Disclosure Dilemmas: Ethics of Genetic Prognosis After the 'right to Know/not to Know' DebateChristoph Rehmann-Sutter, Hansjakob Müller This volume draws on an expanded field of bioethical, sociological and anthropological research, to set a new agenda for discussing the ethics of disclosing prognostic genetic information. |
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Disclosure Dilemmas: Ethics of Genetic Prognosis After the 'Right to Know ... HANSJAKOB. MLLER No preview available - 2020 |
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abortion Alzheimer's disease amniocentesis aneuploidy APOE aunt autonomy biobanks bioethics breast cancer carrier cent child choice chromosome claim clients clinical communication conception concerned context counsellee court decision disclosure dilemmas discussion disorder doctor ethical example experience factors family history family members fetus future gene genetic counselling genetic counsellors genetic information genetic risk genetic test geneticist genome hereditary Human Genetics Human Genome Organisation Huntington's disease implications individual informed consent inherited interpretation involved issues Journal medical genetics medicine molecular moral mother mutation newborn screening nondirectiveness options parents patient person perspective physician possible potential practice predictive genetic pregnancy pregnant women prenatal diagnosis prenatal risk assessment prenatal testing prevent problem professional question Rachel Rehmann-Sutter relation relatives relevant responsibility right to know risk figure scan Scully situation social Syndrome test results treatment ultrasound understanding University woman