Bioethics in ActionFrançoise Baylis, Alice Dreger Speaking from and to the growing movement among academics to become involved with 'socially-engaged' work, this volume presents first-person case studies of attempts to fix serious ethical problems in medical practice and research. It highlights the critical difference between the pundit approach to bioethics and the interventional approach - the talkers and the doers - and points to how abused and damaged the doers often end up. Chapters cover a diverse set of topics, including the troubling influence of for-profit businesses on public health policy, the politics of exposing histories of unjust medical research, the challenges of patient rights' work in sexuality and reproduction, collaborations between NGOs and academics, methods for changing entrenched yet harmful medical practices, engaging public policy through educating governmental leaders, and whistleblowing. The trending interest in the interplay of academia and advocacy and the growing importance of 'socially-engaged' work by academics make this a timely and much-needed resource. |
Contents
List of Contributors | |
FRANÇOISE BAYLIS AND JOCELYN DOWNIE | |
REVERBY | |
An AcademicNGO | |
Reproductive Technologys Legacy of Omission 98 | |
MIRIAM ZOLL | |
JOEL E FRADER | |
JANE MAIENSCHEIN | |
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academic Accessed activists advocacy African Americans Alice Dreger Assisted reproductive technology Available babies Baylis Beaudet bioethicists bioethics Canadian Institutes Center Chochinov CIHR Governing Council clinical clinicians Committee on Ethics Committee on Health conflict of interest Cutler Devore doctors Drazen egg freezing Embryo Project Examining Tuskegee Facebook February 20 federal fertility Flint River Flint Water Crisis gender genetic Guatemala health research hospitals Impact Ethics industry informed consent Institutes of Health intersex ISNA issues Journal June Laurent lead levels letter Macklin March 29 Medicine Michigan NEJM November October 17 October 20 October 28 OHRP OHRP’s Parliament of Canada patients Pediatric Endocrinology pediatric palliative Pfizer appointment physicians Prigent Public Citizen published repro tech risks S.M. Reverby S.M. Wolfe Standing Committee story study in Tuskegee SUPPORT study surgeries treatment Water Crisis Wilfond women Zoll