Imagining a Neuroqueer Technoscience

Authors

DOI:

https://doi.org/10.26522/ssj.v16i2.3415

Keywords:

crip technoscience, human-computer interaction, neuroqueer studies, science and technology studies, disability justice

Abstract

The rise of mobile communication applications and technologies presents promising therapeutic and accessibility-related interventions for neurodivergent users. However, top-down approaches in human-computer interaction (HCI) research often prioritize the needs and goals of allistic and neurotypical researchers and secondary stakeholders in media creation. Furthermore, media technologies are created with a one-size-fits-all approach, with the intent of rehabilitating or curing neurodivergent ways of being. This article imagines neuroqueer technoscience as an extension of crip technoscience that amplifies new styles of relationality, self-expression, and communication practices within the development of information and communication technologies (ICTs). Using an interdisciplinary framework informed by crip technoscience and human-computer interaction research, the author presents three tenets for mediating neuroqueer subjectivities.

References

Alper, M. (2017). Giving voice: Mobile communication, disability, and inequality. MIT Press.

Alper, M. (2021). Critical media access studies: Deconstructing power, visibility, and marginality in mediated space. International Journal of Communication, 15(22), 840-861.

Bailey, M. (2021). Misogynoir transformed: Black women’s digital resistance. NYU Press.

Bascomb, J. (2011, October 5). Quiet hands. Just Stimming… [Weblog]. https://juststimming.wordpress.com/2011/10/05/quiet-hands/

Benjamin, R. (2019). Race after technology: Abolitionist tools for the new jim code. Polity.

Bennett, C. L., & Rosner, D. K. (2019). The promise of empathy: Design, disability, and knowing “the other.” Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems, 1-13. DOI: 10.1145/3290605.3300528

Britton, R. L., & Paehr, I. (2021). Con(fuse)ing and re(fuse)ing barriers. A Peer-Reviewed Journal About, 10(1), 70-84.

Brown, L. X. Z. (2020, May 11). Living archive & repository for the Judge Rotenberg Center’s abuses. Autistichoya. https://autistichoya.net/judge-rotenberg-center/

Chandler, E., Ignagni, E., & Collins, K. (2021). Communicating access, accessing communication. Studies in Social Justice, 15(2), 230-238.

Chun, W. H. K. (2011). Programmed visions: Software and memory. MIT Press.

Clare, E. (2017). Brilliant imperfection: Grappling with cure. Duke University Press.

Costanza-Chock, S. (2020). Design justice: Community-led practices to build the worlds we need. MIT Press.

Couldry, N., & Mejias, U. A. (2019). Data colonialism: Rethinking big data’s relation to the contemporary subject. Television & New Media, 20(4), 336-349.

Disability Visibility Project. (2019, October 26). Call for stories: #PowerToLive… [Weblog]. https://disabilityvisibilityproject.com/2019/10/26/call-for-stories-powertolive/

Dokumaci, A. (2019). A theory of micro-activist affordances: Disability, disorientations, and improvisations. South Atlantic Quarterly, 118(3), 491-519.

Dolmage, J. T. (2017). Academic ableism: Disability and higher education. University of Michigan Press.

Egner, J. E. (2018). “The disability rights movement was never mine:” Neuroqueer disidentification. Gender & Society, 33(1), 123-147.

Ellcessor, E. (2016). Restricted access: Media, disability, and the politics of participation. NYU Press.

Erevelles, N., & Minear, A. (2010). Unspeakable offenses: Untangling race and disability in discourses of intersectionality. Journal of Literary and Cultural Disability Studies, 4(2), 127-145.

Gardner, P., Surlin, S., Akinyemi, A., Rauchberg, J. S., Zheng, R., McArthur, C., Pappaiaonnou, A., & Hao, Y. (2021). Designing a dementia-informed, accessible, co-located, gaming platform for diverse older adults with dementia, family, and carers. In Q. Gao & J. Zhao (Eds.), Human aspects of it for the aged population (pp. 58-77). Springer.

Goodley, D., Lathom, R., & Runswick Cole, K. (2014). Posthuman disability studies. Subjectivity, 7, 342-361.

Gotkin, K. (2019). Crip club vibes: Technologies for new nightlife. Catalyst: Feminism, Theory, Technoscience, 5(1), 1-7. https://doi.org/10.28968/cftt.v5i1.30477

Gotkin, K., Hickman, L., Hamraie, A. & Critical Design Lab. (2020). Remote access: Crip nightlife participation guide. Critical Design Lab. https://www.mapping-access.com/remote-access

Grace, I. (2013, October 30). Are you neuroqueer (part 2)? NeuroQueer. http://neuroqueer.blogspot. com/2013/10/are-you-neuroqueer-part-2.html

Hampton, L. M. (2021). Black feminist musings on algorithmic oppression. FAccT ‘21: Proceedings of the 2021 ACM Conference on Fairness, Accountability, and Transparency, 1-11. DOI: 10.1145/3442188.3445929.

Hamraie, A. (2017). Building access: Universal design and the politics of disability. University of Minnesota Press.

Hamraie, A., & Fritsch, K. (2019). Crip technoscience manifesto. Catalyst: Feminism, Theory, Technoscience, 5(1), 1-33. https://doi.org/10.28968/cftt.v5i1.29607

Hedva, J. (2015). Sick woman theory. Mask Magazine. http://www. maskmagazine. com/not-again/struggle/sick-woman-theory

Hughes, J. M. F. (2016). Nothing about us without us: Increasing neurodiversity in disability and social justice advocacy groups. Autistic Self Advocacy Network. https://autisticadvocacy. org/wp-content/uploads/2016/06/whitepaper-Increasing-Neurodiversity-in-Disability-and-Social-Justice-Advocacy-Groups.pdf

Indigenous Action Media. (2014). Accomplices not allies. https://www.indigenousaction.org/wp-content/uploads/Accomplices-Not-Allies-print. pdf

Kafer, A. (2013). Feminist, queer, crip. Indiana University Press.

Kim, E. (2017). Curative violence: Rehabilitating gender, disability, and sexuality in modern Korea. Duke University Press.

Lazar, A., Edasis, C., & Piper, A. M. (2017). A critical lens on dementia and design in hci. CHI ‘17: Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems, 2175-2188. DOI: 10. 1145/3025453. 3025522.

Lebrecht, J., & Newnham, N. (Directors). (2020). Crip Camp [Documentary film]. Higher Ground Productions.

Lewis, T. (2021, January 1). January 2021 working definition of ableism. Talila A Lewis [Weblog]. https://www. talilalewis.com/blog/january-2021-working-definition-of-ableism

McIlwain, C. (2019). Black software: The internet and racial justice, from the afronet to black lives matter. Oxford University Press.

Montgomery, C. (2001). Critic of the dawn. Ragged Edge Online, 2. http://www. raggededgemagazine.com/0501/0501cov.htm

Nakamura, L. (2013). Cybertypes: Race, ethnicity, and identity on the Internet. Routledge.

Noble, S. U. (2018). Algorithms of oppression: How search engines reinforce racism. New York University Press.

Ono, K. A. (2009). Critical/cultural approaches to communication. In W. F. Eadie (Ed.), 21st century communication: A reference handbook (pp. 1-12). SAGE.

Piepzna-Samarasinha, L. L. (2018). Care work: dreaming disability justice. Arsenal Pulp Press.

Roscigno, R. (2019). Neuroqueerness as gugitive practice: Reading against the grain of applied behavioral analysis scholarship. Educational Studies, 55(4), 405-419.

Sedgwick, M. (2021). Review of: Crip camp. Film. James LeBrecht and Nicole Newnham. Higher Ground Productions. 2020. Disability Studies Quarterly, 41(1). https://dsq-sds.org/article/view/7843/5878

Sequenzia, A. (2015, February 11). My thoughts on aba. AWN Network. https://awnnetwork. org/my-thoughts-on-aba/

Shew, A. (2020). Ableism, technoableism, and future ai. IEEE Technology and Society Magazine, 40-50. https://ieeexplore.ieee.org/stamp/stamp.jsp?arnumber=9035527&casa_token=xG2XiRNtQTUAAAAA:9yZRmvVNcIVKaXmjUajq69ZF3RD_FoykXo3Htaz6U8fiT9shj_4gm7FYc8Y3Ls1xu2nHORw&tag=1

Sins Invalid. (2019). Skin, tooth, and bone: The basis of the movement is our people – A disability justice primer (2nd Ed.). Sins Invalid.

Smilges, J. L. (2020). Bad listeners. Peitho, 23(1). https://cfshrc.org/article/bad-listeners/

Spiel, K., Gerling, K., Bennett, C. L., Brulé, E., Williams, R. M., Rode, J., & Mankoff, J. (2020). Nothing about us without us: Investigating the role of critical disability studies within hci. Extended Abstracts of the 2020 CHI Conference on Human Factors of Computing Systems, 1-8. DOI: 10.1145/3334480.3375150.

Stramondo, J. (2019). The distinction between curative and assistive technology. Science and Engineering Ethics, 25(4), 1125-1145.

Wacjman, J. (1991). Feminism confronts technology. Pennsylvania State University Press.

Walker, N. (2015, May 4). Neuroqueer: An Introduction. NeuroQueer. http://neuroqueer.blogspot. com/2015/05/neuroqueer-introduction-by-nick-walker.html

Williams, R. M. (2018). Autonomously autistic: Exposing the locus of autistic pathology. Canadian Journal of Disability Studies, 7(2), 60-82.

Williams, R. M. (2019). Metaeugenics and metaresistance: From manufacturing the ‘includable body’ to walking away from the nroom closet. Canadian Journal of Children’s Rights/Revue Canadienne des Droits des Enfrants, 6(1), 60-77.

Williams, R. M., & Gilbert, J. E. (2020). Perservations of the academy: A survey of wearable technologies applied to autism intervention. International Journal of Human-Computer Studies, 143, 1-20.

Williams, R. M., Ringland, K., Gibson, A., Mandala, M., Maibaum, A., & Guerreiro, T. (2021). Articulations toward a crip HCI. Interactions, 28(3), 28-37.

Yergeau, M. R. (2018). Authoring autism: On rhetoric and neurological queerness. Duke University Press.

Ymous, A., Spiel, K., Keyes, O., Williams, R. M., Good, J., Hornecker, E., & Bennett, C. L. (2020). “I am just terrified for my future” – Epistemic violence in disability related technology research. CHI ‘20 Extended Abstracts, 1-16. DOI: 10.1145/3334480.3381828.

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Published

2022-03-11

Issue

Vol. 16 No. 2 (2022): Autism_Media_Social Justice

Section

Autism_Media_Social Justice

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