The Right to Know and the Right Not to KnowRuth F. Chadwick, Mairi Levitt, Darren Shickle This volume contains essays which cover a range of aspects in the debate over genetic testing. It looks at both the advantages and disadvantages involved in knowing or not knowing whether one is a carrier of certain genetic traits. |
Contents
the historical perspective | 23 |
The meaning of rights in the right to know debate | 37 |
Autonomy and a right not to know | 55 |
Copyright | |
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approach argued arguments autonomy baby benefits breast cancer choice claims Clinical Genetics College of Physicians concept of privacy concerned considered context Council of Ethics Council of Europe Council on Bioethics cystic fibrosis Danish Council debate diagnosis discussion DNA sample doctor Down's Ethical Issues Euroscreen example family members future gene therapy genetic counselling genetic disorder genetic knowledge Genetic Privacy Act genetic privacy law genetic screening genetic technology genetic testing geneticist geneticization historical evidence history of genetics Human Genome Project Huntington's disease individual's informed consent inherited interest Journal legislation London Mairi Levitt medical ethics Medicine moral decisions Nuffield Council particular paternalism patient person perspective possible potential predictive prenatal principle private genetic information problem professional question relevant reproductive decisions responsibility right to know risk Royal College Ruth Chadwick sample source scientific scientists screening programmes Shickle social society solidarity suggests University unsolicited disclosure