Abstract
In this paper we will examine some ethical aspects of the role that computers and computing increasingly play in new genetics. Our claim is that there is no new genetics without computer science. Computer science is important for the new genetics on two levels:(1) from a theoretical perspective, and (2) from the point of view of geneticists practice. With respect to (1), the new genetics is fully impregnate with concepts that are basic for computer science. Regarding (2), recent developments in the Human Genome Project (HGP) have shown that computers shape the practices of molecular genetics; an important example is the Shotgun Method's contribution to accelerating the mapping of the human genome. A new challenge to the HGP is provided by the Open Source Philosophy (I computer science), which is another way computer technologies now influence the shaping of public policy debates involving genomics.
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References
Barr, 2001. Y. Benkler Coase's Penguin, or, Linux and the Nature of the Firm. Yale Law Journal, 112: 369, 2002-2003. Accessed from http://www.benkler.org/CoasesPenguin.pdf 16 February 2004.
F. Bosnack. Information, thermodinamique, vie et pensée. Gauthiers-Villars, Pais, 1961.
M. Castells. Informationalism and the Network Society, In P. Himanen, editor, The Hacker Ethic and the Spirit of the information Age, pp. 155–178. London, Vintage, 2001.
R. Chadwick. The Icelandic database-Do Modern Times Need Modern Saga? British Medical Journal, 319: 441–444, 1999.
G. Corbellini. La definizione informazionale della specifi-cità biologica. In B. Continenza, and E. Gagliasso, editors, L'Informazione nelle Scienze dalla Vita, pp. 66–99 FrancoAngeli, Milano, 1998.
K. Cukier. Open Source Biotech. Can a Non-Propietary Approach to Intellectual Property Work in the Life Sciences, The Acumen Journal of Life Sciences, 1(3), 2003.
E. Fox Keller. Refiguring Life: Metaphors of Twentieth Century Biology (The Welleck Lectures). New York, Columbia University Press, 1995.
D. Gezelter. Catalyzing Open Source Development in Science: The OpenScience Project, 1999. Accessed from http:// www.openscience.org/talks/bnl/img0.htm 3 April 2003.
D. Holdsworth. The Ethics of the 21st Century Bioinformatics: Ethical Implications of the Vanishing Distinction between Biological Information and Other Information. In A.K. Thompson and R. Chadwick, editors, Genetic Information. Acquisition, Access and Control, pp. 85–98. Kluwer/Plenum, New York, 1999.
S. Holm. There is Nothing Special about Genetic Information. In A.K. Thompson, and R. Chadwick, editors, Genetic Information. Acquisition, Access and Control, pp.97–104. Kluwer/Plenum, New York, 1999.
HUGO Ethics Committee. Statement on Human Genomic Databases. Eubios Journal of Asian and International Bioethics 13: 99, 2003.
M. Kaku. Visions. How Science Will Revolutionize the Twenty-First Century. Oxford University Press, Oxford, 1998.
B. Koerner. Attacking Venter Capitalism. Wired Magazine, 6 (6), 2003.
R. Lewontin, The Doctrine of DNA, Biology as Ideology. Penguin, London, 1999.
R. Lewontin. It Ain't Necessarily So. Granta, London, 2000.
A. Marturano. Molecular Biologists as Hackers of Human Data: Rethinking IPR for Bioinformatics Research. Journal of Information, Communication & Ethics in Society, 1 (4), 207–216, 2003.
J.F. Merz, G.E. McGee, and P. Sankar. 'Iceland Inc.'?: On the Ethics of Commercial Population Genomics. Social Science and Medicine, 58: 201–209, 2004.
D. Nelkin and M.S. Lindee. The DNA Mystique: The Gene as a Cultural Icon. W.H. Freeman and co., New York, 1995.
G. Palsson, and P. Rabinow. Iceland: The case of a National Human Genome Project. Anthropology Today, 15(5): 14–18, 1999.
G. Palsson and P. Rabinow. The Icelandic Genome Debate. Trends in Biotechnology, 19: 166–171, 2001.
P. Rabinow. Making PCR: A Story of Biotechnology. Chicago University Press, Chicago, 1996.
P. Rabinow. French DNA. Trouble in Purgatory. Chicago University Press, Chicago, 2000.
E. SchrSchrödinger. What is Life. The Physical Aspect of the Living Cell. Cambridge University press, Cambridge, 1944.
R. Stallman. Why Software Should Not Have Owners, 1994. Accessed from http://www.gnu.org./philosophy/whyfree.html 03 April 2003.
J. Sulston. Heritage of Humanity. Le Monde Diplomatique. December, 2002. Accessed form http://mondediplo.com/ 2002/12/15genome 15 February 2004.
J. Thonnard. The VSNS-BCD Biocomputing Course. BEN News, Belgian EMBnet Node Biocomputing Quarterly Newsletter, 4, (3–4), 1996.
L. Torvalds. What makes Hackers Tick? a.k.a. Linus's Law. In P. Himanen, editor, The Hacker Ethic and the Spirit of the Information Age, pp. XIII–XVIII. London, Vintage, 2001.
00/sequence_primer.shtml} 4 April 2003.
M. Vicedo. The Human Genome Project: Towards an Analysis of the Empirical, Ethical and Conceptual Issues Involved. Biology and Philosophy, 7: 255–277, 1992.
J.D. Watson The Double Helix, 2nd edn. Penguin Books, London, 1999.
J.D. Watson and F.H.C. Crick. Molecular Structure of Nucleic Acids. Nature 171: 737–738, 1953.
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Marturano, A., Chadwick, R. How the Role of Computing is Driving New Genetics' Public Policy. Ethics and Information Technology 6, 43–53 (2004). https://doi.org/10.1023/B:ETIN.0000036158.29573.b6
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DOI: https://doi.org/10.1023/B:ETIN.0000036158.29573.b6