Skip to main content
Log in

Can it be a 'sin' to understand disease? On 'genes' and 'eugenics' and an 'unconnected connection'

  • Published:
Medicine, Health Care and Philosophy Aims and scope Submit manuscript

Abstract

Particularly, but not exclusively, in Germany, concerns are uttered as to the consequences of modern biotechnological advances and their range of applications in the field of human genetics. Whereas the proponents of this research are mainly focussing on the possible knowledge that could be gained by understanding the causes of developmental processes and of disease on the molecular level, the critics fear the beginnings of a new eugenics movement. Without claiming a logical relationship between genetic sciences and eugenics movements, it is nevertheless suggested in this article that a connection between both can become established when the distinction between scientifically validated statements on one hand and guiding hypotheses and assumptions on the other hand is blurred, as is observed particularly when scientists report their results to the public. This claim is demonstrated in comparisons between the current state of scientific knowledge on the role of genes in development and causation of diseases, and the way this is presented to the public. It is required that a debate on biotechnology should include reflections on the validity of claims made by scientists.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Similar content being viewed by others

References

  • Abbott, A.: 1999, 'A post–genomic challenge: Learning to read patterns of protein synthesis', Nature 402, 715–720.

    Google Scholar 

  • Alexander, R.: 1987, The Biology of Moral Systems. New York: de Gruyter.

    Google Scholar 

  • Barker, D.J.P.: 2001, 'A new model for the origins of chronic disease', Medicine, Health Care and Philosophy 4, 31–35.

    Google Scholar 

  • Bayertz, K. (ed.): 1993, Evolution und Ethik. Stuttgart: Reclam.

    Google Scholar 

  • Bishop, J.E. and M. Waldholz: 1991, Landkarte der Gene: Das Genomprojekt. München: Droemer Knaur.

    Google Scholar 

  • Bodmer, W. and R. McKie: 1995, The Book of Man; The Human Genome Project and the Quest to Discover our Genetic Heritage. New York: Scribner.

    Google Scholar 

  • Chorover, S.: 1982, Die Zurichtung des Menschen. Frankfurt/ New York: Campus Verlag.

    Google Scholar 

  • Dawkins, R.: 1982, The Extended Phenotype. Oxford: Freeman.

    Google Scholar 

  • Dawkins, R.: 1989, The Selfish Gene. Oxford: Oxford Univ. Press (extended edition of the first edition from 1976).

    Google Scholar 

  • Dulbecco, R.: 1986, 'A turning point in cancer reseach: Sequencing the human genome', Science 237, 1055–1056.

    Google Scholar 

  • Griffiths, P.E. and E.M. Neumann–Held: 1999, 'The many faces of the gene', BioScience 49, 656–662.

    Google Scholar 

  • Gutmann, M., P. Janich and E.M. Neumann–Held (guest editors) (1998): 'Species concepts and biodiversity', Theory in Bioscience 117, 201ff.

  • Hare, R.M.: 1992, Moralisches Denken. Frankfurt/M.: Suhrkamp (first edition of the original text: 1981).

    Google Scholar 

  • Heutink, P. et al.: 1992, 'A gene subject to genomic imprinting and responsible for hereditary paragangliomas maps to chromosome 11q23–qter', Human Molecular Genetics 1, 7–10.

    Google Scholar 

  • Jablonka, E. and E. Szathmary: 1995, 'The evolution of information storage and heredity', Trends in Ecology and Evolution 10, 206–211.

    Google Scholar 

  • Keller, E.F.: 2000, 'Is there an organism in this text?', in: P. Sloan (ed.), Controlling Our Destinies (Notre Dame) (in press).

  • Kevles, D.J.: 1993, 'Die Geschichte der Genetik und Eugenik', in: D.J. Kevles and L. Hood (eds.), Der Supercode: Die genetische Karte des Menschen. München: Artemis & Winkler, pp. 13–47.

    Google Scholar 

  • Kollek, R.: 1994, 'Der Gral der Genetik', Mittelweg 36 – Zeitschrift des Hamburger Instituts für Sozialforschung 3, 5–14.

    Google Scholar 

  • Kollek, R.: 1996, 'Metaphern, Strukturbilder, Mythen. Zur symbolischen Bedeutung des menschlichen Genoms', in: L.N. Trallori (ed.), Die Eroberung des Lebens. Wien: Verlag für Gesellschaftskritik, pp. 137–153.

    Google Scholar 

  • Laubichler, M.D.: 1999, 'Frankenstein in the land of Dichter and Denker', Science 286, 1859–1860.

    Google Scholar 

  • Lewontin, R.: 1992, 'The dream of the human genome', The New York Review of Books Mai 28, pp. 31–40.

    Google Scholar 

  • Nesse, R: 2001, 'On the difficulty of defining disease: A Darwinian perspective', Medicine, Health Care and Philosophy 4, 37–46.

    Google Scholar 

  • Neumann–Held, E.M.: 1996, 'Die moderne Biologie auf der Suche nach dem 'Heiligen Gral'', in: R. Seising and T. Fischer (eds.), Wissenschaft und Öffentlichkeit. Frankfurt/M.: P. Lang, pp. 135–159.

    Google Scholar 

  • Neumann–Held, E.M.: 1998, 'Jenseits des 'genetischen Weltbildes'', In: E.–M. Engels, T. Junker and M. Weingarten (eds.), Ethik der Biowissenschaften. Berlin: VWB, pp. 261–280.

    Google Scholar 

  • Neumann–Held, E.M.: 1999a, 'The gene is dead – long live the gene: Conceptualizing genes the constructionist way', in: P. Koslowski (ed.), Sociobiology and Economics. The Theory of Evolution in Biological and Economic Thinking. Berlin: Springer, pp. 105–137.

    Google Scholar 

  • Neumann–Held, E.M.: 1999b, 'Von Genen, Merkmalen und Kontexten. Eine philosophisch–wissenschaftstheoretische Analyse zum Begriff der 'genetischen Verursachung', in: T. Braun and M. Elstner (eds.), Gene und Gesellschaft. Heidelberg: Deutsches Krebsforschungszentrum, pp. 85–94.

    Google Scholar 

  • Neumann–Held, E.M.: 2000, 'Let's talk about genes. The process molecular gene concept and its context', in: S. Oyama, P. Griffiths and R. Gray (eds.), Cylces of Contingencies. Cambridge, MA: MIT Press (in press).

    Google Scholar 

  • Nijhout, H.F. and S.M. Paulsen: 1997, 'Developmental models and polygenic characters', American Naturalist 149, 394–405.

    Google Scholar 

  • Rehmann–Sutter, C.: 1999, 'Das Jahrhundert der Genetik und der homo geneticus', Novalis 11, 11–14.

    Google Scholar 

  • Rehmann–Sutter, C.: 2000, 'Die Interpretation genetischer Daten – Vorwort zu einer genetischen Hermeneutik', in: J. Mittelstraß (ed.), Die Zukunft des Wissens. Vorträge und Kolloquien, XVIII. Deutscher Kongress für Philosophie in Konstanz. Berlin: Akademie Verlag (in press).

    Google Scholar 

  • Rehmann–Sutter, C. and E. Neumann–Held: 1999, 'Optimierung der menschlichen Natur durch Gentherapie?', Neue Zürcher Zeitung (23/24 January), 59.

  • Ruse, M.: 1993, 'Noch einmal: Die Ethik der Evolution', in: K. Bayertz (ed.), Evolution und Ethik. Stuttgart: Reclam, pp. 153–167.

    Google Scholar 

  • Scriver, C.R. and P.J. Waters: 1999, 'Monogenetic traits are not simple. Lessons from phenylketonuria', Trends in Genetics 15, 267–272.

    Google Scholar 

  • Smith, K.: 2001, 'A disease by any other name: Musings on the concept of a genetic disease', Medicine, Health Care and Philosophy 4, 19–30.

    Google Scholar 

  • Sloterdijk, P.: 1999, Regeln für den Menschenpark. Ein Antwortschreiben zum Brief über den Humanismus – die Elmauer Rede', DIE ZEIT Nr. 38, 16. September, pp. 15–21.

    Google Scholar 

  • Strachan, T. and A.P. Read: 1996, Molekulare Humangenetik. Heidelberg et al.: Spektrum Akademischer Verlag.

    Google Scholar 

  • Vogel, C.: 1993: 'Soziobiologie und die moderne Reproduktionstechnologie', In: K. Bayertz (ed.): Evolution und Ethik. Stuttgart: Reclam, pp. 199–219.

    Google Scholar 

  • Voland, E. (ed.): 1992, Fortpflanzung: Natur und Kultur im Wechselspiel. Frankfurt/M.: Suhrkamp.

    Google Scholar 

  • Wagner, G.: 1988, 'The vexing role of replicators in evolutionary change', Biology and Philosophy 3, 232–236.

    Google Scholar 

  • Wagner, G.: 1990, 'What has survived of Darwin's Theory? The domestication of replicators: A neo–Darwinian commentary on the concept of replicator selection', Evolutionary Trends in Plants 4, 71–73.

    Google Scholar 

  • Walters, L.R. and J.G. Palmer: 1997, The Ethics of Human Therapy. New York, Oxford: Oxford University Press.

    Google Scholar 

  • Weingart, P., J. Kroll and K. Bayertz: 1996, Rasse, Blut und Gene. Geschichte der Eugenik und Rassenhygiene in Deutschland, 2nd edn. Frankfurt/M.: Suhrkamp.

    Google Scholar 

  • Williams, G.C.: 1966, Adaptation and Natural Selection. Princeton, N.J.: Princeton University Press.

    Google Scholar 

  • Wilson, E.O.: 1998, Die Einheit des Wissens. Berlin: Siedler.

    Google Scholar 

  • Wolf, U.: 1995, 'The genetic contribution to the phenotype', Hum. Genet. 95, 127–148.

    Google Scholar 

  • Wolf, U.: 1997, 'Identical mutations and phenotyopic variation', Hum. Genet. 100, 305–321.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Rights and permissions

Reprints and permissions

About this article

Cite this article

Neumann-Held, E.M. Can it be a 'sin' to understand disease? On 'genes' and 'eugenics' and an 'unconnected connection'. Med Health Care Philos 4, 5–17 (2001). https://doi.org/10.1023/A:1009974111171

Download citation

  • Issue Date:

  • DOI: https://doi.org/10.1023/A:1009974111171

Navigation