifying frequently reported challenges, and to discuss implications for research ethics. Methods We searched five databases for publications describing or evaluating CABs in LMICs. Two researchers independently reviewed (...)
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  • What Makes Health Systems Research in Developing Countries Ethical? Application of the Emanuel Framework for Clinical Research to Health Systems Research.Doug Wassenaar & Abbas Rattani - 2016 - Developing World Bioethics 16 (3):133-139.
    The growing importance of health systems research has opened debate about appropriate ethical frameworks and guidelines for the ethical review and conduct of health systems research. In this article we consider a detailed proposal from Hyder et al. and consider it in relation to the conventional criteria for ethics review of clinical research outlined by Emanuel et al. and argue that the Emanuel criteria can be usefully applied to the review of health systems research to supplement the Hyder et al. (...)
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  • Linking international clinical research with stateless populations to justice in global health.Bridget Pratt, Deborah Zion, Khin M. Lwin, Phaik Y. Cheah, Francois Nosten & Bebe Loff - 2014 - BMC Medical Ethics 15 (1):49.
    In response to calls to expand the scope of research ethics to address justice in global health, recent scholarship has sought to clarify how external research actors from high-income countries might discharge their obligation to reduce health disparities between and within countries. An ethical framework—‘research for health justice’—was derived from a theory of justice (the health capability paradigm) and specifies how international clinical research might contribute to improved health and research capacity in host communities. This paper examines whether and how (...)
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  • Exploitation and community engagement: Can Community Advisory Boards successfully assume a role minimising exploitation in international research?Bridget Pratt, Khin Maung Lwin, Deborah Zion, Francois Nosten, Bebe Loff & Phaik Yeong Cheah - 2015 - Developing World Bioethics 15 (1):18-26.
    It has been suggested that community advisory boards can play a role in minimising exploitation in international research. To get a better idea of what this requires and whether it might be achievable, the paper first describes core elements that we suggest must be in place for a CAB to reduce the potential for exploitation. The paper then examines a CAB established by the Shoklo Malaria Research Unit under conditions common in resource-poor settings – namely, where individuals join with a (...)
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  • Ancillary Care: From Theory to Practice in International Clinical Research.B. Pratt, D. Zion, K. M. Lwin, P. Y. Cheah, F. Nosten & B. Loff - 2013 - Public Health Ethics 6 (2):154-169.
    How international research might contribute to justice in global health has not been substantively addressed by bioethics. This article describes how the provision of ancillary care can link international clinical research to the reduction of global health disparities. It identifies the ancillary care obligations supported by a theory of global justice, showing that Jennifer Ruger’s health capability paradigm requires the delivery of ancillary care to trial participants for a limited subset of conditions that cause severe morbidity and mortality. Empirical research (...)
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  • Ethical and practical considerations in HIV drug trial closure: perspectives of research staff in Uganda.Sylivia Nalubega, Karen Cox, Henry Mugerwa & Catrin Evans - 2021 - Research Ethics 17 (4):423-434.
    There is a gap in evidence regarding how research trial closure processes are managed to ensure continuity of HIV care for HIV positive participants following trial closure within low income settin...
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