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Cancer Knowledge in the Plural: Queering the Biopolitics of Narrative and Affective Mobilities

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Abstract

In this age of DIY Health—a present that has been described as a time of “ludic capitalism”—one is constantly confronted with the injunction to manage risk by means of making healthy choices and of informed participation in various self-surveillant technologies of bioinformatics. Neoliberal governmentality has been redacted by poststructuralist scholars of bioethics as defined by the two-fold emergence of, on the one hand, populations and on the other, the self-determining individual—as biopolitical entities. In this article, we provide a genealogical-phenomenological schematization (GPS analysis) of the narration of cancer in relation to “sexual minority populations.” Canonical discourses concerning minority sexualities are articulated by means of a logic of “inclusion and reification” that organizes the interiorization of norms of embodied relationality, and a positive liaison with biomedical technologies and techniques in the taking up of a rhetorical style of biographical compliance. Neoliberal DIY Health logics conflate participation with agency, and institute norms of recognition that constrain visibility to: citizens who make healthy choices and manage risk, heroic cancer stories, stories of the reconstruction of states of normalcy, or of survival against all odds. Alternatively, we trace the performative articulations of queer narrative practices that constitute an ephemeral, nomadic praxiology—a doing of knowledge in cancer’s queer narration. Queer cancer narrative practices represent a relationship to health and embodiment that is predicated, not on normalcy, but predicated on troubling norms, on artful failure, and on engaging in a kind of affective mapping that might be thought constitutive of a speculative bioethical relation to the self as other.

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References

  • Acker, K. 1977, January 18. “The Gift of Disease.” The Guardian, T14.

  • Amiel. 2005. “What’s new in Cancer Education Research.” Journal of Cancer Education 20 (3): 133–135.

    Article  Google Scholar 

  • Barthes, R. 1986. The Rustle of Language. Berkeley, CA: University of California Press.

    Google Scholar 

  • Batt, S. 1994. Patient No More. Charlottetown, PEI: Gynergy Books.

    Google Scholar 

  • Berlant, L. 1999. “The Subject of True Feeling: Pain, Privacy, and Politics.” In Cultural Pluralism, Identity politics, and the Law, edited by A. Sarat and T. Kearns, 49–84. Ann Arbor, MI: The University of Michigan Press.

    Google Scholar 

  • Brown, W. 1993. “Wounded Attachments.” Political Theory 21 (3): 390–410.

    Article  Google Scholar 

  • Bryson, M. 2006. “New Media and Sexual Subcultures: Critical Perspectives on Research Problematics, Possibilities, and Practices.” Journal of Gay and Lesbian Issues in Education 3 (4): 109–118.

    Article  Google Scholar 

  • ———. 2011. “Mapping Affect and Nomadic Mobilities: The Queer Biopolitics of Feeling Cancer.” Paper presented a meeting of the Association of Internet Researchers (AoIR), Seattle.

  • Bryson, M. and L. MacIntosh. 2010. “Can we play “fun gay”?: Disjuncture and Difference and the Precarious Mobilities of Millennial Queer Youth Narratives.” International Journal of Qualitative Studies in Education, 23 (1): 101–124.

    Article  Google Scholar 

  • Bryson, M., L. MacIntosh, S. Jordan, and H. Lin. 2006. “Virtually Queer?: Homing Devices, Mobility, and Un/belongings.” Canadian Journal of Communication 31: 791–814.

    Google Scholar 

  • Bury, M. 1982. “Chronic Illness as Biographical Disruption.” Sociology of Health and Illness, 4 (2): 167–182.

    Article  Google Scholar 

  • Butler, J. 1988. “Performative Acts and Gender Constitution: An Essay in Phenomenology And Feminist Theory.” Theatre Journal 40 (4): 519–531.

    Article  Google Scholar 

  • ———. 1993. “Critically Queer.” GLQ: A Journal of Lesbian and Gay Studies 1 (1): 17–32.

    Google Scholar 

  • -----. 2010. “From Performativity to Precarity.” Paper presented at a meeting of the Performing the Future conference, Berlin.

  • Castle, T. 1995. The Apparitional Lesbian: Female Homosexuality and Modern Culture. New York, NY: Columbia University Press.

    Google Scholar 

  • Cavarero, A. 2000. Relating narratives: Storytelling and selfhood. New York, NY: Routledge.

    Google Scholar 

  • Changrani, J. and F. Gany. 2005. “Online Cancer Education and Immigrants: Effecting Culturally Appropriate Websites.” Journal of Cancer Education 20 (3): 183–186.

    Article  Google Scholar 

  • Clarke, A., J. Shim, L. Mamo, J. Fosket, and J. Fishman. 2003. “Biomedicalization: Technoscientific Transformations of Health, Illness, and U.S. Biomedicine.” American Sociological Review 68 (2): 161–194.

    Article  Google Scholar 

  • Cvetkovich, A. 2003. An Archive of Feelings: Trauma, Sexuality and Lesbian Public Cultures. Durham, NY: Duke University Press.

    Google Scholar 

  • Diedrich. L. 2005. “A Bioethics of Failure.” In Ethics of the Body, edited by M. Shildrick and R. Mykitiuk, 135–154. Cambridge, MA: MIT Press.

  • ———. 2007. Treatments: Language, Politics and the Culture of Illness. Minneapolis: University of Minnesota Press.

    Google Scholar 

  • Ehrenreich, B. 2001, November. “Welcome to Cancerland.” Harper’s Magazine, 43–53.

  • Epstein, S. 2007a. “Targeting the State: Risks, Benefits, and Strategic Dilemmas of Recent LGBT Health Advocacy.” In The Health of Sexual Minorities, edited by I. Meyer and M. Northridge, 149–168. New York, NY: Springer.

    Chapter  Google Scholar 

  • ———. 2007b. Inclusion: The Politics of Difference in Medical Research. Chicago, IL: The University of Chicago Press.

    Book  Google Scholar 

  • Flatley, J. 2008. Affective Mapping: Melancholia and the Politics of Modernism. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Fobair, P., K. O’Hanlan, C. Koopman, C. Classen, S. Dimiceli, N. Drooker, D. Warner, H. Davids, J. Loulan, D. Wallsten, D. Goffinet, G. Morrow, and D. Spiegel. 2001. “Comparison of Lesbian and Heterosexual Women’s Response to Newly Diagnosed Breast Cancer.” Psycho-Oncology 10, 40–51.

    Article  Google Scholar 

  • Foucault, M. 1973/2003. The Birth of the Clinic. New York, NY: Taylor & Francis.

  • ———. 1980. Power/Knowledge: Selected Interviews and Other Writings 1972–1977. New York, NY: Pantheon.

    Google Scholar 

  • ———. 1997. “What Our Present Is.” In The Politics of Truth, edited by S. Lotringer, 129–144. Cambridge, MA: MIT Press.

    Google Scholar 

  • ———. 1997. “The Ethics of the Concern for Self as a Practice of Freedom.” In Ethics: Subjectivity and Truth, edited by P. Rabinow, 181–302. New York, NY: The New Press.

    Google Scholar 

  • Friedlander, S. 1994. “Trauma, Memory and Transference.” In Holocaust Remembrance: The Shapes of Memory, edited by G. Hartman, 252–263. Cambridge, MA: Blackwell.

    Google Scholar 

  • Galloway, A. 2009. “The Unworkable Interface.” New Literary History 39: 931–955.

    Article  Google Scholar 

  • Gilmore, L. 2001. The Limits of Autobiography: Trauma and Testimony. Cornell, NY: Cornell University Press.

    Google Scholar 

  • Goldman, D. 2010. I Want to be Ready: Improvised Dance as a Practice of Freedom. Ann Arbor, MI: The University of Michigan Press.

    Google Scholar 

  • Gourley, P. 1981. Summer. “Queer Cancer.” Out Front archive. http://pjgourley.com/AIDS/1981-07-QueerCancer.html. Accessed 14 November 2012.

  • Gray, M. 2007. “From Websites to Wal-Mart: Youth, Identity Work, and the Queering of Boundary Publics in Small Town, USA.” American Studies, 48 (2): 5–30.

    Article  Google Scholar 

  • Hammer, B. 2008. “A Horse is not a Metaphor” (film). http://barbarahammer.com/archives/155. Accessed 3 January 2013

  • ———. 2010. Hammer!: Making Movies out of Sex and Life. New York, NY: The Feminist Press.

    Google Scholar 

  • Hannabach, C. 2008. “Untimely Forgetting: Melancholia, Sexual Dispossession, and Queer Femininity.” UCLA Center for the Study of Women Newsletter, 6–9. Accessed March 1, 2010, http://escholarship.org/uc/item/9m07x3mv;jsessionid=D6AC514BF0406291DDFE8EAD390F0423.

  • Haraway, D. 2008. When Species Meet. Minneapolis, MN: University of Minnesota Press.

    Google Scholar 

  • Hart, SL., and DJ. Bowen. 2009. “Sexual Orientation and Intentions to Obtain Breast Cancer Screening.” Journal of Women’s Health 18 (2): 177–185.

    Google Scholar 

  • Haug, F. 1992. Beyond Female Masochism: Memory-work and Politics. New York, NY: Verso.

    Google Scholar 

  • HysterSisters. 2010. “Facing your Risks – and your Future.” Accessed July 3, 2011, http://www.hystersisters.com/vb2/view.php?pg=checkingin_1010.

  • Institute of Medicine. 2011. The Health of Lesbian, Gay, Bisexual, and Transgender People: Building a Foundation for Better Understanding. Washington, DC: The National Academies Press.

    Google Scholar 

  • Jain, LS. 2007a. “Living in Prognosis: Towards an Elegiac Politics.” Representations 98: 77–92.

    Article  Google Scholar 

  • ———. 2007b. “Cancer Butch.” Cultural Anthropology 22 (4): 501–538.

    Article  Google Scholar 

  • Kazanjian, A. and O. Hankivsky. 2008. “Reflections on the Future of Women’s Health Research in a Comparative Context.” Women’s Health Issues 18: 343–346.

    Article  Google Scholar 

  • Lather, P. and C. Smithies. 1997. Troubling the Angels: Women Living with HIV/AIDS. Oxford, CT: Westview Press.

    Google Scholar 

  • Lord, C. 2004. The Summer of her Baldness: A Cancer Improvisation. Austin, TX: University of Texas Press.

    Google Scholar 

  • Lorde, A. 1980. The Cancer Journals. San Francisco: Spinsters/Aunt Lute.

    Google Scholar 

  • Love, H. 2007. Feeling Backward: Loss and the Politics of Queer History. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Lowe, Lisa. 1997. “Work, Immigration, Gender: New Subjects of Cultural Politics. Social Justice 25 (3): 31–49.

    Google Scholar 

  • Lyotard, JF. 1984. The Postmodern Condition: A Report on Knowledge. Minneapolis, MN: University of Minnesota Press.

    Google Scholar 

  • Martindale, K. 1994. “My (lesbian) Breast Cancer Story: Can I get a Witness?” In Resist: Essays against a Homophobic Culture, edited by M. Oikawa, 137–150. Toronto: Women’s Press.

    Google Scholar 

  • Mason, G. 2001. “Body Maps: Envisaging Homophobia, Violence and Safety.” Social & Legal Studies 10 (1): 23–44.

    Google Scholar 

  • ———. 2002. The Spectacle of Violence: Homophobia, Gender and Knowledge. New York, NY: Routledge.

    Google Scholar 

  • Mathieson, CM. and HJ. Stam. 1995. “Renegotiating Identity: Cancer Narratives.” Sociology of Health & Illness 17:283–306.

  • McRobbie, A. 2004. “Post-feminism and Popular Culture.” Feminist Media Studies 4 (3): 254–264.

    Article  Google Scholar 

  • Memmi, D. 2003. “Governing through Speech: The New State Administration of Bodies.” Social Research 70 (2): 645–658.

    Google Scholar 

  • Mol, A. 2002. The Body Multiple: Ontology in Medical Practice. Durham, NC: Duke University Press.

    Google Scholar 

  • Mukherjee, S. 2010. The Emperor of all Maladies: A Biography of Cancer. New York, NY: Scribner.

    Google Scholar 

  • Munoz, J. 1996. “Ephemera as Evidence: Introductory Notes to Queer Acts.” Women & Performance: A Journal of Feminist Theory 8 (2): 5–16.

    Article  Google Scholar 

  • ———. 2007. Cruising Utopia: The then and there of Queer Futurity. New York, NY: New York University Press.

    Google Scholar 

  • Murray, SJ. 2007. “Care and the Self: Biotechnology, Reproduction, and the Good Life.” Philosophy, Ethics, and Humanities in Medicine archive. 2 (6). http://www.peh-med.com/content/2/1/6. Accessed 2 October 2012

  • Novas, C. and N. Rose. 2000. “Genetic Risk and the Birth of the Somatic Individual.” Economy and Society 29 (4): 485–513.

    Article  Google Scholar 

  • Ong, A. 2006. Neoliberalism as Exception: Mutations in Citizenship and Sovereignty. Durham: Duke University Press.

    Google Scholar 

  • Osterweil, A. 2010. “A body is not a Metaphor: Barbara Hammer’s X-ray Vision.” Journal of Lesbian Studies 14: 185–200.

    Article  Google Scholar 

  • Patton, C. 2007. “Mobile Knowledge. HIV Patients’ Encounter with Endocrinology.” Canadian Journal of Communication 32: 335–355.

    Google Scholar 

  • Pierret, J. 2003. “The Illness Experience: State of Knowledge and Perspectives for Research.” Sociology of Health & Illness 25: 4–22.

    Article  Google Scholar 

  • Rabinow, P. and N. Rose. 2006. “Biopower Today.” BioSocieties 1 (2): 195–217.

    Article  Google Scholar 

  • Rail, G. 2009. “Psychose en matière de santé et colonisation du corps féminin.” In Pouvoir médical et santé totalitaire: Conséquences socio-anthropologiques et éthiques, edited by S. Yaya, 218–232. Québec: Presses de l’Université Laval.

    Google Scholar 

  • Rogers, G. 2000. “My Left Breast.” Accessed August 10, 2009, http://www.wmm.com/filmcatalog/pages/c554.shtml.

  • Rose, N. 2007. The Politics of Life Itself: Biomedicine, Power, and Subjectivity in the Twenty-First Century. Princeton, NJ: Princeton University Press.

    Google Scholar 

  • Scott, J. 1991. “The Evidence of Experience.” Critical Inquiry 17 (4): 773–797.

    Article  Google Scholar 

  • Sedgwick, E. 1990. Epistemology of the Closet. Berkeley, CA: University of California Press.

    Google Scholar 

  • ———. 1993. Tendencies. Durham: Duke University Press.

    Book  Google Scholar 

  • ———. 1999. A Dialogue on Love. Boston: Beacon Press.

    Google Scholar 

  • ———. 2003. Touching Feeling: Affect, Pedagogy, Performativity. Durham, NC: Duke University Press.

    Google Scholar 

  • Segal, J. 2008. “Breast Cancer Narratives as Public Rhetoric: Genre Itself and the Maintenance of Ignorance.” Linguistics and the Human Sciences 3 (1): 3–23.

    Article  Google Scholar 

  • Serres, M. 1982. Genese. Paris, FR: Grasset.

    Google Scholar 

  • Shankle, M., ed. 2006. Handbook of Lesbian, Gay, Bisexual and Transgender Public Health: A Practitioner’s Guide to Service. New York: Haworth Press.

    Google Scholar 

  • Solarz, A. 1999. Lesbian Health: Current Assessment and Directions for the Future. Washington, DC: National Academy Press.

    Google Scholar 

  • Stacey, J. 1997. Teratologies: A Cultural Study of Cancer. New York: Routledge.

    Google Scholar 

  • Stacey, J. and M. Bryson. (2012). “Queering the Temporality of Cancer Survivorship.” Aporia 4 (1): 5–17.

    Google Scholar 

  • Stewart, K. 1996. A Space on the Side of the Road: Cultural Poetics in an “Other” America. Princeton, NJ: Princeton University Press.

    Google Scholar 

  • Surbone, A. 2008. “Cultural Aspects of Communication in Cancer Care. Supportive Care in Cancer 16 (3): 235–240.

    Article  Google Scholar 

  • Terry, J. 1990. “Lesbians under the Medical Gaze.” The Journal of Sex Research 27 (3): 317–339.

    Article  Google Scholar 

  • Treichler, P. 1999. How to have a Theory in an Epidemic: Cultural Chronicles of AIDS. Durham, NC: Duke University Press.

    Google Scholar 

  • Williams, R. 1977. Marxism and Literature. Oxford: Oxford University Press.

    Google Scholar 

  • Winthereik, B. and H. Langstrup. 2010. “When Patients Care (too much) for Information.” In Care in Practice: On Tinkering in Clinics, Homes and Farms, edited by A. Mol, I. Moser, and J. Pols., 195–213. London, UK: Transaction Publishers.

    Google Scholar 

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Correspondence to Mary K. Bryson.

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Bryson, M.K., Stacey, J. Cancer Knowledge in the Plural: Queering the Biopolitics of Narrative and Affective Mobilities. J Med Humanit 34, 197–212 (2013). https://doi.org/10.1007/s10912-013-9206-z

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