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The Ethics of Biomedical Big Data

Brent Daniel Mittelstadt and Luciano Floridi, eds. 2016, Springer International Publishing (Cham, Switzerland, 978-3-319-33523-0, 480 pp.)

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Abstract

The availability of diverse sources of data related to health and illness from various types of modern communication technology presents the possibility of augmenting medical knowledge, clinical care, and the patient experience. New forms of data collection and analysis will undoubtedly transform epidemiology, public health, and clinical practice, but what ethical considerations come in to play? With a view to analysing the ethical and regulatory dimensions of burgeoning forms of biomedical big data, Brent Daniel Mittelstadt and Luciano Floridi have brought together thirty scholars in an edited volume that forms part of Springer’s Law, Governance and Technology book series in a collection titled The Ethics of Biomedical Big Data. With eighteen chapters partitioned into six carefully devised sections, this volume engages with core theoretical, ethical, and regulatory challenges posed by biomedical big data.

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References

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  • Christen, M., J. Domingo-Ferrer, B. Draganski, T. Spranger, and H. Walter. 2016. On the compatibility of big data driven research and informed consent: The example of the Human Brain Project. In The ethics of biomedical big data, edited by B.D. Mittelstadt and L. Floridi, 199–218. Cham, Switzerland: Springer International Publishing.

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  • Mittelstadt, B.D., and L. Floridi. 2016b. Introduction. In The ethics of biomedical big data, edited by B.D. Mittelstadt and L. Floridi, 1–13. Cham, Switzerland: Springer International Publishing.

  • Mittelstadt, B.D., and L. Floridi, eds. 2016c. The ethics of biomedical big data. Cham, Switzerland: Springer International Publishing.

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  • Schickhardt, C., N. Hosley, and E. Winkler. 2016. Researchers’ duty to share pre-publication data: From the prima facie duty to practice. In The ethics of biomedical big data, edited by B.D. Mittelstadt and L. Floridi, 309–337. Cham, Switzerland: Springer International Publishing.

  • Tractenberg, R.E. 2016. Creating a culture of ethics in biomedical big data: Adapting “Guidelines for Professional Practice” to promote ethical use and research practice. In The ethics of biomedical big data, edited by B.D. Mittelstadt and L. Floridi, 367–393. Cham, Switzerland: Springer International Publishing.

  • Tupasela, A., and S. Liede. 2016. State responsibility and accountability in managing big data in biobank research: Tensions and challenges in the right of access to data. In The ethics of biomedical big data, edited by B.D. Mittelstadt and L. Floridi, 257–275. Cham, Switzerland: Springer International Publishing.

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  • Vayena, E., and U. Gasser. 2016. Big data governance: Solidarity and the patient voice. In The ethics of biomedical big data, edited by B.D. Mittelstadt and L. Floridi, 17-39. Cham, Switzerland: Springer International Publishing.

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Correspondence to Paul H. Mason.

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Mason, P.H. The Ethics of Biomedical Big Data . Bioethical Inquiry 14, 571–574 (2017). https://doi.org/10.1007/s11673-017-9812-y

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  • DOI: https://doi.org/10.1007/s11673-017-9812-y

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