Year:

  1.  1
    Equality and Equity in Compensating Patient Engagement in Research: A Plea for Exceptionalism.Jean-Christophe Bélisle-Pipon, Vincent Couture & Marie-Christine Roy - 2022 - Research Ethics 18 (2):126-131.
    Engaging citizens and patients in research has become a truism in many fields of health research. It is now seen as a laudable—if not compulsory—activity in research for yielding more impactful and meaningful citizen/patient outcomes and steering research in the right direction. Although this research approach is increasingly common and commendable, we recently encountered a major obstacle in obtaining an ethics certificate from an institutional review board to conduct a study that places citizen/patient perspectives on equal footing with those of (...)
    Direct download  
     
    Export citation  
     
    Bookmark  
  2.  1
    Waving Away Waivers: An Obligation to Contribute to ‘Herd Knowledge’ for Data Linkage Research?Owen M. Bradfield - 2022 - Research Ethics 18 (2):151-162.
    In today’s online data-driven world, people constantly shed data and deposit digital footprints. When individuals access health services, governments and health providers collect and store large volumes of health information about people that can later be retrieved, linked and analysed for research purposes. This can lead to new discoveries in medicine and healthcare. In addition, when securely stored and de-identified, the privacy risks are minimal and manageable. In many jurisdictions, ethics committees routinely waive the requirement for researchers to obtain consent (...)
    Direct download  
     
    Export citation  
     
    Bookmark  
  3.  1
    Personalising the Dilemma: Research Ethics in Fiction.Sally Dalton-Brown - 2022 - Research Ethics 18 (2):114-125.
    Learning about research ethics and research integrity is greatly facilitated by case studies, which illuminate, ground and personalise abstract questions. This paper argues that fiction can provide similar learning experiences, incarnating ethical dilemmas through a medium that is highly accessible yet sophisticated in its depictions of how researchers behave. Examples of fictional illustrations are given to illustrate various themes such as animal experimentation, exploitation of the vulnerable, researcher bias and research fraud.
    Direct download  
     
    Export citation  
     
    Bookmark  
  4. Motives and Risk Perceptions of Participants in a Phase 1 Trial for Hepatitis C Virus Investigational Therapy in Pregnancy.Yasaswi Kislovskiy, Catherine Chappell, Emily Flaherty, Megan E. Hamm, Flor de Abril Cameron, Elizabeth Krans & Judy C. Chang - 2022 - Research Ethics 18 (2):132-150.
    Limited research has been done among pregnant people participating in investigational drug trials. To enhance the ethical understanding of pregnant people’s perspectives on research participation, we sought to describe motives and risk perceptions of participants in a phase 1 trial of ledipasvir/sofosbuvir treatment for chronic Hepatitis C virus during pregnancy. Pregnant people with chronic HCV infection enrolled in an open-label, phase 1 study of LDV/SOF participated in semi-structured, in-depth interviews to explore their reasons for participation and experiences within the study. (...)
    Direct download  
     
    Export citation  
     
    Bookmark  
  5.  5
    Reporting and Discoverability of “Tweets” Quoted in Published Scholarship: Current Practice and Ethical Implications.Shannon Mason & Lenandlar Singh - 2022 - Research Ethics 18 (2):93-113.
    Research Ethics, Volume 18, Issue 2, Page 93-113, April 2022. Twitter is an increasingly common source of rich, personalized qualitative data, as millions of people daily share their thoughts on myriad topics. However, questions remain unclear concerning if and how to quote publicly available social media data ethically. In this study, focusing on 136 education manuscripts quoting 2667 Tweets, we look to investigate the ways in which Tweets are quoted, the ethical discussions forwarded and actions taken, and the extent to (...)
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark  
 Previous issues
  
Next issues