Year:

  1.  5
    Access to Expanded Prenatal Genetic Testing: Response to Open Peer Commentaries.Michelle J. Bayefsky & Benjamin E. Berkman - 2022 - American Journal of Bioethics 22 (5):1-3.
    We would like to thank the authors of the excellent Open Peer Commentaries on our target article, “Implementing Expanded Prenatal Genetic Testing: Should Parents Have Access to Any and All Fetal Ge...
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  2.  1
    Research on the Clinical Translation of Health Care Machine Learning: Ethicists Experiences on Lessons Learned.Jennifer Blumenthal-Barby, Benjamin Lang, Natalie Dorfman, Holland Kaplan, William B. Hooper & Kristin Kostick-Quenet - 2022 - American Journal of Bioethics 22 (5):1-3.
    The application of machine learning in health care holds great promise for improving care. Indeed, our own team is collaborating with experts in machine learning and statistical modeling to bu...
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  3. Extending Trauma-Informed Principles to Hospital System Policy Development.Lori Bruce & Jennifer L. Herbst - 2022 - American Journal of Bioethics 22 (5):65-68.
    We read with interest Lanphier and Anani’s manuscript on trauma-informed ethics consultation. Their model rightly integrates trauma-informed principles within the ethics c...
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  4. My Story is Traumatic, You Probably Would Not Understand.Brian S. Carter - 2022 - American Journal of Bioethics 22 (5):58-60.
    The healthcare ethics consultant holds a widely described role in the modern American hospital. S/he may practice within a clinical discipline and be trained in bioethics, or be a trained phi...
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  5. Challenges of Local Ethics Review in a Global Healthcare AI Market.Danton Char - 2022 - American Journal of Bioethics 22 (5):39-41.
    Last year the Office of the Director of National Intelligence released its report on the unprecedented amassing of biodata by the People’s Republic of China, the profit to be had through accumulati...
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  6. Trauma-Informed Ethics and Relational Health.James Duffee - 2022 - American Journal of Bioethics 22 (5):62-65.
    Trauma-informed care in pediatrics is an organizing principle for health care delivery that is based on the science of toxic stress and the insights of attachment theory. In their groundbreak...
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  7.  1
    Rethinking the AI Chasm.Kadija Ferryman - 2022 - American Journal of Bioethics 22 (5):29-30.
    McCradden et al.’s article makes a distinctive contribution to the growing literature on the ethics of artificial intelligence in medicine. Not only do the authors raise important ethical is...
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  8.  1
    When Obligations Conflict: Necessary Violations of Trauma Informed Care in Ethics Consultation?Paul J. Ford, Georgina Morley & Lauren R. Sankary - 2022 - American Journal of Bioethics 22 (5):60-62.
    Complex clinical ethics cases require a blend of compassion, sensitivity, and tenacity in order to navigate the hard work required of stakeholders. Each person comes to the table with rich historie...
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  9.  1
    Trauma-Informed Approaches in Healthcare Ethics Consultation: A Missing Element in Healthcare for People Who Use Drugs During the Overdose Crisis?Adrian Guta, Daniel Z. Buchman, Rose A. Schmidt, Melissa Perri & Carol Strike - 2022 - American Journal of Bioethics 22 (5):68-70.
    Bioethics has received important criticisms for its perceived privileging of biomedical authority with longstanding calls for greater recognition of the social, political, economic, historical, and...
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  10.  1
    Trauma and Community: Trauma-Informed Ethics Consultation Grounded in Community-Engaged Principles.Megan Healy & Brian Tuohy - 2022 - American Journal of Bioethics 22 (5):71-73.
    Elizabeth Lanphier and Uchenna E. Anani provide a powerful argument for the value of a trauma-informed approach to the ethics consultation, which acknowledges the perspectives of all stakeho...
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  11. Scaling Up the Research Ethics Framework for Healthcare Machine Learning as Global Health Ethics and Governance.Calvin Wai-Loon Ho & Rohit Malpani - 2022 - American Journal of Bioethics 22 (5):36-38.
    The research ethics framework put forward by McCradden et al. to support systematic inquiry in the development of artificial intelligence and machine learning technologies in healt...
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  12. Broadening the Ethical Scope.Margaret Levi, Michael Bernstein & Charla Waeiss - 2022 - American Journal of Bioethics 22 (5):26-28.
    McCradden and colleagues' argues that machine learning in health care poses new challenges to appropriate evaluation for safe use in clinical care. It also claims that “the longstanding syst...
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  13.  1
    Bridging the AI Chasm: Can EBM Address Representation and Fairness in Clinical Machine Learning?Nicole Martinez-Martin & Mildred K. Cho - 2022 - American Journal of Bioethics 22 (5):30-32.
    McCradden et al. propose to close the “AI chasm” between algorithms and clinically meaningful application using the norms of evidence-based medicine and clinical research, with the rat...
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  14.  3
    A Research Ethics Framework for the Clinical Translation of Healthcare Machine Learning.Melissa D. McCradden, James A. Anderson, Elizabeth A. Stephenson, Erik Drysdale, Lauren Erdman, Anna Goldenberg & Randi Zlotnik Shaul - 2022 - American Journal of Bioethics 22 (5):8-22.
    The application of artificial intelligence and machine learning technologies in healthcare have immense potential to improve the care of patients. While there are some emerging practices surro...
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  15.  5
    Review of Jennifer S. Blumenthal-Barby, Good Ethics and Bad Choices: The Relevance of Behavioral Economics for Medical Ethics. [REVIEW]Sven Nyholm - 2022 - American Journal of Bioethics 22 (5):4-5.
    When Jennifer Blumenthal-Barby was a bioethics intern at the Cleveland Clinic while she was still a graduate student, she was puzzled by the decision making of some patients at the clinic. For exam...
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  16. What Happened to Dad? The Complexity of Paternal Trauma and Ethical Care.Saajidha Rizvydeen & Dalia M. Feltman - 2022 - American Journal of Bioethics 22 (5):74-76.
    Having a premature or critically ill infant in a neonatal intensive care unit is a traumatic experience for parents that can alter their lives. Parents navigate complex emotions of fear, unc...
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  17.  3
    Emerging Paradigms for Ethical Review of Research Using Artificial Intelligence.James Shaw - 2022 - American Journal of Bioethics 22 (5):42-44.
    The ethical review of research using methods of artificial intelligence and machine learning in health care contexts has become an important challenge for Research Ethics Boards (also refer...
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  18. Promoting Ethical Deployment of Artificial Intelligence and Machine Learning in Healthcare.Kayte Spector-Bagdady, Vasiliki Rahimzadeh, Kaitlyn Jaffe & Jonathan Moreno - 2022 - American Journal of Bioethics 22 (5):4-7.
    The ethics of artificial intelligence and machine learning exemplify the conceptual struggle between applying familiar pathways of ethical analysis versus generating novel strategies. Mel...
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  19. The Need for a Global Approach to the Ethical Evaluation of Healthcare Machine Learning.Tijs Vandemeulebroucke, Yvonne Denier & Chris Gastmans - 2022 - American Journal of Bioethics 22 (5):33-35.
    In their article “A Research Ethics Framework for the Clinical Translation of Healthcare Machine Learning,” McCradden et al. highlight the various gaps that emerge when artificial intelligen...
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  20.  1
    A Systemic Approach to the Oversight of Machine Learning Clinical Translation.Effy Vayena & Alessandro Blasimme - 2022 - American Journal of Bioethics 22 (5):23-25.
    Machine learning heralds highly transformative approaches to the automation of numerous clinical tasks, from diagnosis to risk assessment, and from prognosis to informing treatment decisions....
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  21. Ethics Consultations in a Fetal Health Center.Brian S. Carter & Shika Kalevor - 2022 - American Journal of Bioethics 22 (4):78-80.
    Fetal medicine is an emerging field that raises unique ethical concerns. Our children’s hospital started a Fetal Health Center 10 years ago. In this specialized setting, a multidisciplinary t...
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  22. Assistant Coach, Advice Columnist, or Seasoned Diplomat: Distinguishing Between Formal, Informal, and “FYI” Ethics Consultations.Andrew Childress - 2022 - American Journal of Bioethics 22 (4):45-47.
    As a practicing clinical ethicist at a major teaching hospital, I found it reassuring to learn that ethics consultation activity has increased overall. However, it was disheartening to see tha...
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  23. Ethics Consultation: Data and the Path to Professionalization.Felicia Cohn - 2022 - American Journal of Bioethics 22 (4):1-4.
    In this issue, Ellen Fox and colleagues report on their national study on ethics consultation in U.S. hospitals, following up on the previous 1999–2000 landmark study. Th...
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  24. All Healthcare Ethics Consultation Services Should Meet Shared Quality Standards.Joshua S. Crites & Thomas V. Cunningham - 2022 - American Journal of Bioethics 22 (4):69-72.
    Ellen Fox and collaborators have produced the most detailed description of healthcare ethics practices in the United States available. Some findings are shocking for anyone committed to promoting q...
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  25. The ASBH’s Obligation to Create Cost-Free Basic HEC Training.Autumn Fiester - 2022 - American Journal of Bioethics 22 (4):66-67.
    There were several worrisome results in the long-awaited studies on clinical ethics consultation by Fox et al, but one of the most sobering was the self-assessments made by ECSs (Ethics Consult Ser...
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  26. No Justification to Exclude State Ward From Pediatric Transplant Research.Kathy J. Forte & Emily E. Anderson - 2022 - American Journal of Bioethics 22 (4):87-89.
    With an overall estimated 5-year survival rate of 67 percent, bone marrow transplant is a potential cure for patients with primary immune regulatory diseases. Given that Sa...
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  27.  1
    Ethics Consultation Services as a Resource and its Implications for Evaluation Activities.Narcyz Ghinea, Linda Sheahan & Ian Kerridge - 2022 - American Journal of Bioethics 22 (4):59-60.
    Effective evaluation of any activity requires, first, that we understand what its objectives are, and second, that we can define and measure these objectives. For instance, a publicly listed compan...
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  28. Enrolling Foster Youth in Clinical Trials: Avoiding the Harm of Exclusion.Mary V. Greiner & Armand H. Matheny Antommaria - 2022 - American Journal of Bioethics 22 (4):85-86.
    In this case, an adolescent with a life-threatening immune disease experiences increased social complexity, child welfare involvement, and placement into foster care, which could disrupt a medical...
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  29. It’s About Heterogeneity! Strategies to Advance the Evaluation of Ethics Consultation.Joschka Haltaufderheide, Stephan Nadolny, Jochen Vollmann & Jan Schildmann - 2022 - American Journal of Bioethics 22 (4):56-58.
    In their national follow-up study on ethics consultation in the U.S., Fox et al. report the worrying finding of a decline in efforts to evaluate ECs. Compared to the findings of Fox et...
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  30.  1
    The Existential Crisis of Clinical Ethics Consultants.Claire Horner - 2022 - American Journal of Bioethics 22 (4):64-65.
    With the growth and evolution of the field of clinical ethics, the one constant has been its variation. Resolving ethical issues at the bedside is done differently across the country based on one’s...
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  31. View Across the Pond: Insights From a National Survey on Clinical Ethics Services in Switzerland.Ralf J. Jox & Rouven C. Porz - 2022 - American Journal of Bioethics 22 (4):50-52.
    In the three target articles, Ellen Fox et al. present data from their seminal study on ethics consultation in US general hospitals (Fox, Danis, et al. 2022, Fox and Duke 2022, Fox, Tarzian, et al....
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  32. Quality Healthcare Ethics Consultation: How Do We Get It and How Do We Measure It.Alexander A. Kon - 2022 - American Journal of Bioethics 22 (4):38-40.
    Shocking. There seems no other response to the Fox findings. The bioethics community has been working for decades to improve the quality of, and access to, competent healthcare ethics consultation....
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  33. A Call for Evidence-Based Clinical Ethics Consultation.Janet Malek - 2022 - American Journal of Bioethics 22 (4):40-42.
    Fox, Danis, Tarzian, and Duke have made a substantial contribution to the field of bioethics through the project described in this issue’s target articles (Fox, Tarzian, et al. 2022; Fox, Danis, et...
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  34. Improving Ethics Support: Seeing and Organizing Ethics Support Differently.Bert Molewijk, Janine de Snoo-Trimp, Margreet Stolper & Guy Widdershoven - 2022 - American Journal of Bioethics 22 (4):53-55.
    Much of what we know and see of ethics support, in literature and during trainings, workshops and conferences, derives from clinical ethicists working at academic medical centers. Besides the probl...
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  35.  1
    Mitigating Moral Distress Through Ethics Consultation.Georgina Morley, Lauren R. Sankary & Cristie Cole Horsburgh - 2022 - American Journal of Bioethics 22 (4):61-63.
    While the phenomenon of ‘moral distress’ has been of interest to the nursing community since Jameton first described it in 1984, moral distress is now understood to effect healthcare professionals...
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  36. Incorporating Ethics Consultations Into Public Health Practice.Efthimios Parasidis & Amy L. Fairchild - 2022 - American Journal of Bioethics 22 (4):47-50.
    In target articles for this special issue, Fox et al. report that ethics consultation practices have not improved significantly since 2000, and question whether the status quo affords patients...
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  37. Measuring Value with Volume.Joelle Robertson-Preidler - 2022 - American Journal of Bioethics 22 (4):76-78.
    In their target article, Fox & Duke provide evidence that consult volumes vary based on ethics staffing, leading to their conclusion that ethics consultation is an example of supply-sensitiv...
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  38. Life-Saving Experimental Treatment for a Teenage Ward of the State.Henry Sacks & Rosamond Rhodes - 2022 - American Journal of Bioethics 22 (4):89-91.
    This case raises a number of complex ethical, legal, and practical issues, some of which cannot be resolved by a research ethics consultation. Sam is an adolescent who has end stage manifestations...
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  39. The Good, the Bad, and the Inconvenient.Giles Scofield - 2022 - American Journal of Bioethics 22 (4):73-75.
    Whatever else these articles demonstrate, they reveal that two efforts closely associated with professionalizing healthcare ethics consultants —surveying the practice and certificating its pra...
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  40. Ethics Consultant Training Standards: Don't Lower the Bar Without Benefit.Lynn Sipsey & Joan Henriksen - 2022 - American Journal of Bioethics 22 (4):67-69.
    In “Ethics Consultation in U.S. Hospitals: Opinions of Ethics Practitioners,” Fox and colleagues note that despite efforts of the American Society for Bioethics and Humanities to impr...
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  41. A Hub and Spoke Model for Improving Access and Standardizing Ethics Consultations Across a Large Healthcare System.Benjamin Tolchin, Lori Bruce, Mark Mercurio & Stephen R. Latham - 2022 - American Journal of Bioethics 22 (4):42-45.
    Fox’s update of her pivotal 2007 study on ethics consultations in U.S. hospitals found that the gap in ethics consultations is widening between large teaching hospitals and small community hospital...
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  42. Fuzzy Logic: How the Practicalities of State Involvement Shape the Most Ethically Supportable Way Forward.Jessica M. Turnbull & Daniel J. Benedetti - 2022 - American Journal of Bioethics 22 (4):83-84.
    The case presents a teenage girl, Sam*, in the end stages of a rare disease, with no proven therapeutic options and an investigational hematopoietic stem cell transplant has been offered thr...
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  43. Enrolling Adolescents with Rare Disease for Early Phase Clinical Trials While Under the Care of Child Protection Services: Balancing Protection and Access.Benjamin S. Wilfond, Devan M. Duenas & Liza-Marie Johnson - 2022 - American Journal of Bioethics 22 (4):81-82.
    For many rare diseases, the availability of effective interventions is limited or non-existent. In this context, clinical research evaluating emerging interventions may be the only potentially “the...
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  44. Multidisciplinary Ethics Review for Liminal Cases in Maternal-Fetal Surgery: A Model.Megan A. Allyse, Lindsay Warner, Leal Segura, Mauro Schenone, Siobhan Pittock, Abigail Rousseau & Kirsten A. Riggan - 2022 - American Journal of Bioethics 22 (3):65-68.
    As members of the fetal surgery advisory board at a large tertiary care center, we read with great interest Hendriks’ et al. target article proposing a new ethical framework for fetal therap...
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  45.  2
    Erasing Blackness From Bioethics.Robert Baker - 2022 - American Journal of Bioethics 22 (3):33-35.
    February is Black History Month and so healthcare practitioners will soon rummage history books for information about famous African Americans, like Onesimus, the African slave who...
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  46. Fetal Therapies and Clinical Research: Beyond Risk and Benefit.Alison Bateman-House, Rafael Escandon, Andrew McFadyen, Cara Hunt, John Lantos & Lesha D. Shah - 2022 - American Journal of Bioethics 22 (3):1-3.
    Advancements in fetal assessment and therapeutic intervention in medical practice and clinical research call for corresponding progress in regulatory and ethical guidance. In “A new ethical framewo...
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  47.  4
    Maternal-Fetal Therapy: The (Psycho)Social Dilemma.Kris Dierickx, Jan Deprest, Daniel Pizzolato & Neeltje Crombag - 2022 - American Journal of Bioethics 22 (3):63-65.
    Assessing the risk-benefit ratio has always been considered key in designing clinical trials. These benefits can be diverse and may include social value and psychological benefits. When it comes to...
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  48.  2
    The Need for Praxis in Combating the Race Idea in Bioethics: Theory, Reflection, and Action.Denise M. Dudzinski & Kayhan Parsi - 2022 - American Journal of Bioethics 22 (3):4-5.
    The target article by Camisha Russell continues the important discussion about race, racism and bioethics that has appeared in AJOB for the past few years. Russell critically examines how un...
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  49. Consents (and Contents) Under Pressure: Maintaining Space for Moral Engagement in Research Protocols.Stuart G. Finder, Mark J. Bliton & Virginia L. Bartlett - 2022 - American Journal of Bioethics 22 (3):68-70.
    Furthermore, adults with decision-making capacity, including pregnant women, can currently accept interventions with moderate net risks for themselves in other settings (e.g., open f...
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  50.  5
    A New Ethical Framework for Assessing the Unique Challenges of Fetal Therapy Trials: Response to Commentaries.Saskia Hendriks, Christine Grady, David Wasserman, David Wendler, Diana W. Bianchi & Benjamin Berkman - 2022 - American Journal of Bioethics 22 (3):45-61.
    New fetal therapies offer important prospects for improving health. However, having to consider both the fetus and the pregnant woman makes the risk–benefit analysis of fetal therapy trials challenging. Regulatory guidance is limited, and proposed ethical frameworks are overly restrictive or permissive. We propose a new ethical framework for fetal therapy research. First, we argue that considering only biomedical benefits fails to capture all relevant interests. Thus, we endorse expanding the considered benefits to include evidence-based psychosocial effects of fetal therapies. (...)
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  51.  4
    Race, Racism, and Bioethics: Are We Stuck?Jennifer E. James - 2022 - American Journal of Bioethics 22 (3):22-24.
    Camisha Russell has written a beautiful essay articulating why race and racism should be centered within bioethics. I agree with her assertion that Black Lives Matter (and the subsequent backlash t...
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  52. The Relational and Gendered Nature of Reproductive Medicine.Georgia Loutrianakis & Lisa Campo-Engelstein - 2022 - American Journal of Bioethics 22 (3):62-63.
    In assessing the ethics of fetal therapy trials, we agree with Hendriks et al. that we should not just consider biomedical benefits, but also psychosocial benefits. Specifically, we argue th...
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  53.  4
    Restrictions on Abortion, Social Justice and the Ethics of Research in Maternal-Fetal Therapy Trials.Mary Faith Marshall, Alaia Verite & Anne D. Lyerly - 2022 - American Journal of Bioethics 22 (3):78-81.
    At no time in recent decades has more attention been paid to ethical issues in pregnancy. Particularly riveting—and alarming, to many—was the passage of Senate Bill 8, a Texas law banning abortion...
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  54.  2
    The Fetus as a Research Subject.Kenji Matsui, Keiichiro Yamamoto & Tomohide Ibuki - 2022 - American Journal of Bioethics 22 (3):76-78.
    Interventions performed on a pregnant woman's body can affect the fetus in multiple ways. Such effects can be harmful to beneficial to the fetus. Unfortunately, the effects of new drugs and compoun...
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  55. Considering Reprogenomics in the Ethical Future of Fetal Therapy Trials.Marsha Michie & Ruth M. Farrell - 2022 - American Journal of Bioethics 22 (3):71-73.
    Much has changed in maternal-fetal medicine since the early 2000s, when the previous ethical frameworks for fetal therapy trials were established. We applaud Hendriks and colleagues for taking on t...
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  56. Deconstructing Structural Injustices in the Clinic, Classroom, and Boardroom.Georgina Morley, Timothy E. Brown, Lauren R. Sankary & Sundus H. Riaz - 2022 - American Journal of Bioethics 22 (3):29-32.
    Russell articulates compelling reasons that bioethicists and health care professionals should take individual responsibility for deconstructing structural injustices in healthcare through in...
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  57.  5
    The Racial Data Gap: Lack of Racial Data as a Barrier to Overcoming Structural Racism.Elaine O. Nsoesie, Neda A. Khoshkhoo & Geoffrey S. Holtzman - 2022 - American Journal of Bioethics 22 (3):39-42.
    The Black Lives Matter movement marks a critical moment in the ebb and flow of racial progress. But as Camisha Russell points out, this moment might not last long. Prior high-water marks in...
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  58. What Lies Beneath the Framework: The Importance of Grounding Ethical Discussions of Maternal-Fetal Therapy.Ashish Premkumar & Jessica Fry - 2022 - American Journal of Bioethics 22 (3):73-75.
    The history of maternal-fetal therapy is a complex and compelling one. It can be argued that the science and ethics underpinning this field evolved together, with emerging technology spurring on th...
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  59.  1
    Making Structural Discrimination Visible: A Call for Intersectional Bioethics.Sabine Salloch & Lisa Brünig - 2022 - American Journal of Bioethics 22 (3):42-44.
    In her evocative article “Meeting the Moment: Bioethics in the Time of Black Lives Matter,” Camisha Russell comprehensively illustrates why racism should be considered an important bioethica...
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  60.  3
    “Racialized Disablement” as a Key Heuristic for Addressing Racism in Bioethics.Desiree Valentine - 2022 - American Journal of Bioethics 22 (3):24-26.
    Russell’s “Meeting the Moment: Bioethics in the Time of Black Lives Matter” expertly identifies how race and racism are matters of bioethical concern that ought to be addressed via an indivi...
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  61.  1
    Beyond Good Intentions: Student Run Free Clinics as a Reflection of a Broken System.Yolonda Wilson & Lou Vinarcsik - 2022 - American Journal of Bioethics 22 (3):27-29.
    Camisha Russell argues that this contemporary moment of societal reckoning with the value of Black lives is also a moment for considering racism as a bioethical issue. She continues that bioethicis...
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  62. Addressing Whiteness in Bioethics Curricula as Praxis for Transformation.Leslie E. Wolf & Aubrey DeVeny Incorvaia - 2022 - American Journal of Bioethics 22 (3):36-38.
    In “Meeting the Moment: Bioethics in the Time of Black Lives Matter,” Camisha Russell calls for transforming “bioethics-as-usual” with help from “outsiders”. Prior scholars agree...
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  63. Ethical Considerations for the Just Utilization of House Staff During the COVID-19 Pandemic.Danish Zaidi, Matthew S. Krantz, Jacob A. Blythe & Benjamin W. Frush - 2022 - American Journal of Bioethics 22 (3):6-8.
    As face shields are dusted off and conferences go virtual again, Omicron reminds us how the once-novel coronavirus ruptured our collective idea of medical training. For nearly 2 years, social media...
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  64.  2
    What Really Matters Now in Prenatal Genetics.Megan A. Allyse & Marsha Michie - 2022 - American Journal of Bioethics 22 (2):31-33.
    We were interested to read the current target article, given our admiration for the senior author’s comprehensive coverage of these same topics a decade ago (Donley, Hul...
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  65.  5
    Suffering and the Completed Life.Margaret Battin & Brent M. Kious - 2022 - American Journal of Bioethics 22 (2):62-64.
    In his carefully documented article, “From reciprocity to autonomy in physician-assisted death: an ethical analysis of the Dutch Supreme Court ruling in the Albert Heringa case,” Berand Florijn (20...
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  66.  15
    Implementing Expanded Prenatal Genetic Testing: Should Parents Have Access to Any and All Fetal Genetic Information?Michelle J. Bayefsky & Benjamin E. Berkman - 2022 - American Journal of Bioethics 22 (2):4-22.
    Prenatal genetic testing is becoming available for an increasingly broad set of diseases, and it is only a matter of time before parents can choose to test for hundreds, if not thousands, of genetic conditions in their fetuses. Should access to certain kinds of fetal genetic information be limited, and if so, on what basis? We evaluate a range of considerations including reproductive autonomy, parental rights, disability rights, and the rights and interests of the fetus as a potential future child. (...)
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  67.  2
    Delineating the Scope of NIPT: Ethics Meets Practice.Eline M. Bunnik - 2022 - American Journal of Bioethics 22 (2):34-36.
    As noninvasive prenatal testing is being implemented as a first-trimester prenatal screening modality in healthcare systems around the world, it raises ethical concerns. In theory, NIPT allo...
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  68.  6
    Genetic Testing Is Messier in Practice Than in Theory: Lessons From Neonatology.Chris Feudtner & Katharine Press Callahan - 2022 - American Journal of Bioethics 22 (2):37-39.
    What is the future of genetic testing during pregnancy likely to look like? Given that the patterns of use of genetic testing in neonatology tend to precede, and thus predict, patterns of prenatal...
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  69.  7
    From Reciprocity to Autonomy in Physician-Assisted Death: An Ethical Analysis of the Dutch Supreme Court Ruling in the Albert Heringa Case.Barend W. Florijn - 2022 - American Journal of Bioethics 22 (2):51-58.
    In 2002, the Dutch Euthanasia Act was put in place to regulate the ending of one’s life, permitting a physician to provide assistance in dying to a patient whose suffering the physician assesses as...
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  70.  1
    Does Anyone Need to Regulate Parental Access to Fetal Genetic Information?Jeremy R. Garrett - 2022 - American Journal of Bioethics 22 (2):28-30.
    Prospective parents have long been interested in knowing as much information about their children as early as possible. This interest is not—and never has been—strictly limited to significant “medi...
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  71.  3
    The Unstable Boundary of Suffering-Based Euthanasia Regimes.Scott Y. H. Kim - 2022 - American Journal of Bioethics 22 (2):59-62.
    Florijn’s helpful discussion of the Heringa case illustrates the difficulties in drawing a boundary on eligibility conditions for EAS. In Heringa, the Dutch Supreme Court reaffirmed...
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  72. How Ought Decisions That Weigh on Life and Death Be Justly Informed and Governed to Benefit More Than the Privileged Few with Access to a Trusted Clinician?Barbara A. Koenig & Julia E. H. Brown - 2022 - American Journal of Bioethics 22 (2):1-3.
    The two target articles in this issue bring into focus the struggle for governance over biomedical interventions that may offer some families more agency—the capacity to act—in the context of many...
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  73.  1
    Expanded Prenatal Testing: Maintaining a Non-Directive Approach to Promote Reproductive Autonomy.Anne-Marie Laberge, Tierry M. Laforce, Marie-Françoise Malo, Julie Richer, Marie-Christine Roy & Vardit Ravitsky - 2022 - American Journal of Bioethics 22 (2):39-42.
    In "Implementing Expanded Prenatal Genetic Testing: Should Parents Have Access to Any and All Fetal Genetic Information?," Bayefsky and Berkman argue in favor of establishing three categorie...
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  74.  1
    Capacities and Limitations of Using Polygenic Risk Scores for Reproductive Decision Making.Gabriel Lázaro-Muñoz, Stacey Pereira, Meghna Mukherjee, Kristin Marie Kostick-Quenet, Shai Carmi, Todd Lencz & Dorit Barlevy - 2022 - American Journal of Bioethics 22 (2):42-45.
    In their article “Implementing Expanded Prenatal Genetic Testing: Should Parents Have Access to Any and All Fetal Genetic Information?” Bayefsky and Berkman briefly mention that: “[s]ome are...
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  75.  1
    Response to Open Peer Commentaries on “Developing a Reflexive, Anticipatory, and Deliberative Approach to Unanticipated Discoveries: Ethical Lessons From iBlastoids”.Joan Leach, Megan J. Munsie & Rachel A. Ankeny - 2022 - American Journal of Bioethics 22 (2):W1-W3.
    In “Developing a Reflexive, Anticipatory, and Deliberative Approach to Unanticipated Discoveries: Ethical Lessons from iBlastoids,” we proposed a RAD approach to meet the challenging issues...
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  76. Intertwined Interests in Expanded Prenatal Genetic Testing: The State’s Role in Facilitating Equitable Access.Kathryn MacKay, Zuzana Deans, Isabella Holmes, Ainsley J. Newson & Lisa Dive - 2022 - American Journal of Bioethics 22 (2):45-47.
    In their analysis of how much fetal genetic information prospective parents should be able to access, Bayefsky and Berkman determine that parents should only be able to access information th...
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  77.  6
    The Serious Factor in Expanded Prenatal Genetic Testing.Vardit Ravitsky, Anne-Marie Laberge, Marie-Christine Roy, Bartha Knoppers, Vasiliki Rahimzadeh & Erika Kleiderman - 2022 - American Journal of Bioethics 22 (2):23-25.
    Bayefsky and Berkman argue in favor of evidence-based policy development for expanded prenatal genetic testing. They propose to identify what kinds of information pregnant persons, their par...
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  78.  5
    Assisted Suicide and Euthanasia: A Comparative Analysis of Dutch and East Asian Cases.Fengmin Shao, Yue Gu, Zhenxiang Zhang, Hui Zhang & Yuming Wang - 2022 - American Journal of Bioethics 22 (2):74-76.
    The target article describes a Dutch case that happened in 2008, where Albert Heringa helped his 98-year-old mother, whose general practitioner rejected her request for an assisted d...
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  79. Certainties and Uncertainties in Genetic Information: Good Ethics Starts with Good Data.Francesc Torralba, David Lorenzo & Montserrat Esquerda - 2022 - American Journal of Bioethics 22 (2):48-50.
    The framework presented by Bayefsky and Berkman is based on having clear and accurate genetic information to offer parents, for them to either decide to prepare for birth or to terminate the...
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  80. Meaningful Respect for the Autonomy of Persons with “Completed Life”: An Analysis in Light of Empirical Research.G. J. M. W. van Thiel, J. J. M. van Delden, E. J. van Wijngaarden & M. L. Zomers - 2022 - American Journal of Bioethics 22 (2):65-67.
    In the Netherlands, the legalization of assisted suicide for persons with a death wish without severe illness, often referred to as persons with “completed life” or “tiredness of life,” is intensel...
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  81. An Autonomy-Based Approach to Justifying Physician-Assisted Death: A Recent Judgment of the German Federal Constitutional Court.Jochen Vollmann, Matthé Scholten, Jakov Gather & Esther Braun - 2022 - American Journal of Bioethics 22 (2):71-73.
    Florijn’s analysis of the Dutch Supreme Court ruling on the Albert Heringa case demonstrates that the Dutch approach to justifying physician-assisted death is based primarily on the physician...
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  82.  3
    Restricting Access, Stigmatizing Disability?David Wasserman & Noah Berens - 2022 - American Journal of Bioethics 22 (2):25-27.
    In their comprehensive article, Bayefsky and Berkman outline a framework for limiting access to certain types of fetal genetic information through professional self-regulation. Given the rap...
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  83.  7
    The Role of Suffering in the “Tired of Life” Debate.Guy Widdershoven, Aartjan Beekman, Natalie Evans & Sisco van Veen - 2022 - American Journal of Bioethics 22 (2):68-70.
    Florijn analyzes the ruling of the Court of Appeal in the Heringa case, focusing on the role of patient autonomy in physician assisted death (Florijn 2022). His analysis of the case shows that in Dutch euthanasia law patient autonomy as self-determination is limited by the reciprocal physician-patient relationship. Yet, it also gives an unbalanced view of the Dutch euthanasia regulation and its ethical foundation. By focusing on patient autonomy, the importance of unbearable and irremediable suffering as a prerequisite for euthanasia (...)
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  84. A Minor Question of Vaccine Consent: Not for Ethics Alone to Answer.John W. Frye - 2022 - American Journal of Bioethics 22 (1):64-65.
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