Abstract
Important scientific, ethical and sociological debates are emerging over the trans-humanist goal to achieve therapeutic treatments to ‘cure’ the debilitation of age-related illness and extend the healthy life span of individuals through “interventive biogerontological research”. The scientific and moral discourses surrounding this contentious scientific field are mapped out, followed by a normative argument favouring ‘strong’ deliberative democratic control of human life extension research. This proposal incorporates insights from constructive and participatory technology assessment, upstream public engagement and back-casting analysis; to outline a programme of participatory approaches to encourage two-way dialogue between scientific and citizen perspectives, and foster the long-term deliberative democratic governance of this developing field.
Résumé
D’importants débats scientifiques, éthiques et sociologiques, se font jour à propos de l’objectif transhumaniste de parvenir à des traitements thérapeutiques qui guérissent les dégénéressences liés à l’âge, afin de prolonger la durée de la vie en bonne santé des individus par le biais de la recherche en « biogérontologie interventive ». Les discours scientifique et moraux entourant ce champ scientifique contesté sont tracés et suivi d’un argument normatif en faveur d’un « fort » contrôle démocratique et participatif des recherches sur le prologement de la vie. Cette proposition intègre les points de vue des techniques d’évaluation constructive et participatives d’engagement du public en amont et d’analyse retrospective; pour définir un programme d’approche participative afin d’encourager un dialogue réciproque entre les perspectives des scientifiques et des citoyens et favoriser au long terme une gouvernance démocratique et déliberative de ce champ en développement.
Zusammenfassung
Wichtige wissenschaftliche, ethische und soziologische Debatten entstehen über das transhumanistische Ziel, therapeutische Behandlungen zur „Heilung” der Schwächung durch altersbedingte Krankheit zu erreichen und die gesunde Lebensspanne eine Individuums zu verlängern durch „intervenierende biogerontologische Forschung”. Der wissenschaftliche und moralische Diskurs um diesen umstrittenen wissenschaftlichen Bereich wird hier aufgezeichnet, gefolgt von einem normativen Argument, welches eine „starke” deliberativ-demokratische Kontrolle über die Forschung zur menschlichen Lebensverlängerung befürwortet. Dieser Vorschlag vereinigt Erkenntnisse aus Begutachtungen konstruktiver und partizipatorischer Technologie, sowie von vorgelagerter Einbeziehung der Öffentlichkeit und aus rückblickender Analyse, um ein Programm für partizipatorische Ansätze, welche einen wechselseitigen Dialog zwischen der wissenschaftlichen und der Perspektive der Bürger ermutigt, zu umreißen und um langfristig deliberativ-demokratisches Regieren dieses sich entwickelnden Bereichs zu fördern.
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I would like to thank Liam Heaphy for his comments on a previous draft and Laurent Fouillé and Jan Fisher for their help in translating the abstract.
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Cotton, M. Discourse, upstream public engagement and the governance of human life extension research. Poiesis Prax 7, 135–150 (2010). https://doi.org/10.1007/s10202-009-0072-8
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DOI: https://doi.org/10.1007/s10202-009-0072-8