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Social Support: From Exclusion Criteria to Medical Service

Published online by Cambridge University Press:  16 February 2023

Jacob M. Appel*
Affiliation:
Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, New York, USA Department of Psychiatry, Mount Sinai Health System, New York, New York, USA

Abstract

One of the criteria used by many transplant centers in assessing psychosocial eligibility for solid organ transplantation is social support. Yet, social support is a highly controversial requirement that has generated ongoing debate between ethicists and clinicians who favor its consideration (i.e., utility maximizers) and those who object to its use on equity grounds (i.e., equity maximizers). The assumption underlying both of these approaches is that social support is not a commodity that can be purchased in the marketplace. This essay argues for the reconceptualization of social support as a product that can—and should—be purchased for transplant candidates to render them eligible for transplant.

Type
Research Article
Copyright
© The Author(s), 2023. Published by Cambridge University Press

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References

Notes

1. Black, CK, Termanini, KM, Aguirre, O, Hawksworth, JS, Sosin, M. Solid organ transplantation in the 21st century. Annals of Translational Medicine 2018 Oct;6(20):409 CrossRefGoogle Scholar.

2. Lewis, A, Koukoura, A, Tsianos, GI, Gargavanis, AA, Nielsen, AA, Vassiliadis, E. Organ donation in the US and Europe: The supply vs demand imbalance. Transplantation Reviews 2021 Apr;35(2):100585 CrossRefGoogle ScholarPubMed.

3. National Academies of Sciences, Engineering, and Medicine. Realizing the Promise of Equity in the Organ Transplantation System. Washington, DC: The National Academies Press; 2022. doi:10.17226/26364 Google Scholar.

4. See note 3, National Academies of Sciences, Engineering, and Medicine 2022.

5. Available at https://unos.org/transplant/frequently-asked-questions/#Waiting (last accessed 30 Jan 2023).

6. Leard, LE, Holm, AM, Valapour, M, Glanville, AR, Attawar, S, Aversa, M, et al. Consensus document for the selection of lung transplant candidates: An update from the International Society for Heart and Lung Transplantation. Journal of Heart and Lung Transplantation 2021;40(11):1349–79CrossRefGoogle ScholarPubMed.

7. Tsochatzis, E, Coilly, A, Nadalin, S, Levistky, J, Tokat, Y, Ghobrial, M, et al. International liver transplantation consensus statement on end-stage liver disease due to nonalcoholic steatohepatitis and liver transplantation. Transplantation 2019 Jan;103(1):4556 CrossRefGoogle ScholarPubMed.

8. Federal Register, 42 CFR part 121, Oct 20, 1999.

9. Bailey, P, Vergis, N, Allison, M, Riddell, A, Massey, E. Psychosocial evaluation of candidates for solid organ transplantation. Transplantation 2021;105(12):e292e302 CrossRefGoogle ScholarPubMed.

10. Crigger, B. AMA Code of Medical Ethics’ opinions relevant to organ transplantation and procurement. AMA Journal of Ethics 2016;18(2):122–5Google Scholar.

11. Skotzko, CE, Stowe, JA, Wright, C, Kendall, K, Dew, MA. Approaching a consensus: Psychosocial support services for solid organ transplantation programs. Progress in Transplantation 2001;11(3):163–8CrossRefGoogle ScholarPubMed.

12. Ladin, K, Emerson, J, Berry, K, Butt, Z, Gordon, EJ, Daniels, N, et al. Excluding patients from transplant due to social support: Results from a national survey of transplant providers. American Journal of Transplantation 2019 Jan;19(1):193203 CrossRefGoogle ScholarPubMed.

13. Berry, KN, Daniels, N, Ladin, K. Should lack of social support prevent access to organ transplantation? American Journal of Bioethics 2019;19(11):1324 CrossRefGoogle ScholarPubMed.

14. See, for example, Oregon Health Science University, Clinical Transplant Services Kidney/Pancreas Transplant Program, Preparing for Your Transplant; available at https://www.ohsu.edu/sites/default/files/2019-03/PAF%2BSPA%20kidpanc%20Rev.6.2018.pdf (last accessed 1 Jan 2023).

15. Olbrisch, ME, Levenso, JL, Hamer, J. The PACT: A rating scale for the study of clinical decision-making in psychosocial screening of organ transplant candidates. Clinical Transplantation 1989;3:164–9Google Scholar.

16. Maldonado, JR, Dubois, HC, David, EE, Sher, Y, Lolak, S, Dyal, J, et al. The Stanford Integrated Psychosocial Assessment for Transplantation (SIPAT): A new tool for the psychosocial evaluation of pre-transplant candidates. Psychosomatics 2012;53:123–32CrossRefGoogle Scholar.

17. See note 12, Ladin et al. 2019.

18. Maldonado, JR. Why it is important to consider social support when assessing organ transplant candidates? American Journal of Bioethics 2019;19(11):18 CrossRefGoogle ScholarPubMed.

19. See note 13, Berry et al. 2019.

20. Appel, JM. When scarcity meets disparity: “Resources allocation and COVID-19 patients with diabetes”. Journal of Diabetes Science and Technology 2021;15(5):1005–9CrossRefGoogle Scholar.

21. Schwartzberg, JL, Levenson, J, Appel, JM. Is there a right to a fully vaccinated care team? Clinical Ethics 2022;17(3):235–40CrossRefGoogle Scholar.

22. Bruschwein, H, Chen, G, Yost, J. Social support and transplantation. Current Opinion in Organ Transplantation 2022;27(6):508–13CrossRefGoogle ScholarPubMed.

23. See note 18, Maldonado 2019.

24. See note 13, Berry et al. 2019.

25. Jowsey, SG, Schneekloth, TD. Psychosocial factors in living organ donation: Clinical and ethical challenges. Transplantation Reviews 2008;22(3):192–5CrossRefGoogle ScholarPubMed.

26. Dew, MA, Goycoolea, JM, Stukas, AA, Switzer, GE, Simmons, RG, Roth, LH, et al. Temporal profiles of physical health in family members of heart transplant recipients: Predictors of health change during caregiving. Health Psychology 1998;17(2): 138–51CrossRefGoogle ScholarPubMed.

27. White, DB, Lo, B. A framework for rationing ventilators and critical care beds during the COVID-19 pandemic. JAMA 2020;323(18):1773–4CrossRefGoogle ScholarPubMed.

28. Wicclair, M. Allocating ventilators during the COVID-19 pandemic and conscientious objection. American Journal of Bioethics 2020;20(7):204–7CrossRefGoogle ScholarPubMed.

29. Cleveland Manchanda, E, Couillard, C, Sivashanker, K. Inequity in crisis standards of care. New England Journal of Medicine 2020;383(4):e16 CrossRefGoogle ScholarPubMed.

30. Cleveland Manchanda, EC, Sanky, C, Appel, JM. Crisis standards of care in the USA: A systematic review and implications for equity amidst COVID-19. Journal of Racial and Ethnic Health Disparities 2021;8(4):824–36CrossRefGoogle Scholar.

31. See note 13, Berry et al. 2019.

32. Simmerling, M. 2007. Beyond scarcity: Poverty as a contraindication for organ transplantation. Virtual Mentor 9(6):441–5Google ScholarPubMed.

34. Bounds, DP. Fulfilling the Olmstead decision’s right to home-based care in 2022: Paying spousal caregivers. Iowa Law Review 2022;108(1):379408 Google Scholar.

35. Genworth Cost of Care Survey; 2022 Jan 31;available at https://pro.genworth.com/riiproweb/productinfo/pdf/282102.pdf (last accessed 30 Jan 2023).

36. Bentley TS, Ortner N. 2020 U.S. organ and tissue transplants: Cost estimates, discussion, and emerging issues. Milliman Research Report 2020; available at www.milliman.com/-/media/milliman/pdfs/articles/2020-us-organ-tissue-transplants.ashx (last accessed 30 Jan 2023).

37. Phillips, KM, Burker, EJ, White, HC. The roles of social support and psychological distress in lung transplant candidacy. Progress in Transplantation 2011;21(3):200–6CrossRefGoogle ScholarPubMed.

38. Taylor, JS. Buying and selling friendship. American Philosophical Quarterly 2019;56(2):187202 CrossRefGoogle Scholar.