Narrative Inquiry in Bioethics

ISSNs: 2157-1732, 2157-1740

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  1. (1 other version)Ethical Considerations of Unsedated Esophagogastroduodenoscopy in Pediatric Patients.Christopher S. Calciano, Colin R. Liphart, Annie B. Friedrich & Christina D. Diaz - 2025 - Narrative Inquiry in Bioethics 15 (1):69-77.
    A 10 year-old child requires an esophagogastroduodenoscopy (EGD). One of the child’s parents is requesting an unsedated esophagogastroduodenoscopy, citing their experiences in a different country and concerns about anesthetic medications. The child is assenting to the procedure. The patient previously had multiple sedated EGDs without complications. Concerns are raised by the anesthesia, GI, and operating room teams about the ethics and child safety of performing an unsedated EGD, given this is not the typical standard of care at the performing hospital. (...)
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  2. Navigating Adolescent Health Through a Portal.Jennifer L. Carlson - 2025 - Narrative Inquiry in Bioethics 15 (1):27-31.
    This commentary discusses twelve pieces detailing patient and parent experiences using the electronic health record and portal system. Authored by a combination of adolescents and parents, the stories include views of individuals navigating both straightforward and very complex health journeys. Several common themes are identified and discussed in the context of portal development and the 21st Century Cures Act Final Rule. Authors routinely commented on the challenges of limited portal access once an adolescent turns twelve years of age. Adolescents and (...)
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  3. One-Size-Fits-Nobody: Pediatric Access to Electronic Health Information.Michael V. Certo & Seema K. Shah - 2025 - Narrative Inquiry in Bioethics 15 (1):33-38.
    Providing adolescents with access to their electronic health information presents both opportunities and challenges for children and families. In an effort to protect the medical privacy of adolescents, some state policies provide adolescents with access to their electronic health information based solely on age, and exclude parents from seeing this information unless adolescents permit it, with both positive and negative consequences. This commentary reviews the genesis of these policies and discusses perceived benefits, struggles, and frustrations through the lens of twelve (...)
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  4.  1
    Access and Isolation: Ethical Complexities of Electronic Health Information Portals for Adolescents and Parents.Selby Chu & Jay R. Malone - 2025 - Narrative Inquiry in Bioethics 15 (1):39-45.
    In this essay, we explore parent and adolescent commentaries on the complexities surrounding electronic health information (EHI) portals. Recent mandates for patient access to health records complicate the management of adolescent confidentiality and parental oversight. This issue particularly affects adolescents who, for public health reasons, have long been able to access some healthcare services without parental consent, yet still generally depend on parental authority for medical decision-making. The contributions to this issue of Narrative Inquiry in Bioethics highlight the challenges families (...)
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  5. Empowering Parents: The Critical Need to Access Electronic Health Information for Children With Special Needs.Amanda Dunkin & Stephen Dunkin - 2025 - Narrative Inquiry in Bioethics 15 (1):20-22.
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  6. (1 other version)Women’s Perceptions of the Medicalization of Pregnancy and Their Preferred Models of Care: A Qualitative Analysis.Mirriam Tyebally Fang, Ladina Kunz, Giovanni Spitale, Sebastian Wäscher, Federico Germani & Nikola Biller-Andorno - 2025 - Narrative Inquiry in Bioethics 15 (1):53-68.
    The concept of women-centered care during pregnancy and childbirth has received increasing attention. It addresses the question of the right degree of medical care during pregnancy. Consequently, it further opens a debate about the medicalization of pregnancy, which puts pregnancy into the realm of medicine and treats it as a medical problem. The experience of pregnancy and childbirth plays an essential role in the well-being of both the mother and the future child and is influenced by women’s autonomy and freedom (...)
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    Empowerment or Overwhelm: The Double-Edged Sword of Patient Portal Access.Hayley Finch-Genschorck - 2025 - Narrative Inquiry in Bioethics 15 (1):19-20.
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  8.  3
    Access Denied, Voices Unheard: Advocating for Parental Access to EHI.Jessica Friedel - 2025 - Narrative Inquiry in Bioethics 15 (1):14-14.
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  9. Empowering Partnership: Parental Involvement in Managing Immunodeficiency.Sharon Head & Connor Head - 2025 - Narrative Inquiry in Bioethics 15 (1):17-19.
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  10. The Red Binder: A Tale of Special Care and Improving Coordination of Care.Melissa Heidelberg - 2025 - Narrative Inquiry in Bioethics 15 (1):11-12.
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  11. Access to Adolescent Electronic Health Information: Navigating Complex Care and Complex Family Communication Patterns.Anna M. Kerr - 2025 - Narrative Inquiry in Bioethics 15 (1):47-52.
    This commentary reflects on 12 narratives from parents and adolescent children on the topic of access to adolescent electronic health information (EHI). The storytellers highlight the value of EHI in improving care coordination, decision-making, and communication. However, access to adolescent EHI raises ethical dilemmas regarding autonomy, privacy, and parental involvement. While most parents and adolescents support some level of parental access, the narratives reveal nuanced views on how and when this access should be restricted. Barriers faced by parents of children (...)
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  12. Privacy, Trust, and Parental Guidance in Teen Healthcare.Corinne Merrill & M. E. - 2025 - Narrative Inquiry in Bioethics 15 (1):15-17.
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  13. One Busy Mom’s Perspective on Health Privacy Changes at Age 12.Anonymous One - 2025 - Narrative Inquiry in Bioethics 15 (1):23-26.
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    Pediatric Access to Electronic Health Information: A Parent Perspective.Leslie Sanderson - 2025 - Narrative Inquiry in Bioethics 15 (1):4-6.
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  15. Full Collection of Personal Narratives.Leslie Sanderson, Dana Wolinsky, Balin, Casper S. White, Melissa Heidelberg, Michelle Stacy, Jessica Friedel, Corinne Merrill, M. E., Sharon Head, Connor Head, Hayley Finch-Genschorck, Amanda Dunkin, Stephen Dunkin, Maanya Tarnal & Anonymous One - 2025 - Narrative Inquiry in Bioethics 15 (1).
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  16.  1
    Pediatric Access to Electronic Health Information: Stories from Adolescents and Parents.Bryan A. Sisk - 2025 - Narrative Inquiry in Bioethics 15 (1):1-4.
    This symposium includes twelve personal narratives from parents and adolescents reflecting on their experiences access electronic health information (EHI) through online patient portals. Four commentaries on these narratives are also included, authored by experts and scholars in communication, adolescent medicine, critical care, informatics, ethics, and law. The goal of this symposium is to call attention to the varying experiences, needs, hopes, and frustrations of parents and adolescents as they navigate adolescent EHI and healthcare.
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  17. Good Health, Low Engagement: EHI’s Limited Role in the Life of My Healthy Teen.Michelle Stacy - 2025 - Narrative Inquiry in Bioethics 15 (1):12-13.
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    A Young Adult’s Perspective on Patient Portals.Maanya Tarnal - 2025 - Narrative Inquiry in Bioethics 15 (1):22-23.
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    Openness and Transparency: To Whom Is Access Owed?Casper S. White - 2025 - Narrative Inquiry in Bioethics 15 (1):8-10.
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  20. Meeting in the Middle.Dana Wolinsky & Balin - 2025 - Narrative Inquiry in Bioethics 15 (1):6-8.
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