Year:

  1.  4
    Informed Consent Should Not Be Required for Apnea Testing and Arguing It Should Misses the Point.Armand H. Matheny Antommaria, William Sveen & Erika L. Stalets - 2020 - American Journal of Bioethics 20 (6):25-27.
    Volume 20, Issue 6, June 2020, Page 25-27.
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  2.  1
    Legal and Ethical Considerations for Requiring Consent for Apnea Testing in Brain Death Determination.Ivor Berkowitz & Jeremy R. Garrett - 2020 - American Journal of Bioethics 20 (6):4-16.
    The past decade has witnessed escalating legal and ethical challenges to the diagnosis of death by neurologic criteria. The legal tactic of demanding consent for the apnea test, if successful, can halt the DNC. However, US law is currently unsettled and inconsistent in this matter. Consent has been required in several trial cases in Montana and Kansas but not in Virginia and Nevada. In this paper, we analyze and evaluate the legal and ethical bases for requiring consent before apnea testing (...)
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  3.  2
    Requiring Consent for Brain-Death Testing: A Perilous Proposal.Joseph Bertino & Jordan Potter - 2020 - American Journal of Bioethics 20 (6):28-30.
    Volume 20, Issue 6, June 2020, Page 28-30.
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  4.  2
    The Case Against Solicitation of Consent for Apnea Testing.Dhristie Bhagat & Ariane Lewis - 2020 - American Journal of Bioethics 20 (6):20-22.
    Volume 20, Issue 6, June 2020, Page 20-22.
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  5.  1
    Patient and Family Descriptions of Ethical Concerns.Hae Lin Cho, Christine Grady, Anita Tarzian, Gail Povar, Jed Mangal & Marion Danis - 2020 - American Journal of Bioethics 20 (6):52-64.
    Ethically challenging situations routinely arise in the course of illness and healthcare. However, very few studies have surveyed patients and family members about their experiences with ethically challenging situations. To address this gap in the literature, we surveyed patients and family members at three hospitals. We conducted a content analysis of their responses to open-ended questions about their most memorable experience with an ethical concern for them or their family member. Participants described 219 unique ethical experiences that spanned many of (...)
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  6.  2
    Can’T Hit Pause? On the Constitutive Elements of Responsible Ventilator Management & the Apnea Test.Kevin M. Dirksen & Lilith Judd - 2020 - American Journal of Bioethics 20 (6):35-37.
    Volume 20, Issue 6, June 2020, Page 35-37.
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  7.  1
    Myopia in Reportability of Ethical Concerns in Healthcare Ethics Consultation.A. Fiester - 2020 - American Journal of Bioethics 20 (6):73-75.
    Volume 20, Issue 6, June 2020, Page 73-75.
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  8.  2
    Response to Open Peer Commentaries “Rethinking the Ethical, Legal, and Clinical Foundations of Informed Consent and Shared Decision-Making for Brain Death Determination”.Jeremy R. Garrett & Ivor Berkowitz - 2020 - American Journal of Bioethics 20 (6):W1-W5.
    Volume 20, Issue 6, June 2020, Page W1-W5.
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  9.  1
    Determining Death and the Scope of Medical Obligations.D. Micah Hester - 2020 - American Journal of Bioethics 20 (6):37-39.
    Volume 20, Issue 6, June 2020, Page 37-39.
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  10.  1
    Taking Family-Centered Care Seriously.Anita Ho - 2020 - American Journal of Bioethics 20 (6):65-67.
    Volume 20, Issue 6, June 2020, Page 65-67.
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  11.  1
    Engaging Patients and Families in the Ethics of Involuntary Psychiatric Care.Katrina Hui, Rachel B. Cooper & Juveria Zaheer - 2020 - American Journal of Bioethics 20 (6):82-84.
    Volume 20, Issue 6, June 2020, Page 82-84.
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  12.  1
    The Apnea Test: Requiring Consent for a Test That is a Self-Fulfilling Prophecy, Not Fit for Purpose, and Always Confounded?Ari R. Joffe - 2020 - American Journal of Bioethics 20 (6):42-44.
    Volume 20, Issue 6, June 2020, Page 42-44.
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  13.  1
    Restoring Trust and Requiring Consent in Death by Neurological Criteria.L. Syd M. Johnson - 2020 - American Journal of Bioethics 20 (6):33-35.
    Volume 20, Issue 6, June 2020, Page 33-35.
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  14.  1
    The Genetic Family as Patient?Bartha Maria Knoppers & Kristina Kekesi-Lafrance - 2020 - American Journal of Bioethics 20 (6):77-80.
    Volume 20, Issue 6, June 2020, Page 77-80.
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  15.  1
    Shared Decision-Making in the Determination of Death by Neurologic Criteria.Alexander A. Kon - 2020 - American Journal of Bioethics 20 (6):30-32.
    Volume 20, Issue 6, June 2020, Page 30-32.
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  16.  1
    Accommodating Apnea Testing Not Death Determination Refusal.Christos Lazaridis - 2020 - American Journal of Bioethics 20 (6):47-49.
    Volume 20, Issue 6, June 2020, Page 47-49.
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  17.  1
    Gaps in Ethics Consultation Support for Patients and Families and Practical Guidance for Future Research or Quality Work Involving These Stakeholders.Hilary Mabel, Sundus Riaz, Marguerite Augustine & Jane Jankowski - 2020 - American Journal of Bioethics 20 (6):75-77.
    Volume 20, Issue 6, June 2020, Page 75-77.
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  18.  1
    Informed Consent for Apnea Testing: Meeting the Standard of Care.Brian Michael Jackson - 2020 - American Journal of Bioethics 20 (6):49-51.
    Volume 20, Issue 6, June 2020, Page 49-51.
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  19.  1
    Beyond the Apnea Test: An Argument to Broaden the Requirement for Consent to the Entire Brain Death Evaluation.Erin Paquette, Joel Frader, Seema Shah, Robert C. Tasker & Robert Truog - 2020 - American Journal of Bioethics 20 (6):17-19.
    Volume 20, Issue 6, June 2020, Page 17-19.
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  20.  1
    Brain Death Testing: Time for National Uniformity.Thaddeus Mason Pope - 2020 - American Journal of Bioethics 20 (6):1-3.
    Volume 20, Issue 6, June 2020, Page 1-3.
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  21.  2
    Death Determination and Clinicians’ Epistemic Authority.David Rodríguez-Arias, Alberto Molina-Pérez & Gonzalo Díaz-Cobacho - 2020 - American Journal of Bioethics 20 (6):44-47.
  22.  1
    Who Cares About Care? Family Members as Moral Actors in Treatment Decision Making.Anna-Henrikje Seidlein & Sabine Salloch - 2020 - American Journal of Bioethics 20 (6):80-82.
    Volume 20, Issue 6, June 2020, Page 80-82.
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  23.  1
    The Moral Distress of Patients and Families.Connie M. Ulrich - 2020 - American Journal of Bioethics 20 (6):68-70.
    Volume 20, Issue 6, June 2020, Page 68-70.
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  24.  2
    Schrödinger’s Cat and the Ethically Untenable Act of Not Looking.Christian J. Vercler & Naomi Tricot Laventhal - 2020 - American Journal of Bioethics 20 (6):40-42.
    Volume 20, Issue 6, June 2020, Page 40-42.
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  25.  1
    How to Support Patient and Family in Dealing with Ethical Issues? The Relevance of Moral Case Deliberation.Guy Widdershoven, Margreet Stolper, Bert Molewijk & Suzanne Metselaar - 2020 - American Journal of Bioethics 20 (6):70-72.
    Volume 20, Issue 6, June 2020, Page 70-72.
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  26.  1
    Apnea Testing is Medical Treatment Requiring Informed Consent.Greg Yanke, Mohamed Y. Rady, Joseph Verheijde & Joan McGregor - 2020 - American Journal of Bioethics 20 (6):22-24.
    Volume 20, Issue 6, June 2020, Page 22-24.
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  27.  3
    Partnering With Research Staff Members to Bridge Gaps in Consent.Emily E. Anderson - 2020 - American Journal of Bioethics 20 (5):28-30.
    Volume 20, Issue 5, June 2020, Page 28-30.
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  28.  3
    Consent for Acute Care Research and the Regulatory “Gray Zone”.Laura M. Beskow, Christopher J. Lindsell & Todd W. Rice - 2020 - American Journal of Bioethics 20 (5):26-28.
    Volume 20, Issue 5, June 2020, Page 26-28.
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  29.  4
    The Two Components of Beneficence and Wellbeing in Medicine: A Restatement and Defense of the Argument.Johan Christiaan Bester - 2020 - American Journal of Bioethics 20 (5):W4-W11.
    Volume 20, Issue 5, June 2020, Page W4-W11.
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  30.  3
    Consent in the Acute Setting: A Necessary Evolution.David Blitzer & Robert M. Sade - 2020 - American Journal of Bioethics 20 (5):40-42.
    Volume 20, Issue 5, June 2020, Page 40-42.
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  31.  3
    Guiding Principles of Community Engagement and Global Health Research: Solidarity and Subsidiarity.Sarah-Vaughan Brakman - 2020 - American Journal of Bioethics 20 (5):62-64.
    Volume 20, Issue 5, June 2020, Page 62-64.
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  32.  3
    “Living Robots”: Ethical Questions About Xenobots.Simon Coghlan & Kobi Leins - 2020 - American Journal of Bioethics 20 (5):W1-W3.
    Volume 20, Issue 5, June 2020, Page W1-W3.
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  33.  2
    Solidarity in Global Health Research—Are the Stakes Equal?Amrita Daftary & A. M. Viens - 2020 - American Journal of Bioethics 20 (5):59-62.
    Volume 20, Issue 5, June 2020, Page 59-62.
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  34.  3
    Partnering With Patients to Bridge Gaps in Consent for Acute Care Research.Neal W. Dickert, Amanda Michelle Bernard, JoAnne M. Brabson, Rodney J. Hunter, Regina McLemore, Andrea R. Mitchell, Stephen Palmer, Barbara Reed, Michele Riedford, Raymond T. Simpson, Candace D. Speight, Tracie Steadman & Rebecca D. Pentz - 2020 - American Journal of Bioethics 20 (5):7-17.
    Clinical trials for acute conditions such as myocardial infarction and stroke pose challenges related to informed consent due to time limitations, stress, and severe illness. Consent processes shou...
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  35.  2
    Enlisting the Experts: Experienced Research Participants in Study Planning.Rebecca Dresser - 2020 - American Journal of Bioethics 20 (5):20-22.
    Volume 20, Issue 5, June 2020, Page 20-22.
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  36.  2
    Consent Related Challenges for Neonatal Clinical Trials.Katherine F. Guttmann, Yvonne W. Wu, Sandra E. Juul & Elliott M. Weiss - 2020 - American Journal of Bioethics 20 (5):38-40.
    Volume 20, Issue 5, June 2020, Page 38-40.
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  37.  3
    Empowering Marginalized Communities.Athmeya Jayaram - 2020 - American Journal of Bioethics 20 (5):80-81.
    Volume 20, Issue 5, June 2020, Page 80-81.
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  38.  4
    Ends and Means of Solidarity.Bruce Jennings - 2020 - American Journal of Bioethics 20 (5):64-66.
    Volume 20, Issue 5, June 2020, Page 64-66.
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  39.  4
    Bridging the Researcher-Participant Gap: A Research Agenda to Build Effective Research Relationships.Stephanie A. Kraft, Devan M. Duenas, Hannah Lewis & Seema K. Shah - 2020 - American Journal of Bioethics 20 (5):31-33.
    Volume 20, Issue 5, June 2020, Page 31-33.
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  40.  2
    ‘Who is (Really) the Focus of Engagement?’ – Evidence From Engagement Research.Jonas Lander & Marie-Luise Dierks - 2020 - American Journal of Bioethics 20 (5):69-71.
    Volume 20, Issue 5, June 2020, Page 69-71.
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  41.  3
    Better Consent—and Not Just for When Time Is Short.Jerry Menikoff - 2020 - American Journal of Bioethics 20 (5):1-3.
    Volume 20, Issue 5, June 2020, Page 1-3.
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  42.  2
    Rules of the Road for Patient-Driven Consent Processes.Hayden P. Nix & Charles Weijer - 2020 - American Journal of Bioethics 20 (5):36-37.
    Volume 20, Issue 5, June 2020, Page 36-37.
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  43.  3
    Peers, Near-Peers, and Outreach Staff to Build Solidarity in Global HIV Research With Adolescents.Mary A. Ott, Edith Apondi, Katherine R. MacDonald, Lonnie Embleton, Julie G. Thorne, Juddy Wachira, Allan Kamanda & Paula K. A. Braitstein - 2020 - American Journal of Bioethics 20 (5):72-74.
    Volume 20, Issue 5, June 2020, Page 72-74.
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  44.  4
    Solidarity and Community Engagement in Global Health Research.Bridget Pratt, Phaik Yeong Cheah & Vicki Marsh - 2020 - American Journal of Bioethics 20 (5):43-56.
    Community engagement is gaining prominence in global health research. A number of ethical goals–spanning the instrumental, intrinsic, and transformative–have been ascribed to CE in global heal...
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  45.  2
    Is Solidarity Possible in Global Health Policy and Systems Research?Abbas Rattani - 2020 - American Journal of Bioethics 20 (5):67-69.
    Volume 20, Issue 5, June 2020, Page 67-69.
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  46.  2
    From Knowing to Understanding: Revisiting Consent.Kit Rempala, Marley Hornewer, Joseph Vukov, Rohan Meda & Sarah Khan - 2020 - American Journal of Bioethics 20 (5):33-35.
    Dickert et al. (2020) effectively address how factors such as time limitations, stress, and illness severity in acute conditions warrant a deeper evaluation of how current consent processes serve patients. While data suggests that patients “prefer to be asked for permission upfront rather than waiving consent” (2), consent forms themselves “are frequently long and technical, follow rigid templates, and contain language that appears to prioritize institutional protection” (1). Such findings elucidate patients’ valuation of personal agency over settling for the “benefit (...)
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  47.  4
    Intersectionality and Community Engagement: Can Solidarity Alone Solve Power Differences in Global Health Research?Salla Sariola - 2020 - American Journal of Bioethics 20 (5):57-59.
    Volume 20, Issue 5, June 2020, Page 57-59.
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  48.  3
    Solidarity, Social Risk, and Community Engagement.Sally J. Scholz - 2020 - American Journal of Bioethics 20 (5):75-77.
    Volume 20, Issue 5, June 2020, Page 75-77.
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  49.  2
    Sense and Sensibility.Erica Sarah Spatz - 2020 - American Journal of Bioethics 20 (5):24-25.
    Volume 20, Issue 5, June 2020, Page 24-25.
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  50.  3
    Community Empowerment Through Education: The Inherent Foundation of Promoting Solidarity in Global Health Research.Gregory C. Valentine, Krystle Perez & Elliott Mark Weiss - 2020 - American Journal of Bioethics 20 (5):77-79.
    Volume 20, Issue 5, June 2020, Page 77-79.
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  51.  4
    A Model to Be Emulated.Kevin P. Weinfurt - 2020 - American Journal of Bioethics 20 (5):18-20.
    Volume 20, Issue 5, June 2020, Page 18-20.
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  52.  2
    Reimagining the Goal of Informed Consent to Help Patients Make Decisions About Research.Benjamin S. Wilfond & Kathryn M. Porter - 2020 - American Journal of Bioethics 20 (5):22-23.
    Volume 20, Issue 5, June 2020, Page 22-23.
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  53.  3
    The Role of Solidarity in Research in Global Health Emergencies.Katharine Wright & Julian Sheather - 2020 - American Journal of Bioethics 20 (5):4-6.
    Volume 20, Issue 5, June 2020, Page 4-6.
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  54.  3
    Ethical Training Can Turn an “Ought” to a “Can”.Ira Bedzow & Matthew Wynia - 2020 - American Journal of Bioethics 20 (4):73-75.
    Volume 20, Issue 4, May 2020, Page 73-75.
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  55.  7
    Representation Is Never Perfect, But Are Parents Even Representatives?Elle Benjamin, Bethany E. Ziss & B. R. George - 2020 - American Journal of Bioethics 20 (4):51-53.
    Volume 20, Issue 4, May 2020, Page 51-53.
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  56.  1
    Ethical Representation by Patient Advocacy Organizations Also Requires Responsible Management of Potential Financial Conflicts of Interest.Bethany Bruno & Susannah Rose - 2020 - American Journal of Bioethics 20 (4):59-61.
    Volume 20, Issue 4, May 2020, Page 59-61.
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  57.  4
    Parents of Autistic Children Are Deserving of Support.Zeljka Buturovic - 2020 - American Journal of Bioethics 20 (4):54-55.
    Volume 20, Issue 4, May 2020, Page 54-55.
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  58.  1
    Translational Ethics and Challenges Involved in Putting Norms Into Practice.Kristine Bærøe & Edmund Henden - 2020 - American Journal of Bioethics 20 (4):71-73.
    Volume 20, Issue 4, May 2020, Page 71-73.
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  59.  12
    Representing the Autism Spectrum.Robert Chapman & Walter Veit - 2020 - American Journal of Bioethics 20 (4):46-48.
    Volume 20, Issue 4, May 2020, Page 46-48.
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  60.  4
    Patenting Foundational Technologies: Recent Developments in the CRISPR Patent Struggle.Julian Cockbain & Sigrid Sterckx - 2020 - American Journal of Bioethics 20 (4):11-12.
    Volume 20, Issue 4, May 2020, Page 11-12.
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  61.  2
    Beyond Translating Ethical Norms Into Practice: Integrating Implementation and Assessment Mindsets.Joyeeta G. Dastidar - 2020 - American Journal of Bioethics 20 (4):92-94.
    Volume 20, Issue 4, May 2020, Page 92-94.
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  62.  1
    A Care Ethics Approach to Ethical Advocacy for Community Conditions.Philip G. Day, Kristian E. Sanchack & Robert P. Lennon - 2020 - American Journal of Bioethics 20 (4):35-37.
    Volume 20, Issue 4, May 2020, Page 35-37.
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  63.  3
    Clearing Muddy Waters: The Need to Reconceptualize Minor Increase Over Minimal Risk in Pediatric Rare Disease Research.Devan M. Duenas, Benjamin S. Wilfond & Liza-Marie Johnson - 2020 - American Journal of Bioethics 20 (4):8-10.
    Volume 20, Issue 4, May 2020, Page 8-10.
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  64.  4
    Like Autism, Representation Falls on a Spectrum.Nanette Elster & Kayhan Parsi - 2020 - American Journal of Bioethics 20 (4):4-5.
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  65.  1
    Additional Challenges to Fair Representation in Autistic Advocacy.Sam Fellowes - 2020 - American Journal of Bioethics 20 (4):44-45.
    Volume 20, Issue 4, May 2020, Page 44-45.
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  66.  1
    Non-Electoral Representation and Promoting Welfare—Beyond Descriptive Representation.Lucy Frith - 2020 - American Journal of Bioethics 20 (4):56-58.
    Volume 20, Issue 4, May 2020, Page 56-58.
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  67.  4
    Beyond Autism: Advocacy for Neurodevelopmental Differences.William D. Graf - 2020 - American Journal of Bioethics 20 (4):30-33.
    Volume 20, Issue 4, May 2020, Page 30-33.
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  68.  3
    Implementation Science and Bioethics: Lessons From European Empirical Bioethics Research?Jonathan Ives, Giles Birchley & Richard Huxtable - 2020 - American Journal of Bioethics 20 (4):80-82.
    Volume 20, Issue 4, May 2020, Page 80-82.
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  69.  3
    Ethical Drug Development for Rare Childhood Diseases: When There Are Limited But Promising Data in Adults, How to Choose Between Safety or Efficacy Studies?Liza-Marie Johnson, Devan M. Duenas & Benjamin S. Wilfond - 2020 - American Journal of Bioethics 20 (4):111-113.
    Volume 20, Issue 4, May 2020, Page 111-113.
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  70.  3
    Patient Representation: Mind the Gap Between Individual and Collective Claims.Karin R. Jongsma & Silke Schicktanz - 2020 - American Journal of Bioethics 20 (4):28-30.
    Volume 20, Issue 4, May 2020, Page 28-30.
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  71.  5
    Bioethical Ideals, Actual Practice, and the Double Life of Norms.Daniel Kelly & Nicolae Morar - 2020 - American Journal of Bioethics 20 (4):86-88.
    Volume 20, Issue 4, May 2020, Page 86-88.
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  72.  1
    The Feasibility of Implementing Normative Claims That Are Especially Strong and Important.Bryan Kibbe - 2020 - American Journal of Bioethics 20 (4):97-99.
    Volume 20, Issue 4, May 2020, Page 97-99.
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  73.  3
    Balancing Scientific Progress With Pediatric Protections: No Direct Benefit Now, But Potential Novel Therapy in the Future.Susannah W. Lee & Jessica C. Ginsberg - 2020 - American Journal of Bioethics 20 (4):108-110.
    Volume 20, Issue 4, May 2020, Page 108-110.
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  74.  5
    When Higher Risk Does Not Equal Greater Harm: Doing the Most Good in a Limited Pediatric Study Population.Jeff Matsler & Jamila M. Young - 2020 - American Journal of Bioethics 20 (4):118-120.
    Volume 20, Issue 4, May 2020, Page 118-120.
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  75.  5
    Ethical Advocacy Across the Autism Spectrum: Beyond Partial Representation.Matthew S. McCoy, Emily Y. Liu, Amy S. F. Lutz & Dominic Sisti - 2020 - American Journal of Bioethics 20 (4):13-24.
    Recent debates within the autism advocacy community have raised difficult questions about who can credibly act as a representative of a particular population and what responsibilities that...
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  76.  2
    Implementation in Bioethics: A Plea for a Participatory and Dialogical Approach.Suzanne Metselaar, Yolande Voskes, Bert Molewijk & Guy Widdershoven - 2020 - American Journal of Bioethics 20 (4):78-80.
    Volume 20, Issue 4, May 2020, Page 78-80.
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  77.  1
    The Use of Pediatric Extrapolation to Avoid Unnecessary Pediatric Clinical Trials.Robert M. Nelson - 2020 - American Journal of Bioethics 20 (4):114-116.
    Volume 20, Issue 4, May 2020, Page 114-116.
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  78.  3
    Autism Advocacy Before and After DSM-5.Ryan H. Nelson - 2020 - American Journal of Bioethics 20 (4):48-50.
    Volume 20, Issue 4, May 2020, Page 48-50.
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  79.  1
    Autistic Self Advocacy in the Developmental Disability Movement.Ari Ne’Eman & Julia Bascom - 2020 - American Journal of Bioethics 20 (4):25-27.
    Volume 20, Issue 4, May 2020, Page 25-27.
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  80.  2
    Mind the Gap: How Should We Translate Specific Ethical Norms Into Interventions?Niels Nijsingh, Bianca Jansky, Georg Marckmann & Katja Kuehlmeyer - 2020 - American Journal of Bioethics 20 (4):89-91.
    Volume 20, Issue 4, May 2020, Page 89-91.
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  81.  4
    Making Ethics Happen: Addressing Injustice in Health Inequalities.Nathan Nobis & Stephen Sodeke - 2020 - American Journal of Bioethics 20 (4):100-101.
    Volume 20, Issue 4, May 2020, Page 100-101.
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  82.  1
    An “Implementation Mindset” in Normative Bioethics Will Have Unintended Consequences.Joel E. Pacyna & Jon C. Tilburt - 2020 - American Journal of Bioethics 20 (4):76-78.
    Volume 20, Issue 4, May 2020, Page 76-78.
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  83.  2
    Flexibility Required: Balancing the Interests of Children and Risk in Drug Development for Rare Pediatric Conditions.Kathryn M. Porter, Anne Stevens & Benjamin S. Wilfond - 2020 - American Journal of Bioethics 20 (4):116-118.
    Volume 20, Issue 4, May 2020, Page 116-118.
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  84.  2
    Meaningful Fissures: The Value of Divergent Agendas in Patient Advocacy.Jordan P. Richardson & Richard R. Sharp - 2020 - American Journal of Bioethics 20 (4):1-3.
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  85.  8
    Neurodiversity and Autism Advocacy: Who Fits Under the Autism Tent?Kenneth A. Richman - 2020 - American Journal of Bioethics 20 (4):33-34.
    Volume 20, Issue 4, May 2020, Page 33-34.
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  86.  3
    Implementation Science Can Do Even More for Translational Ethics.Katherine W. Saylor & Megan C. Roberts - 2020 - American Journal of Bioethics 20 (4):83-85.
    Volume 20, Issue 4, May 2020, Page 83-85.
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  87.  2
    Bringing Known Drugs to Pediatric Research: Safety, Efficacy, and the Ambiguous Minor Increase in Minimal Risk.Akshay Sharma & Liza-Marie Johnson - 2020 - American Journal of Bioethics 20 (4):106-108.
    Volume 20, Issue 4, May 2020, Page 106-108.
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  88.  2
    Using Implementation Science to Enact Specific Ethical Norms: The Case of Code Status Policy.Emily Shearer & David Magnus - 2020 - American Journal of Bioethics 20 (4):6-7.
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  89.  2
    Hope Springs Eternal: Pitfalls of Partial Representation by Advocates Who Only Want the Best.Bryna Siegel - 2020 - American Journal of Bioethics 20 (4):38-40.
    Volume 20, Issue 4, May 2020, Page 38-40.
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  90.  3
    The “Ought-Is” Problem: An Implementation Science Framework for Translating Ethical Norms Into Practice.Bryan A. Sisk, Jessica Mozersky, Alison L. Antes & James M. DuBois - 2020 - American Journal of Bioethics 20 (4):62-70.
    We argue that once a normative claim is developed, there is an imperative to effect changes based on this norm. As such, ethicists should adopt an “implementation mindset” when formulating...
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  91.  4
    Civic Engagement, Autism and Deliberative Democracy: Prioritizing the Inclusion of Marginalized Perspectives.Holly K. Tabor - 2020 - American Journal of Bioethics 20 (4):41-43.
    Volume 20, Issue 4, May 2020, Page 41-43.
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  92.  2
    Balancing Risk and Reward: Greater Research Oversight Is Appropriate for Novel Therapies for Children With Life-Limiting Illness.Yoram Unguru - 2020 - American Journal of Bioethics 20 (4):104-105.
    Volume 20, Issue 4, May 2020, Page 104-105.
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  93.  1
    Responsible Innovation For and From Ethical Integration.John Noel Viaña, Sujatha Raman & Joan Leach - 2020 - American Journal of Bioethics 20 (4):94-97.
    Volume 20, Issue 4, May 2020, Page 94-97.
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  94.  1
    Greater Than Minimal Risk, No Direct Benefit – Bridging Drug Trials and Novel Therapy in Pediatric Populations.Benjamin S. Wilfond, Devan M. Duenas & Liza-Marie Johnson - 2020 - American Journal of Bioethics 20 (4):102-103.
    Volume 20, Issue 4, May 2020, Page 102-103.
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  95. When “Objectivity” in Clinical Benefit is Seen Through Different Lenses.William Allen - 2020 - American Journal of Bioethics 20 (3):68-70.
    Volume 20, Issue 3, March 2020, Page 68-70.
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  96.  1
    Marginally Represented Patients and the Moral Authority of Surrogates.Jeffrey T. Berger - 2020 - American Journal of Bioethics 20 (3):W1-W2.
    Volume 20, Issue 3, March 2020, Page W1-W2.
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  97.  4
    Beneficence, Interests, and Wellbeing in Medicine: What It Means to Provide Benefit to Patients.Johan Christiaan Bester - 2020 - American Journal of Bioethics 20 (3):53-62.
    Beneficence is a foundational ethical principle in medicine. To provide benefit to a patient is to promote and protect the patient’s wellbeing, to promote the patient’s interests. But there are different conceptions of wellbeing, emphasizing different values. These conceptions of wellbeing are contrary to one another and give rise to dissimilar ideas of what it means to benefit a patient. This makes the concept of beneficence ambiguous: is a benefit related to the patient’s goals and wishes, or is it a (...)
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  98. Credentialing Ethics Expertise.Abram L. Brummett - 2020 - American Journal of Bioethics 20 (3):50-52.
    Volume 20, Issue 3, March 2020, Page 50-52.
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  99. The Healthcare Ethics Consultant-Certified Program: Fair, Feasible, and Defensible, But Neither Definitive Nor Finished.Felicia Cohn, Mary Beth Benner, Chris Feudtner & Armand H. Matheny Antommaria - 2020 - American Journal of Bioethics 20 (3):1-5.
    Volume 20, Issue 3, March 2020, Page 1-5.
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  100.  1
    Virtues and Phronesis: Making Decisions in the Clinical Context.Mervyn Conroy & Aisha Y. Malik - 2020 - American Journal of Bioethics 20 (3):73-74.
    Volume 20, Issue 3, March 2020, Page 73-74.
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  101.  8
    Value Theory, Beneficence, and Medical Decision-Making.David DeGrazia - 2020 - American Journal of Bioethics 20 (3):71-73.
    Volume 20, Issue 3, March 2020, Page 71-73.
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  102.  1
    First Steps: Inclusive or Exclusive?Denise M. Dudzinski - 2020 - American Journal of Bioethics 20 (3):6-8.
    Volume 20, Issue 3, March 2020, Page 6-8.
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  103.  1
    To Be Coherently Beneficient, Be Communitarian.Charles Foster - 2020 - American Journal of Bioethics 20 (3):77-79.
    Volume 20, Issue 3, March 2020, Page 77-79.
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  104.  5
    A Nudge Without a Wink!Mark D. Fox & Scott Gelfand - 2020 - American Journal of Bioethics 20 (3):83-85.
    Volume 20, Issue 3, March 2020, Page 83-85.
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  105. Beneficence in Maternity Care: Objective Aspects of Subjective Goals.Jazmine L. Gabriel & Paul Burcher - 2020 - American Journal of Bioethics 20 (3):88-90.
    Volume 20, Issue 3, March 2020, Page 88-90.
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  106. Reconciling the HEC-C and Clinical Ethics Fellowship Training Programs: Implications of the Baylor Experience.Cristie Cole Horsburgh & Joshua S. Crites - 2020 - American Journal of Bioethics 20 (3):37-39.
    Volume 20, Issue 3, March 2020, Page 37-39.
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  107.  1
    By Various Ways We Arrive at the Same End.Ian Kerridge & Mark Henderson Arnold - 2020 - American Journal of Bioethics 20 (3):81-83.
    Volume 20, Issue 3, March 2020, Page 81-83.
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  108.  6
    A Capabilities-Based Account of Wellbeing.Peter Koch - 2020 - American Journal of Bioethics 20 (3):85-87.
    Volume 20, Issue 3, March 2020, Page 85-87.
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  109. Healthcare Ethics Consultant Certification: The Big Picture.Alexander A. Kon - 2020 - American Journal of Bioethics 20 (3):19-21.
    Volume 20, Issue 3, March 2020, Page 19-21.
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  110. Cost Considerations Within a Duty of Beneficence.Jeroen Luyten - 2020 - American Journal of Bioethics 20 (3):79-81.
    Volume 20, Issue 3, March 2020, Page 79-81.
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  111.  3
    Worth Our Salt: Reflections of an Early Career Clinical Ethicist.Hilary Mabel - 2020 - American Journal of Bioethics 20 (3):39-41.
    Volume 20, Issue 3, March 2020, Page 39-41.
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  112.  2
    What the HEC-C? An Analysis of the Healthcare Ethics Consultant-Certified Program: One Year In.Janet Malek, Sophia Fantus, Andrew Childress & Claire Horner - 2020 - American Journal of Bioethics 20 (3):9-18.
    Efforts to professionalize the field of bioethics have led to the development of the Healthcare Ethics Consultant-Certified Program intended to credential practicing healthcare ethics consultants. Our team of professional ethicists participated in the inaugural process to support the professionalization efforts and inform our views on the value of this credential from the perspective of ethics consultants. In this paper, we explore the history that has led to this certification process, and evaluate the ability of the HEC-C Program to meet the (...)
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  113.  1
    You Kids Get Off My Ethics Lawn!: An Admitted Curmudgeonly Critique of Credentialing Individual Clinical Ethics Consultants.Thomas May - 2020 - American Journal of Bioethics 20 (3):32-34.
    Volume 20, Issue 3, March 2020, Page 32-34.
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  114.  1
    Beneficence and Wellbeing: A Critical Appraisal.Laurence B. McCullough - 2020 - American Journal of Bioethics 20 (3):65-68.
    Volume 20, Issue 3, March 2020, Page 65-68.
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  115. Examining the Doing of Ethics Support Staff. A Dialogical Approach Toward Assessing the Quality of Facilitators of Moral Case Deliberation.Bert Molewijk, Reidar Pedersen & Margreet Stolper - 2020 - American Journal of Bioethics 20 (3):42-44.
    Volume 20, Issue 3, March 2020, Page 42-44.
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  116. Goal-Concordant Care Within the Range of the Possible.Wynne Morrison - 2020 - American Journal of Bioethics 20 (3):63-65.
    Volume 20, Issue 3, March 2020, Page 63-65.
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  117. A Call for Diversity and Inclusivity in the HEC-C Program.Cynthia Pathmathasan & Julie Aultman - 2020 - American Journal of Bioethics 20 (3):46-50.
    Volume 20, Issue 3, March 2020, Page 46-50.
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  118.  1
    A Profession Without Expertise? Professionalization in Reverse.Joseph A. Raho & James A. Hynds - 2020 - American Journal of Bioethics 20 (3):44-46.
    Volume 20, Issue 3, March 2020, Page 44-46.
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  119. Looking to Other Professions to Advance the Health Care Ethics Consultant Certification Program.Susannah Leigh Rose, Georgina Morley, Sharon L. Feldman & Jane Jankowski - 2020 - American Journal of Bioethics 20 (3):21-24.
    Volume 20, Issue 3, March 2020, Page 21-24.
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  120. Have the Cobbler’s Children Come Home to Roost?Giles Scofield - 2020 - American Journal of Bioethics 20 (3):29-31.
    Volume 20, Issue 3, March 2020, Page 29-31.
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  121. Revisiting Beneficence: What Is a ‘Benefit’, and by What Criteria?Keith Mark Swetz & Leslie C. Avant - 2020 - American Journal of Bioethics 20 (3):75-77.
    Volume 20, Issue 3, March 2020, Page 75-77.
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  122. Ensuring Certified Healthcare Ethics Consultants Are Competent to Practice.Stowe Locke Teti & Christine Mitchell - 2020 - American Journal of Bioethics 20 (3):24-27.
    Volume 20, Issue 3, March 2020, Page 24-27.
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  123. HEC-C: From Halsted’s Perspective.Christian J. Vercler & Andrew G. Shuman - 2020 - American Journal of Bioethics 20 (3):35-37.
    Volume 20, Issue 3, March 2020, Page 35-37.
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  124. Certification Assesses Minimal Competency for Healthcare Ethics Consultants, But What About Assessing Interpersonal Skills?Katherine Wasson - 2020 - American Journal of Bioethics 20 (3):27-29.
    Volume 20, Issue 3, March 2020, Page 27-29.
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  125.  5
    Clinical Research Subject Selection During Public Health Disasters: Reconceptualizing Fairness in a Global Ethical Context.Ikeolu O. Afolabi, Stephen O. Sodeke & Michael O. S. Afolabi - 2020 - American Journal of Bioethics 20 (2):38-41.
    Volume 20, Issue 2, February 2020, Page 38-41.
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  126. Marginally Represented Patients and the Moral Authority of Surrogates.Jeffrey T. Berger - 2020 - American Journal of Bioethics 20 (2):44-48.
    Incapacitated adult patients are commonly divided into two groups for purposes of decision making; those with a surrogate and those without. Respectively, these groups are often referred to as represented and unrepresented, and the relative ethics of decision making between them raises two particular issues. The first issue involves the differential application of the best interests standard between groups. Second is the prevailing notion that representedness and unrepresentedness are categorical phenomena, though it is more aptly understood as a multidimensional and (...)
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  127.  2
    Redistributing Fair Subject Selection.Kirstin Borgerson - 2020 - American Journal of Bioethics 20 (2):25-27.
    Volume 20, Issue 2, February 2020, Page 25-27.
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  128.  42
    Epistemic Burdens, Moral Intimacy, and Surrogate Decision Making.Parker Crutchfield & Scott Scheall - 2020 - American Journal of Bioethics 20 (2):59-61.
    Berger (forthcoming) states that moral intimacy is important in applying the best interests standard. But what he calls moral intimacy requires that someone has overcome epistemic burdens needed to represent the patient. We argue elsewhere that good surrogate decision-making is first and foremost a matter of overcoming epistemic burdens, or those obstacles that stand in the way of a surrogate decision-maker knowing what a patient wants and how to satisfy those preferences. Berger’s notion of moral intimacy depends on epistemic intimacy: (...)
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  129.  1
    Fair Subject Selection Procedures Must Consider Scientific Uncertainty and Variability in Risk and Benefit Perception.Charles Dupras & Elise Smith - 2020 - American Journal of Bioethics 20 (2):33-35.
    Volume 20, Issue 2, February 2020, Page 33-35.
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  130.  2
    On Surrogates’ Moral Authority: A Reply to Berger.Ryan K. Hubbard & Jake Greenblum - 2020 - American Journal of Bioethics 20 (2):64-66.
    Volume 20, Issue 2, February 2020, Page 64-66.
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  131. Decisional Humility and the Marginally Represented Patient.Barrie J. Huberman & Joseph J. Fins - 2020 - American Journal of Bioethics 20 (2):51-53.
    Volume 20, Issue 2, February 2020, Page 51-53.
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  132. Fair Inclusion and the Pursuit of Robustly Generalizable Clinically Relevant Knowledge.Ana S. Iltis - 2020 - American Journal of Bioethics 20 (2):27-30.
    Volume 20, Issue 2, February 2020, Page 27-30.
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  133. Upstream Influences and Fair Subject Selection.Nancy S. Jecker - 2020 - American Journal of Bioethics 20 (2):22-24.
    Volume 20, Issue 2, February 2020, Page 22-24.
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  134.  1
    Addressing the Perceived Duality of Represented and Unrepresented Patients: Legal Findings in a Moral Context.Paul S. Mueller, Erin S. DeMartino & Beau P. Sperry - 2020 - American Journal of Bioethics 20 (2):49-50.
    Volume 20, Issue 2, February 2020, Page 49-50.
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  135.  3
    Moral Intimacy, Authority, and Discretion.Ryan H. Nelson & Bryanna Moore - 2020 - American Journal of Bioethics 20 (2):66-68.
    Volume 20, Issue 2, February 2020, Page 66-68.
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  136.  2
    From Solo Decision Maker to Multi-Stakeholder Process: A Defense and Recommendations.David Ozar, Joseph Vukov, Kit Rempala & Rohan Meda - 2020 - American Journal of Bioethics 20 (2):53-55.
    Berger (2019) argues effectively that “representativeness is more aptly understood as a variable that is multidimensional and continuous based on relational moral authority,” and also makes some useful suggestions about how taking this observation seriously might require changes in current patterns of practice regarding surrogates. But the essay raises additional important questions about how the Best Interest Standard (BIS) should be used among unrepresented patients and other patients as well because many surrogates besides those who “have no actionable knowledge of (...)
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  137.  1
    Bolstering Surrogate Decision Making for Marginally Represented and Unrepresented Patients: One System’s Approach and Experience.Jordan Potter & Jason Lesandrini - 2020 - American Journal of Bioethics 20 (2):62-64.
    Volume 20, Issue 2, February 2020, Page 62-64.
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  138. The Challenge of Selecting Participants Fairly in High-Demand Clinical Trials.Annette Rid, Saskia Hendriks & Alexander A. Iyer - 2020 - American Journal of Bioethics 20 (2):35-38.
    Volume 20, Issue 2, February 2020, Page 35-38.
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  139.  1
    Four Faces of Fair Subject Selection.Katherine Witte Saylor & Douglas MacKay - 2020 - American Journal of Bioethics 20 (2):5-19.
    Although the principle of fair subject selection is a widely recognized requirement of ethical clinical research, it often yields conflicting imperatives, thus raising major ethical dilemmas regarding participant selection. In this paper, we diagnose the source of this problem, arguing that the principle of fair subject selection is best understood as a bundle of four distinct sub-principles, each with normative force and each yielding distinct imperatives: fair inclusion; fair burden sharing; fair opportunity; and fair distribution of third-party risks. We first (...)
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  140.  21
    Context is Needed When Assessing Fair Subject Selection.G. Owen Schaefer - 2020 - American Journal of Bioethics 20 (2):20-22.
    Volume 20, Issue 2, February 2020, Page 20-22.
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  141.  1
    Can the Principles of Research Ethics Help Us Distribute Clinical Resources More Fairly?Richard R. Sharp & Hannah Giunta - 2020 - American Journal of Bioethics 20 (2):1-4.
    Volume 20, Issue 2, February 2020, Page 1-4.
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  142.  1
    Risk Limits in Fair Subject Selection.Robert Steel - 2020 - American Journal of Bioethics 20 (2):30-32.
    Volume 20, Issue 2, February 2020, Page 30-32.
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  143. Marginally Represented Patients, Best Interests, and Ends-in-Themselves.Peter Shiu-Hwa Tsu - 2020 - American Journal of Bioethics 20 (2):57-59.
    Volume 20, Issue 2, February 2020, Page 57-59.
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  144. Compassionate Care for the Unconscious and Incapacitated.Michael J. Young - 2020 - American Journal of Bioethics 20 (2):55-57.
    Volume 20, Issue 2, February 2020, Page 55-57.
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  145.  22
    The Fifth Face of Fair Subject Selection: Population Grouping.Tomasz Żuradzki - 2020 - American Journal of Bioethics 20 (2):41-43.
    The article by MacKay and Saylor (2020) claims that the principle of fair subject selection yields conflicting imperatives (e.g. in the case of pregnant women) and should be understood as “a bundle of four distinct sub-principles” (i.e. fair inclusion, burden sharing, opportunity, distribution of third-party risks), each having conflicting normative recommendations (MacKay and Saylor 2020). The authors also offer guidance as to how we should navigate between subprinciples that may conflict with each other. The problem is a crucial one since (...)
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  146.  3
    “Unusual Care”: Groupthink and Willful Blindness in the SUPPORT Study.George J. Annas & Catherine L. Annas - 2020 - American Journal of Bioethics 20 (1):44-46.
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  147.  4
    Is It Time to Rethink Health Care Ethics?Ira Bedzow - 2020 - American Journal of Bioethics 20 (1):W1-W2.
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  148.  2
    Letter to the Editor: The Necessity of Teaching Medical Students to Voice Their Values.Ira Bedzow - 2020 - American Journal of Bioethics 20 (1):W3-W4.
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  149.  2
    You’Re in…But This Service Requires Drug Testing.Jillian Boerstler - 2020 - American Journal of Bioethics 20 (1):78-80.
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  150.  9
    Response to Open Peer Commentaries “Taxonomizing Views of Clinical Ethics Expertise”.Abram Brummett & Erica Salter - 2020 - American Journal of Bioethics 20 (1):W5-W8.
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  151.  3
    Misuse of “Usual Care” in Emergency Care Research: A Call for Adapting Rules Governing Exception From Informed Consent (EFIC) Studies.Ethan Cowan, Kate Sahan & Mark Sheehan - 2020 - American Journal of Bioethics 20 (1):59-61.
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  152.  3
    Getting Beneath the Tip of the Iceberg: Suspected Opioid Diversion.Kristy Deep & Rebecca Bartley Yarrison - 2020 - American Journal of Bioethics 20 (1):73-75.
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  153.  4
    Diverting Opioid Diversion: Does It Justify Randomly Screening Palliative Care Patients?Leah R. Eisenberg - 2020 - American Journal of Bioethics 20 (1):71-72.
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  154.  4
    It Does Not Matter Whether Research Interventions Are Usual Care.Cory E. Goldstein & Charles Weijer - 2020 - American Journal of Bioethics 20 (1):47-48.
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  155.  2
    The Collateral Finding of What?Bjørn Hofmann - 2020 - American Journal of Bioethics 20 (1):26-28.
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  156.  3
    What Research Ethics (Often) Gets Wrong About Minimal Risk.Patrick Bodilly Kane, Scott Y. H. Kim & Jonathan Kimmelman - 2020 - American Journal of Bioethics 20 (1):42-44.
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  157.  3
    Let It Be: The Evolving Standard of Care for Trisomy 18.Michael Kochan, Lucy Davidoff & Alison Falck - 2020 - American Journal of Bioethics 20 (1):64-65.
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  158.  2
    Drug Testing Is No Substitute for Honesty or Addiction Risk Reduction.Tim Lahey - 2020 - American Journal of Bioethics 20 (1):75-77.
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  159.  3
    Randomized Trials Are Deeply Offensive.John D. Lantos - 2020 - American Journal of Bioethics 20 (1):3-5.
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  160.  4
    Misrepresenting “Usual Care” in Research: An Ethical and Scientific Error.Ruth Macklin & Charles Natanson - 2020 - American Journal of Bioethics 20 (1):31-39.
    ABSTRACTComparative effectiveness studies, referred to here as “usual-care” trials, seek to compare current medical practices for the same medical condition. Such studies are presumed to be safe and involve only minimal risks. However, that presumption may be flawed if the trial design contains “unusual” care, resulting in potential risks to subjects and inaccurately informed consent. Three case studies described here did not rely on clinical evidence to ascertain contemporaneous practice. As a result, the investigators drew inaccurate conclusions, misinformed research participants, (...)
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  161.  2
    Response to Open Peer Commentaries on “Misrepresenting ‘Usual Care’ in Research: An Ethical and Scientific Error”.Ruth Macklin & Charles Natanson - 2020 - American Journal of Bioethics 20 (1):W12-W14.
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  162.  4
    Frontiers in Bioethics.David Magnus - 2020 - American Journal of Bioethics 20 (1):1-2.
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  163.  2
    Improving Comparative Effectiveness Trials.Ross E. McKinney - 2020 - American Journal of Bioethics 20 (1):40-42.
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  164.  3
    Ethics and Collateral Findings in Pragmatic Clinical Trials.Stephanie R. Morain, Kevin Weinfurt, Juli Bollinger, Gail Geller, Debra J. H. Mathews & Jeremy Sugarman - 2020 - American Journal of Bioethics 20 (1):6-18.
    Pragmatic clinical trials offer important benefits, such as generating evidence that is suited to inform real-world health care decisions and increasing research efficiency. However, PCTs also present ethical challenges. One such challenge involves the management of information that emerges in a PCT that is unrelated to the primary research question, yet may have implications for the individual patients, clinicians, or health care systems from whom or within which research data were collected. We term these findings as?pragmatic clinical trial collateral findings,? (...)
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  165.  2
    Response to Open Peer Commentaries on “Ethics and Collateral Findings in Pragmatic Clinical Trials”.Stephanie Morain, Debra Mathews, Juli Murphy Bollinger & Jeremy Sugarman - 2020 - American Journal of Bioethics 20 (1):W9-W11.
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  166.  4
    Ethics and the Importance of Good Clinical Practices.Katherine E. Nelson, Annie Janvier, Pamela G. Nathanson & Chris Feudtner - 2020 - American Journal of Bioethics 20 (1):67-70.
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  167.  2
    The Importance of Describing as Well as Defining Usual Care.Stuart G. Nicholls, Merrick Zwarenstein & Monica Taljaard - 2020 - American Journal of Bioethics 20 (1):56-58.
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  168.  3
    Partial Entrustment in Pragmatic Clinical Trials.Henry S. Richardson & Mildred K. Cho - 2020 - American Journal of Bioethics 20 (1):24-26.
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  169.  2
    The CER Experiment.Lois Shepherd - 2020 - American Journal of Bioethics 20 (1):49-51.
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  170.  3
    Pragmatic Clinical Trial-Collateral Findings: Recognizing the Needs of Low-Resource Research Participants.Courtney A. Stewart, Kayla E. Cooper, Megan B. Raymond, Faith E. Fletcher & Vence L. Bonham - 2020 - American Journal of Bioethics 20 (1):19-21.
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  171.  3
    Re-Envisioning “Doing Everything” for an Infant with Trisomy 18.Anita Tarzian - 2020 - American Journal of Bioethics 20 (1):62-63.
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  172.  2
    Traditional, Not the Usual: On Misrepresenting Acute Respiratory Distress Syndrome Network Lower Tidal Volume Trial.Peter Shiu-Hwa Tsu - 2020 - American Journal of Bioethics 20 (1):54-56.
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  173.  3
    Human Subjects Research Without Consent: Duties to Return Individual Findings When Participation Was Non-Consensual.Nina Varsava - 2020 - American Journal of Bioethics 20 (1):28-30.
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  174.  3
    From Epistemic Trespassing to Transdisciplinary Cooperation: The Role of Expertise in the Identification of Usual Care.Joseph Michael Vukov, Kit Rempala, Molly Klug & Marley Hornewer - 2020 - American Journal of Bioethics 20 (1):52-54.
    According to Macklin & Natanson (2019), one reason unusual practices can be misidentified as usual care is that “instead of using pertinent, accurate information describing usual care, investigators may rely on the opinion of ‘experts’ in the field, whose information may be out of date or otherwise inaccurate." We find Macklin & Natanson’s insights about misattributed expertise crucial, and suggest their discussion can be elucidated further by characterizing it in the context of Ballantyne (2018)’s recent exploration of what he calls (...)
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  175.  4
    Collateral Findings From Pragmatic Clinical Trials: What Responsibility Do We Have to Enrolled and Future Patients?Danielle M. Whicher & Albert W. Wu - 2020 - American Journal of Bioethics 20 (1):21-24.
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  176.  2
    You Can’T Always Get What You Want… We Will Help You Get What You Need.Lucia D. Wocial - 2020 - American Journal of Bioethics 20 (1):65-67.
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