Abstract
Beginning with a discussion of why value neutrality on the part of the genetics counselor does not necessarily preserve autonomy of the counselee, the idea that social values unavoidably underlie the articulation of risks and benefits of genetic testing is made explicit. Despite the best efforts of a counselor to convey “value neutral” facts, risk assessment by the counselee and family is done according to normative analysis, experience with illness, and definitions of health. Each of these factors must be known by the genetic counselor in order to relate those facts which she acknowledges as relevant to the decisions that will be made by those people seeking the genetic information.
Concisely, the scope of this paper includes the role of the genetic counselor in facilitating a family planning decision-making process. In the expression of genetic risks, the authority of medical language impacts a person's understanding of epidemiological data. By claiming that “value neutrality” is an ethos of genetic counselors, this implies that there exists a distinction between these scientific facts and personal values; this assumption is fallacious and should not be promoted to patients as a truth within the professional ethos statement of genetic counseling.
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References
Bosk, C.: 1993, ‘The workplace ideology of genetic counselors’, in: D. Bartels, B. LeRoy and A. Caplan (eds.), Prescribing Our Future: Ethical Challenges in Genetic Counseling. New York: Aldine De Gruyter, pp. 25–37.
Brock, D.: 1991, ‘The ideal of shared decision making between physicians and patients’, Kennedy Institute of Ethics Journal 1, 38–47.
Caplan, A.: 1993, ‘Neutrality is not morality: The ethics of genetic counseling’, in: D. Bartels, B. LeRoy and A. Caplan (eds.), Prescribing Our Future: Ethical Challenges in Genetic Counseling. New York: Aldine De Gruyter, pp. 149–165.
Evans, M., et al.: 1990, ‘Parental perceptions of genetic risk: Correlation with choice of prenatal diagnostic procedures’, International Journal of Gynecology and Obstetrics 31, 25–28.
Frets, P., et al.: 1990, ‘Factors influencing the reproductive decision after genetic counseling’, American Journal of Medical Genetics 35, 496–502.
Gervais, K.: 1993, ‘Objectivity, value neutrality, and nondirectiveness in genetic counseling’, in: D. Bartels, B. LeRoy and A. Caplan (eds.), Prescribing Our Future: Ethical Challenges in Genetic Counseling. New York: Aldine De Gruyter, pp. 119–130.
Kessler, S. and E. Levine: 1987, ‘Psychological aspects of genetic counseling. The subjective assessment of probability’, American Journal of Medical Genetics 28, 361–370.
President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research: 1983, Screening and Counseling for Genetic Conditions: The Ethical, Social, and Legal Implications of Genetic Screening, Counseling and Education Programs. Washington, D.C.: U.S. Government Printing Office.
Rapp, R.: 1989, ‘Chromosomes and communication: The discourse of genetic counseling’, in: L. Whiteford and M. Poland (eds.), New Approaches to Human Reproduction: Social and Ethical Dimensions. Boulder, Colorado: Westview Press, Inc, pp. 25–41.
Singer, G.: 1996, ‘Clarifying the duties and goals of genetic counselors: Implications for nondirectiveness’, in: Morality and the New Genetics: A Guide for Students and Health Care Providers. Boston: Jones and Bartlett Publishers, pp. 125–145.
Tversky, A. and D. Kahneman: 1981, ‘The framing of decisions and the psychology of choice’, Science 211, 453–458.
Wachbroit, R. and D. Wasserman: 1995, ‘Clarifying the goals of nondirective genetic counseling’, Report from the Institute for Philosophy & Public Policy 15 (2 and 3), 1–6.
Zaner, R.: 1994, ‘Experience and moral life: A phenomenological approach’, in: E. DuBose, R. Hamel and L. O'Connell (eds.), A Matter of Principles? Ferment in U.S. Bioethics. Valley Forge, Pennsylvania: Trinity Press International, pp. 211–239.
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Rentmeester, C.A. Value neutrality in genetic counseling: An unattained ideal. Med Health Care Philos 4, 47–51 (2001). https://doi.org/10.1023/A:1009972728031
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DOI: https://doi.org/10.1023/A:1009972728031