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  1.  2
    Research Misconduct Case Oversight.A. Anonymous - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
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  2.  6
    Van Rensselaer Potter, Climate Change, and Justice.James Dwyer - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
    When Van Rensselaer Potter coined the English word “bioethics”, he envisioned a field that would bring together biological understanding and ethical values to address global environmental problems. Following Potter’s broad vision of bioethics, I explore ethical ideas that we need to address climate change. However, I develop and emphasize ideas about justice and responsibility in ways that Potter did not. At key points, I contrast the ideas that I develop with those in Potter’s work, but I try to avoid scholarly (...)
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  3.  2
    Community-Level Vulnerabilities and Political Field Experiments.Cara Evans - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
    Most research ethics literature on vulnerability focuses on the vulnerability of individuals and populations defined by the potential vulnerability of their members. However, research involving human participants does not always take the individual as the unit of analysis: political experiments may apply an intervention to a community as a whole. This paper argues that community-level vulnerability is not reducible to the sum of the vulnerabilities of community members, and that there is thus a need to consider vulnerability at the community (...)
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  4.  3
    Recognizing Racism in Bioethics as the Subject of Bioethical Concern.Charlene Galarneau - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
    Attending to racism and US bioethics raises the question of whether and how racism in bioethics has been the subject of bioethical scrutiny. Bioethics has certainly brought its analytical tools to bear on racist aspects of clinical care and biomedical research. But has bioethics studied racism in bioethics as its subject? A close examination of relevant reports, articles, and books in the US bioethics literature published in the early days of the field, pre-2000, shows mixed findings. In the 1970s, racism (...)
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  5.  2
    Non-Invasive Prenatal Testing for Fetal Whole Genome Sequencing: An Interpretive Critical Review of the Ethical, Legal, Social, and Policy Implications.Hazar Haidar & Renata Iskander - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
    Introduction: Non-invasive prenatal testing allows for genetic testing of a fetus through the analysis of cell-free DNA from the mother’s plasma. NIPT is easy and safe for the fetus, since it only requires a blood draw from the mother and therefore holds no risk of miscarriage. It is considered superior to other prenatal screening tests and can also be performed earlier in the pregnancy. NIPT has the future potential for fetal whole genome sequencing for an expanded range of conditions, such (...)
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  6.  2
    Retaining Hope While Respecting Patients’ Presumed Wishes: How Substituted Judgement Can Help.Natalie Karine Hardy & Nico Nortje - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
    It is not uncommon for families to wait in hopes of receiving test results that show a treatable mutation, such as in the case of lung cancer. Waiting for such test results can distract families from focusing on a patient’s current pain and suffering, especially when families experience heightened emotions and anticipatory grief. The substituted judgement standard can be helpful in resolving ethical dilemmas by encouraging families to think about what decision a patient would have made if competent, thus preventing (...)
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  7.  2
    The Asset of Subjectivity: Applying Mujerista Theology and Family Interest Assessment to Case Analysis.Rebecca Dawn Hood-Patterson - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
    Applying two theories to complex contexts results in a more well-rounded case analysis. This case, involving a Latinx family within pediatrics, requires a multi-faceted approach to better evaluate the culturally specific needs of the patient and the family system. A Mujerista theological approach highlights the subjective nature of family values and lived wisdom. This Mujerista approach adds another dimension, along with a Family Interest Model, for medical decision making.
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  8.  4
    The Case for the Vaccine Passport.Jocelyn Maclure & Keven Bisson - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
    In this critical commentary, we address the egalitarian critique according to which the use of a vaccine passport is unethical because it conflicts with the principle of equality, understood as requiring that citizens ought to be treated in the same way. We argue that this criticism is vulnerable to the levelling-down objection often addressed to some egalitarian theories. We add that the vaccine passport is morally justified if two minimal ethical conditions are satisfied: 1) it must be designed as a (...)
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  9.  2
    Lessons From the COVID-19 Pandemic: A Call to Implement (and Reimagine) Bioethical Principles.Vugar Mammadov & Lala Jafarova - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
    The commentary analyses ethical dilemmas faced by the global community during the coronavirus pandemic. The importance of the intellectual property rights in the context of vaccine distribution is particularly emphasized. The authors highlight bioethical principles – “forgotten” but so significant – in the context of vaccine distribution.
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  10.  3
    Launching the Newfoundland and Labrador Health Research Ethics Authority Act and Reflections on its Current Status.Penny Moody-Corbett & Sharon Buehler - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
    The Health Research Ethics Authority Act was established to ensure that research ethics review of all human health research in the province of Newfoundland and Labrador is conducted by a local, in-province, Research Ethics Board. The HREA Act arose as a result of complaints by patients and family members enrolled in a clinical genetics research study being conducted by a team of researchers from outside the province who failed to provide appropriate clinical follow-up. This review provides a record of the (...)
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  11.  2
    Consent to Research in Madagascar: Challenges, Strategies, and Priorities for Future Research.Elysee Nouvet, Simon Grandjean Lapierre, Astrid Knoblauch, Laurence Baril, Andry Andriamiadanarivo, Mihaja Raberahona, Chiarella Mattern, Lorie Donelle & Jean Rubis Andriantsoa - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
    The ethical conduct of research in any setting hinges on the voluntary and informed consent of research participants. Working towards consent that is truly voluntary and informed, however, is far from straightforward, and requires attention to contextual factors that may complicate achievement of this ideal in specific research settings. This paper is based on Madagascar’s first “Consent complexities in health research in Madagascar” workshop, held in Antananarivo, Madagascar, in October 2018. It identifies a number of challenges encountered by individuals responsible (...)
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  12.  2
    Review Of: Kirsten Jones-Bonofiglio, Health Care Ethics Through the Lens of Moral Distress.Clarisse Paron - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
    Concerns of moral distress in health care have never been more relevant. In her book, Health Care Ethics Through the Lens of Moral Distress, Kristen Jones-Bonofiglio provides a comprehensive review of the effects of moral distress on providers and health care delivery, while highlighting the complexities of making ethical decisions in practice. Jones-Bonofiglio’s thoroughness and use of interdisciplinary, historical, and cultural scholarship makes this book an excellent introductory resource on moral distress for health care providers and researchers alike.
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  13.  4
    Re-Contact Following Withdrawal of Minors From Research.Dimitri Patrinos, Bartha Maria Knoppers, Erika Kleiderman, Noriyeh Rahbari, David P. Laplante & Ashley Wazana - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
    Re-contacting minors enrolled in research upon their reaching the age of majority or maturity to seek their autonomous consent to continue their participation is considered an ethical requirement. This issue has generally been studied in the context of minors who are actively involved in the research. However, what becomes of this issue when the minor has been withdrawn from the research or has been lost to follow-up? May researchers re-contact the minor at the age of majority or maturity under these (...)
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  14.  1
    Truth Telling as an Element of Ethical Behaviour and Professional Commitment in Dentistry: A Case Study Assessing Non-Disclosure Action.Leyla Sadighpour & Greg S. Anderson - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
    Being truthful with patients is a critical foundation of the doctor-patient relationship and is fundamental to development of trust. A professional commitment to truth telling may sometimes contradict other principles of bioethics, which may challenge decision-making for the doctor and/or the treatment team. Practitioners may fail to address all ethical or legal aspects of a case and therefore make inappropriate decisions.
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  15.  10
    Studying Vulnerable Populations Through an Epigenetics Lens: Proceed with Caution.Katie Saulnier, Alison Berner, Stamatina Liosi, Brian Earp, Courtney Berrios, Stephanie O. M. Dyke, Charles Dupras & Yann Joly - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
    Epigenetics – the study of mechanisms that influence and modify gene expression – is providing unique insights into how an individual’s social and physical environment impact the body at a molecular level, particularly in populations that experience stigmatization and trauma. Researchers are employing epigenetic studies to illuminate how epigenetic modifications lead to imbalances in health outcomes for vulnerable populations. However, the investigation of factors that render a population epigenetically vulnerable present particular ethical and methodological challenges. Here we are concerned with (...)
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  16.  1
    Bioethics: “The Science of Survival”?Henri-Corto Stoeklé, Achille Ivasilevitch & Christian Hervé - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (1).
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