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  1. Development of a Consensus Approach for Return of Pathology Incidental Findings in the Genotype-Tissue Expression Project.Nicole C. Lockhart, Carol J. Weil, Latarsha J. Carithers, Susan E. Koester, A. Roger Little, Simona Volpi, Helen M. Moore & Benjamin E. Berkman - 2018 - Journal of Medical Ethics 44 (9):643-645.
    The active debate about the return of incidental or secondary findings in research has primarily focused on return to research participants, or in some cases, family members. Particular attention has been paid to return of genomic findings. Yet, research may generate other types of findings that warrant consideration for return, including findings related to the pathology of donated biospecimens. In the case of deceased biospecimen donors who are also organ and/or tissue transplant donors, pathology incidental findings may be relevant not (...)
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  • Contextualising the Role of the Gatekeeper in Social Science Research.Shenuka Singh & Douglas Wassenaar - 2016 - South African Journal of Bioethics and Law 9 (1):42-42.
    Accessing research participants within some social institutions for research purposes may involve a simple single administrative event. However, accessing some institutions to conduct research on their data, personnel, clients or service users can be quite complex. Research ethics committee chairpersons frequently field questions from researchers wanting to know when and why gatekeeper permission should be sought. This article examines the role and influence of gatekeepers in formal and organisational settings and explores pragmatic methods to improve understanding and facilitation of this (...)
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  • Examining the Use of Consent Forms to Promote Dissemination of Research Results to Participants.Dorothyann Curran, Mike Kekewich & Thomas Foreman - 2018 - Research Ethics 15 (1):1-28.
    It is becoming widely recognized that dissemination of research results to participants is an important action for the conclusion of a research study. Most research institutions have standardized consent documents or templates that they require their researchers to use. Consent forms are an ideal place to indicate that results of research will be provided to participants, and the practice of inserting statements to this effect is becoming more conventional. In order to determine the acceptance of this practice across Canada we (...)
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