Hostname: page-component-848d4c4894-ndmmz Total loading time: 0 Render date: 2024-06-04T18:27:03.502Z Has data issue: false hasContentIssue false
  • English
  • Français

Taking Names: The Ethics of Indirect Recruitment in Research on Sexual Networks

Published online by Cambridge University Press:  01 January 2021

Lewis H. Margolis
Get access Rights & Permissions [Opens in a new window]

Extract

Evaluating the risks and anticipated benefits of medical, behavioral and, social research is a central function of institutional review boards (IRBs). The calculation that IRBs undertake ultimately determines whether a particular research project involving human participants is permitted to proceed. In medical research the physical harms and even the anticipated benefits of a new procedure or drug are often apparent and quantifiable. In contrast, for social/behavioral research that may involve probing the most intimate feelings, thoughts, and actions of participants, the weighing of risks and anticipated benefits, the calculation of possible harms and the acceptability of that harm require a more intense level of scrutiny.

Even the early step of identifying and recruiting participants for a research endeavor may potentially cause harm, making participant selection a focus of IRB analysis.

Type
Article
Information
Journal of Law, Medicine & Ethics , Volume 28 , Issue 2 , Summer 2000 , pp. 159 - 164
Copyright
Copyright © American Society of Law, Medicine and Ethics 2000

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

“Trials of War Criminals before the Nuremberg Military Tribunals under Control Council Law,” 2, no. 10 (Washington, D.C.: U.S. Government Printing Office, 1949): 181–82.Google Scholar
18th World Medical Assembly, “World Medical Association Declaration of Helsinki,” JAMA, 277 (1997): 925–26.Google Scholar
Seal, D.W. Bloom, F.R. and Somlai, A.M., “Conducting Qualitative Sex Research in Applied Field Settings: Real-Life Dilemmas,” Health Education & Behavior, 27 (2000): 10–23.CrossRefGoogle Scholar
Id.Google Scholar
Udry, J.R. and Bearman, P.S., “New Methods for New Research on Adolescent Sexual Behavior,” in New Perspectives on Adolescent Risk Behavior (Cambridge: Cambridge University Press, 1998).Google Scholar
45 C.F.R. §46. 101–46.409 (1999).CrossRefGoogle Scholar
Office for Protection from Research Risks, Protecting Human Research Subjects (Washington, D.C.: USDHHS, 1993): at 3–8.Google Scholar
Supra note 1.Google Scholar
Supra note 2.Google Scholar
Beauchamp, T.L. and Children, J.F., Principles of Biomedical Ethics (New York: Oxford University Press, 1994).Google Scholar
Supra note 2 at 926.Google Scholar
Bayer, R. and Toomey, K.E., “HIV Prevention and the Two Faces of Partner Notification,” American Journal of Public Health, 82 (1992): 1158–64.CrossRefGoogle Scholar
Supra note 5.Google Scholar
Id. at 3–1.Google Scholar
Kelman, H.C., “Privacy and Research with Human Beings,” Journal of Social Issues, 33 (1977): at 169.CrossRefGoogle Scholar
Id. at 193.Google Scholar
See, for example, Roberts, J.M. and Gregor, T., “Privacy: A Cultural View,” Nomos, 13 (1971): 199–225; Mead, M., “Neighborhoods and Human Needs,” Ekistics, 123 (1966): 124–26; Greenwalt K., “Privacy,” in Reich W., ed., Encyclopedia of Bioethics, no.3 (New York: Free Press, 1978): 1356–64.Google Scholar
Caplan, A.L., “On Privacy and Confidentiality in Social Science Research,” in Beauchamp, T.L. et al., eds., Ethical Issues in Social Science Research (Baltimore: Johns Hopkins University Press, 1982).Google Scholar
Mechanic, D., “The Functions and Limitations of Trust in the Provision of Medical Care,” Journal of Health Politics, Policy and Law, 23 (1998): at 662.Google Scholar
Supra note 6, at 3–4.Google Scholar
Supra note 6.Google Scholar
Supra note 18.Google Scholar
Sorenson, J.R. et al., “Proband and Parent Assistance in Identifying Relatives for Cystic Fibrosis Carrier Testing,” American Journal of Medical Genetics, 63 (1996): 419–25.3.0.CO;2-M>CrossRefGoogle Scholar
Boruch, R.F. and Cecil, J.S., Assuring the Confidentiality of Social Research Data (Philadelphia: University of Pennsylvania Press, 1979).Google Scholar
Warwick, D.P., “Types of Harm in Social Research,” in Beauchamp, supra note 18, at 111.Google Scholar
Supra notes 1 and 2.Google Scholar
Supra note 25.Google Scholar
Appelbaum, D. and Lawton, S.V., Ethics and the Professions (Englewood Cliffs: Prentice Hall, 1990).Google Scholar
Levine, R.J., Ethics of Regulation and Clinical Research, second edition (Baltimore: Urban & Schwarzenberg, 1986) at 426.Google Scholar
Supra note 3.Google Scholar
Feinberg, J., Social Philosophy (Englewood Cliffs: Prentice Hall, 1973).Google Scholar
See, for example, Ventura, S.J. Mathews, T.J. and Curtin, S.C., “Declines in Teenage Birth Rates, 1991–97: National and State Patterns,” National Vital Statistics Reports, 47, no. 12 (Hyattsville: National Center for Health Statistics, 1998); Anderson D.C., “The Mystery of the Falling Crime Rate,” American Prospect, 8, no. 32 (1997): 49–55.Google Scholar