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  1.  2
    Bioethics and the Freedom Road. The JBI Community and the Change We Want To See.Michael A. Ashby & Bronwen Morrell - 2018 - Journal of Bioethical Inquiry 15 (2):175-179.
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  2.  2
    The Voice Is As Mighty As the Pen: Integrating Conversations Into Advance Care Planning.Kunal Bailoor, Leslie H. Kamil, Ed Goldman, Laura M. Napiewocki, Denise Winiarski, Christian J. Vercler & Andrew G. Shuman - 2018 - Journal of Bioethical Inquiry 15 (2):185-191.
    Advance care planning allows patients to articulate preferences for their medical treatment, lifestyle, and surrogate decision-makers in order to anticipate and mitigate their potential loss of decision-making capacity. Written advance directives are often emphasized in this regard. While these directives contain important information, there are several barriers to consider: veracity and accuracy of surrogate decision-makers in making choices consistent with the substituted judgement standard, state-to-state variability in regulations, literacy issues, lack of access to legal resources, lack of understanding of medical (...)
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  3. Moving Forward on Consent Practices in Australia.Rebekah E. McWhirter & Lisa Eckstein - 2018 - Journal of Bioethical Inquiry 15 (2):243-257.
    Allowing persons to make an informed choice about their participation in research is a pre-eminent ethical and legal requirement. Almost universally, this requirement has been addressed through the provision of written patient information sheets and consent forms. Researchers and others have raised concerns about the extent to which such forms—particularly given their frequent lengthiness and complexity—provide participants with the tools and knowledge necessary for autonomous decision-making. Concerns are especially pronounced for certain participant groups, such as persons with low literacy and (...)
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  4.  1
    A Morally Permissible Moral Mistake? Reinterpreting a Thought Experiment as Proof of Concept.Nathan Emmerich & Bert Gordjin - 2018 - Journal of Bioethical Inquiry 15 (2):269-278.
    This paper takes the philosophical notion of suberogatory acts or morally permissible moral mistakes and, via a reinterpretation of a thought experiment from the medical ethics literature, offers an initial demonstration of their relevance to the field of medical ethics. That is, at least in regards to this case, we demonstrate that the concept of morally permissible moral mistakes has a bearing on medical decision-making. We therefore suggest that these concepts may have broader importance for the discourse on medical ethics (...)
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  5.  2
    Raising Rates of Childhood Vaccination: The Trade-Off Between Coercion and Trust.Bridget Haire, Paul Komesaroff, Rose Leontini & C. Raina MacIntyre - 2018 - Journal of Bioethical Inquiry 15 (2):199-209.
    Vaccination is a highly effective public health strategy that provides protection to both individuals and communities from a range of infectious diseases. Governments monitor vaccination rates carefully, as widespread use of a vaccine within a population is required to extend protection to the general population through “herd immunity,” which is important for protecting infants who are not yet fully vaccinated and others who are unable to undergo vaccination for medical or other reasons. Australia is unique in employing financial incentives to (...)
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  6.  1
    Family Resemblances: Human Reproductive Cloning as an Example for Reconsidering the Mutual Relationships Between Bioethics and Science Fiction.Solveig L. Hansen - 2018 - Journal of Bioethical Inquiry 15 (2):231-242.
    In the traditions of narrative ethics and casuistry, stories have a well-established role. Specifically, illness narratives provide insight into patients’ perspectives and histories. However, because they tend to see fiction as an aesthetic endeavour, practitioners in these traditions often do not realize that fictional stories are valuable moral sources of their own. In this paper I employ two arguments to show the mutual relationship between bioethics and fiction, specifically, science fiction. First, both discourses use imagination to set a scene and (...)
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  7.  1
    Beyond Compliance Checking: A Situated Approach to Visual Research Ethics.Caroline Lenette, Jessica R. Botfield, Katherine Boydell, Bridget Haire, Christy E. Newman & Anthony B. Zwi - 2018 - Journal of Bioethical Inquiry 15 (2):293-303.
    Visual research methods like photography and digital storytelling are increasingly used in health and social sciences research as participatory approaches that benefit participants, researchers, and audiences. Visual methods involve a number of additional ethical considerations such as using identifiable content and ownership of creative outputs. As such, ethics committees should use different assessment frameworks to consider research protocols with visual methods. Here, we outline the limitations of ethics committees in assessing projects with a visual focus and highlight the sparse knowledge (...)
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  8.  2
    Singapore Modifies the U.K. Montgomery Test and Changes the Standard of Care Doctors Owe to Patients on Medical Advice.Sumytra Menon & Voo Teck Chuan - 2018 - Journal of Bioethical Inquiry 15 (2):181-183.
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  9.  4
    The Enduring Influence of a Dangerous Narrative: How Scientists Can Mitigate the Frankenstein Myth.Peter Nagy, Ruth Wylie, Joey Eschrich & Ed Finn - 2018 - Journal of Bioethical Inquiry 15 (2):279-292.
    Reflecting the dangers of irresponsible science and technology, Mary Shelley’s Frankenstein quickly became a mythic story that still feels fresh and relevant in the twenty-first century. The unique framework of the Frankenstein myth has permeated the public discourse about science and knowledge, creating various misconceptions around and negative expectations for scientists and for scientific enterprises more generally. Using the Frankenstein myth as an imaginative tool, we interviewed twelve scientists to explore how this science narrative shapes their views and perceptions of (...)
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  10.  2
    Can the Ethical Best Practice of Shared Decision-Making Lead to Moral Distress?Trisha M. Prentice & Lynn Gillam - 2018 - Journal of Bioethical Inquiry 15 (2):259-268.
    When healthcare professionals feel constrained from acting in a patient’s best interests, moral distress ensues. The resulting negative sequelae of burnout, poor retention rates, and ultimately poor patient care are well recognized across healthcare providers. Yet an appreciation of how particular disciplines, including physicians, come to be “constrained” in their actions is still lacking. This paper will examine how the application of shared decision-making may contribute to the experience of moral distress for physicians and why such distress may go under-recognized. (...)
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  11.  6
    Review of the Ethical Issues of a Biomarker-Based Diagnoses in the Early Stage of Alzheimer’s Disease. [REVIEW]Gwendolien Vanderschaeghe, Kris Dierickx & Rik Vandenberghe - 2018 - Journal of Bioethical Inquiry 15 (2):219-230.
    Background: Today, many healthcare or dementia organizations, clinicians, and companies emphasize the importance of detection of Alzheimer’s disease in an early phase. This idea has gained considerable momentum due to the development of biomarkers, the recent FDA and EMA approval of three amyloid tracers, and the failure of a number of recent therapeutic trials conducted in the early dementia phase. On the one hand, an early etiological diagnosis can lead to early and more efficacious intervention. On the other hand, it (...)
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  12.  4
    The Beneficence of Hope: Findings From a Qualitative Study with Gout and Diabetes Patients.Isabelle Wienand, Milenko Rakic, David Shaw & Bernice Elger - 2018 - Journal of Bioethical Inquiry 15 (2):211-218.
    This paper explores the importance of hope as a determining factor for patients to participate in first-in-human trials for synthetic biology therapies. This paper focuses on different aspects of hope in the context of human health and well-being and explores the varieties of hope expressed by patients. The research findings are based on interview data collected from stable gout and diabetes patients. Three concepts of hope have emerged from the interviews: hope as certainty ; hope as reflective uncertainty ; hope (...)
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  13.  3
    Ethical and Legal Concerns With Nevada’s Brain Death Amendments.Greg Yanke, Mohamed Y. Rady & Joseph L. Verheijde - 2018 - Journal of Bioethical Inquiry 15 (2):193-198.
    In early 2017, Nevada amended its Uniform Determination of Death Act, in order to clarify the neurologic criteria for the determination of death. The amendments stipulate that a determination of death is a clinical decision that does not require familial consent and that the appropriate standard for determining neurologic death is the American Academy of Neurology’s guidelines. Once a physician makes such a determination of death, the Nevada amendments require the withdrawal of life-sustaining treatment within twenty-four hours with limited exceptions. (...)
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  14.  1
    The Power of Knowledge, Responses to Change, and the Gymnastics of Causation.Michael A. Ashby & Bronwen Morrell - 2018 - Journal of Bioethical Inquiry 15 (1):1-4.
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  15.  3
    Truth Disclosure Practices of Physicians in Jordan.Saif M. Borgan, Justin Z. Amarin, Areej K. Othman, Haya H. Suradi & Yasmeen Z. Qwaider - 2018 - Journal of Bioethical Inquiry 15 (1):81-87.
    Disclosure of health information is a sensitive matter, particularly in the context of serious illness. In conservative societies—those which predominate in the developing world—direct truth disclosure undoubtedly presents an ethical conundrum to the modern physician. The aim of this study is to explore the truth disclosure practices of physicians in Jordan, a developing country. In this descriptive, cross-sectional study, 240 physicians were initially selected by stratified random sampling. The sample was drawn from four major hospitals in Amman, Jordan. A closed-ended (...)
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  16.  7
    Rearranging Deck Chairs on a Sinking Ship?Silvia Camporesi - 2018 - Journal of Bioethical Inquiry 15 (1):7-13.
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  17.  3
    Ethical Implications in Vaccine Pharmacotherapy for Treatment and Prevention of Drug of Abuse Dependence.Anna Carfora, Paola Cassandro, Alessandro Feola, Francesco La Sala, Raffaella Petrella & Renata Borriello - 2018 - Journal of Bioethical Inquiry 15 (1):45-55.
    Different immunotherapeutic approaches are in the pipeline for the treatment of drug dependence. “Drug vaccines” aim to induce the immune system to produce antibodies that bind to drugs and prevent them from inducing rewarding effects in the brain. Drugs of abuse currently being tested using these new approaches are opioids, nicotine, cocaine, and methamphetamine. In human clinical trials, “cocaine and nicotine vaccines” have been shown to induce sufficient antibody levels while producing few side effects. Studies in humans, determining how these (...)
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  18.  2
    Disciplining Bioethics: The Debate Over Human Embryo Research.Giulia Cavaliere - 2018 - Journal of Bioethical Inquiry 15 (1):163-165.
    J. Benjamin Hurlbut’s book Experiments in Democracy: Human Embryo Research and the Politics of Bioethics is an historiographical analysis of the American debate over embryo research. It covers more than four decades of this debate and uses key actors, bodies, and events as empirical evidence for its analysis. At a first glance, it might seem like a book that tells a story, but Experiments in Democracy is much more than that. Hurlbut uses the chapters of this narrative as case studies (...)
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  19.  7
    Erratum To: AIDS Panic in the Twenty-First Century: The Tenuous Legal Status of HIV-Positive Persons in America.Richard G. Cockerill & Lance Wahlert - 2018 - Journal of Bioethical Inquiry 15 (1):169-169.
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  20.  5
    Erratum To: AIDS Panic in the Twenty-First Century: The Tenuous Legal Status of HIV-Positive Persons in America.Richard G. Cockerill & Lance Wahlert - 2018 - Journal of Bioethical Inquiry 15 (1):171-171.
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  21.  2
    Erratum To: Inhospitable Healthcare Spaces: Why Diversity Training on LGBTQIA Issues Is Not Enough.Megan A. Dean, Elizabeth Victor & Laura Guidry-Grimes - 2018 - Journal of Bioethical Inquiry 15 (1):173-173.
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  22.  22
    Knowing, Anticipating, Even Facilitating but Still Not Intending: Another Challenge to Double Effect Reasoning.S. Duckett - 2018 - Journal of Bioethical Inquiry 15 (1):33-37.
    A recent administrative law decision in Victoria, Australia, applied double effect reasoning in a novel way. Double effect reasoning has hitherto been used to legitimate treatments which may shorten life but where the intent of treatment is pain relief. The situation reviewed by the Victorian tribunal went further, supporting actions where a doctor agrees to provide pentobarbitone to a patient at some time in the future if the patient feels at that time that his pain is unbearable and he wants (...)
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  23.  5
    The Ethics of Discharging Asylum Seekers to Harm: A Case From Australia.Ryan Essex & David Isaacs - 2018 - Journal of Bioethical Inquiry 15 (1):39-44.
    In February 2016 a twelve-month-old asylum seeker, who came to be know as Baby Asha, was transferred from Nauru and hospitalized in Brisbane. This case came to public attention after Doctors refused to discharge Asha as she would have been returned to detention on Nauru. What in other circumstances would have been considered routine clinical care, quickly turned into an act of civil disobedience. This paper will discuss the ethical aspects of this case, along with its implications for clinicians and (...)
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  24.  10
    Disclosure is Inadequate as a Solution to Managing Conflicts of Interest in Human Research.Helene Jacmon - 2018 - Journal of Bioethical Inquiry 15 (1):71-80.
    Disclosure is a common response to conflicts of interest; it is intended to expose the conflict to scrutiny and enable it to be appropriately managed. For disclosure to be effective the receiver of the disclosure needs to be able to use the information to assess how the conflict may impact on their interests and then implement a suitable response. The act of disclosure also creates an expectation of self-regulation, as the person with the conflicting interests will be mindful of their (...)
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  25.  4
    Narrative Identity in Third Party Reproduction: Normative Aspects and Ethical Challenges.Natacha Salomé Lima - 2018 - Journal of Bioethical Inquiry 15 (1):57-70.
    In the last few decades, assisted reproduction has introduced new challenges to the way people conceive and build their families. While the numbers of donor-conceived individuals have increased worldwide, there are still many controversies concerning access to donor information. Is there a fundamental moral right to know one’s genetic background? What does identity in DC families mean? Is there any relationship between identity formation and disclosure of genetic origins? These questions are addressed by analysing core regulatory discourse. This analysis shows (...)
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  26.  7
    Erratum To: Ethical Considerations of Physician Career Involvement in Global Health Work: A Framework.Lawrence Chew Loh, Sae Rom Chae, Jennifer E. Heckman & Daniel S. Rhee - 2018 - Journal of Bioethical Inquiry 15 (1):167-167.
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  27.  9
    Predictive Psychiatric Genetic Testing in Minors: An Exploration of the Non-Medical Benefits.Arianna Manzini & Danya F. Vears - 2018 - Journal of Bioethical Inquiry 15 (1):111-120.
    Predictive genetic testing for susceptibility to psychiatric conditions is likely to become part of standard practice. Because the onset of most psychiatric diseases is in late adolescence or early adulthood, testing minors could lead to early identification that may prevent or delay the development of these disorders. However, due to their complex aetiology, psychiatric genetic testing does not provide the immediate medical benefits that current guidelines require for testing minors. While several authors have argued non-medical benefits may play a crucial (...)
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  28.  2
    Correction To: Predictive Psychiatric Genetic Testing in Minors: An Exploration of the Non-Medical Benefits.Arianna Manzini & Danya F. Vears - 2018 - Journal of Bioethical Inquiry 15 (1):121-121.
    The article [Title], written by [AuthorNames], was originally published electronically on the publisher’s internet portal on [date of OnlineFirst publication] without open access.
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  29.  3
    Law as Clinical Evidence: A New ConstitutiveModel of Medical Education and Decision-Making.Malcolm Parker, Lindy Willmott, Ben White, Gail Williams & Colleen Cartwright - 2018 - Journal of Bioethical Inquiry 15 (1):101-109.
    Over several decades, ethics and law have been applied to medical education and practice in a way that reflects the continuation during the twentieth century of the strong distinction between facts and values. We explain the development of applied ethics and applied medical law and report selected results that reflect this applied model from an empirical project examining doctors’ decisions on withdrawing/withholding treatment from patients who lack decision-making capacity. The model is critiqued, and an alternative “constitutive” model is supported on (...)
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  30.  3
    Beyond Trust: Plagiarism and Truth.Bart Penders - 2018 - Journal of Bioethical Inquiry 15 (1):29-32.
    Academic misconduct distorts the relationship between scientific practice and the knowledge it produces. The relationship between science and the knowledge it produces is, however, not something universally agreed upon. In this paper I will critically discuss the moral status of an act of research misconduct, namely plagiarism, in the context of different epistemological positions. While from a positivist view of science, plagiarism only influences trust in science but not the content of the scientific corpus, from a constructivist point of view (...)
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  31.  2
    A Critical View of “On TB Vaccines, Patients’ Demands, and Modern Printed Media in Times of Biomedical Uncertainties: Buenos Aires, 1920–1950”. [REVIEW]Estela B. Quiñones, Lucas Goldin, Inés M. I. Bignone & Roberto A. Diez - 2018 - Journal of Bioethical Inquiry 15 (1):19-22.
    The putative Pueyo’s vaccine was a commercial venture that obtained marketing authorization in 1946, a turbulent period of Argentine history. After a few months, health authorities withdrew financial support from the state to buy the vaccine and required patients to sign a written consent to receive that product. An independent investigation did not find any evidence of benefit in non-clinical and clinical evaluation of the putative vaccine.
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  32.  3
    Assisted Dying in Australia and Limiting Court Involvement in Withdrawal of Nutrition and Hydration.Bernadette Richards & John Coggon - 2018 - Journal of Bioethical Inquiry 15 (1):15-18.
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  33.  5
    Engendering Harm: A Critique of Sex Selection For “Family Balancing”.Arianne Shahvisi - 2018 - Journal of Bioethical Inquiry 15 (1):123-137.
    The most benign rationale for sex selection is deemed to be “family balancing.” On this view, provided the sex distribution of an existing offspring group is “unbalanced,” one may legitimately use reproductive technologies to select the sex of the next child. I present four novel concerns with granting “family balancing” as a justification for sex selection: families or family subsets should not be subject to medicalization; sex selection for “family balancing” entrenches heteronormativity, inflicting harm in at least three specific ways; (...)
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  34.  4
    Protecting Participants in Thought Experiments: The Role of the Research Ethics Committee.David Shaw - 2018 - Journal of Bioethical Inquiry 15 (1):5-6.
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  35.  6
    Comparing Non-Medical Sex Selection and Saviour Sibling Selection in the Case of JS and LS V Patient Review Panel: Beyond the Welfare of the Child?Malcolm K. Smith & Michelle Taylor-Sands - 2018 - Journal of Bioethical Inquiry 15 (1):139-153.
    The national ethical guidelines relevant to assisted reproductive technology have recently been reviewed by the National Health and Medical Research Council. The review process paid particular attention to the issue of non-medical sex selection, although ultimately, the updated ethical guidelines maintain the pre-consultation position of a prohibition on non-medical sex selection. Whilst this recent review process provided a public forum for debate and discussion of this ethically contentious issue, the Victorian case of JS and LS v Patient Review Panel [2011] (...)
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  36.  4
    Mode 2 Knowledge Production in the Context of Medical Research: A Call for Further Clarifications.Hojjat Soofi - 2018 - Journal of Bioethical Inquiry 15 (1):23-27.
    The traditional researcher-driven environment of medical knowledge production is losing its dominance with the expansion of, for instance, community-based participatory or participant-led medical research. Over the past few decades, sociologists of science have debated a shift in the production of knowledge from traditional discipline-based to more socially embedded and transdisciplinary frameworks. Recently, scholars have tried to show the relevance of Mode 2 knowledge production to medical research. However, the existing literature lacks detailed clarifications on how a model of Mode 2 (...)
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  37.  2
    Minority Veterans Are More Willing to Participate in Complex Studies Compared to Non-Minorities.Leonardo Tamariz, Irene Kirolos, Fiorella Pendola, Erin N. Marcus, Olveen Carrasquillo, Jimmy Rivadeneira & Ana Palacio - 2018 - Journal of Bioethical Inquiry 15 (1):155-161.
    BackgroundMinorities are an underrepresented population in clinical trials. A potential explanation for this underrepresentation could be lack of willingness to participate. The aim of our study was to evaluate willingness to participate in different hypothetical clinical research scenarios and to evaluate the role that predictors could have on the willingness of minorities to participate in clinical research studies.MethodsWe conducted a mixed-methods study at the Miami VA Healthcare system and included primary care patients with hypertension. We measured willingness to participate as (...)
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  38.  7
    An Exploration of the Protective Effects of Investigators’ Ethical Awareness Upon Subjects of Drug Clinical Trials in China.L. Zhang, X. X. Huang & H. F. Chen - 2018 - Journal of Bioethical Inquiry 15 (1):89-100.
    Up till now, China has not enacted any legal mechanisms governing certification or supervision for ethics committees. This article analyses deficiencies in the protection of subjects in clinical drug trials under China’s current laws and regulations; it emphasizes that investigators, as practitioners who have direct contact with subjects, play significant roles in protecting and safeguarding subjects’ rights and interests. The paper compares the status quo in China in this area to that of other countries and discusses ways China might enhance (...)
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