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  1. Clarifying Ethical Responsibilities in Pediatric Biobanking.Merle Spriggs & Craig L. Fry - 2016 - Ajob Empirical Bioethics 7 (3):167-174.
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  • Equitable Access to Human Biological Resources in Developing Countries: Benefit Sharing Without Undue Inducement.Roger Scarlin Chennells - unknown
    The main research question of this thesis is: How can cross-border access to human genetic resources, such as blood or DNA samples, be governed to achieve equity for developing countries? Access to and benefit sharing for human biological resources is not regulated through an international legal framework such as the Convention on Biological Diversity, which applies only to plants, animals and micro-organisms as well as associated traditional knowledge. This legal vacuum for the governance of human genetic resources can be attributed (...)
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  • Toward Critical Bioethics.Vilhjálmur Árnason - 2015 - Cambridge Quarterly of Healthcare Ethics 24 (2):154-164.
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  • Patient Data and Patient Rights: Swiss Healthcare Stakeholders’ Ethical Awareness Regarding Large Patient Data Sets – a Qualitative Study.Corine Mouton Dorey, Holger Baumann & Nikola Biller-Andorno - 2018 - BMC Medical Ethics 19 (1):20.
    There is a growing interest in aggregating more biomedical and patient data into large health data sets for research and public benefits. However, collecting and processing patient data raises new ethical issues regarding patient’s rights, social justice and trust in public institutions. The aim of this empirical study is to gain an in-depth understanding of the awareness of possible ethical risks and corresponding obligations among those who are involved in projects using patient data, i.e. healthcare professionals, regulators and policy makers. (...)
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