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  1.  4
    Just Data? Solidarity and Justice in Data-Driven Medicine.Matthias Braun & Patrik Hummel - 2020 - Life Sciences, Society and Policy 16 (1):1-18.
    This paper argues that data-driven medicine gives rise to a particular normative challenge. Against the backdrop of a distinction between the good and the right, harnessing personal health data towards the development and refinement of data-driven medicine is to be welcomed from the perspective of the good. Enacting solidarity drives progress in research and clinical practice. At the same time, such acts of sharing could—especially considering current developments in big data and artificial intelligence—compromise the right by leading to injustices and (...)
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  2. Broad Consent Under the GDPR: An Optimistic Perspective on a Bright Future.Dara Hallinan - 2020 - Life Sciences, Society and Policy 16 (1):1-18.
    Broad consent – the act of gaining one consent for multiple potential future research projects – sits at the core of much current genomic research practice. Since the 25th May 2018, the General Data Protection Regulation has applied as valid law concerning genomic research in the EU and now occupies a dominant position in the legal landscape. Yet, the position of the GDPR concerning broad consent has recently been cause for concern in the genomic research community. Whilst the text of (...)
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  3. What is the Impact of Patient Recruitment on Offshoring of Clinical Trials? [REVIEW]Maryam Kermanimojarad - 2020 - Life Sciences, Society and Policy 16 (1).
    The issue of globalization of research is receiving considerable attention due to the increasing number of offshored R&D activities from the United States, Europe, and Japan. This paper explores this phenomenon and provides a model to analyze the factors that will likely contribute to a global transformation of clinical trials. By identifying the main characteristics of clinical trials, I aim to clarify the main driver of the relocation process of clinical research. I reviewed the relevant published articles to address the (...)
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  4.  1
    Consolidating RRI and Open Science: Understanding the Potential for Transformative Change.Rune Nydal, Mads Dahl Gjefsen & Clare Shelley-Egan - 2020 - Life Sciences, Society and Policy 16 (1):1-14.
    In European research and innovation policy, Responsible Research and Innovation and Open Science encompass two co-existing sets of ambitions concerning systemic change in the practice of research and innovation. This paper is an exploratory attempt to uncover synergies and differences between RRI and OS, by interrogating what motivates their respective transformative agendas. We offer two storylines that account for the specific contexts and dynamics from which RRI and OS have emerged, which in turn offer entrance points to further unpacking what (...)
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  5. Health is a Political Choice: Why Conduct Healthcare Research? Value, Importance and Outcomes to Policy Makers. [REVIEW]M. Walid Qoronfleh - 2020 - Life Sciences, Society and Policy 16 (1):1-10.
    This paper offers the Eastern Mediterranean Region viewpoint with Qatar as a case for lasting transformation of health systems. The Qatar case study illustrates the importance of research in the development of health policy. It provides description of a series of projects that have been undertaken in relevant national areas such as autism, dementia, genomics, palliative care and patient safety. The paper discourse draws attention to investment requirement in health research systems to respond to country national health priorities and to (...)
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  6.  2
    Sociological Factors Influencing the Performance of Organic Activities in Iran.Kurosh Rezaei-Moghaddam & Mahsa Fatemi - 2020 - Life Sciences, Society and Policy 16 (1):1-16.
    The conventional production model based on extensive use of chemical inputs such as pesticides is increasingly challenged. Organic agriculture is considered as one of the most important alternative agricultural systems to produce healthy food without any chemicals. Current models are not suitable for prediction of environmental behaviors. The current study aims to analyze the diffusion of organic agriculture to produce healthy food with the environmental sociology approach among farmers. The study was conducted using the survey research and multi-stage random sampling (...)
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  7. A Socio-Psychological Model of Laser Levelling Impacts Assessment.Kurosh Rezaei-Moghaddam & Somayeh Tohidyan Far - 2020 - Life Sciences, Society and Policy 16 (1):1-20.
    Application of technologies has an important role in agricultural development. Identifying and assessing the impacts of agricultural technologies is necessary. This study aimed at assessing the impacts of laser levelling economically, socially, environmentally, and technically in the viewpoint of the agricultural experts and identifying factors determining their perception of the impacts. The study samples were selected using multi-stage random sampling in Fars Province, Iran. The results revealed that experts considered uniform distribution of water, using conservation tillage, facilitating agricultural activities, decreased (...)
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  8.  3
    Allonymous Science: The Politics of Placing and Shifting Credit in Public-Private Nutrition Research.David M. R. Townend, David M. Shaw, Peter Lutz & Bart Penders - 2020 - Life Sciences, Society and Policy 16 (1):1-16.
    Ideally, guidelines reflect an accepted position with respect to matters of concern, ranging from clinical practices to researcher behaviour. Upon close reading, authorship guidelines reserve authorship attribution to individuals fully or almost fully embedded in particular studies, including design or execution as well as significant involvement in the writing process. These requirements prescribe an organisation of scientific work in which this embedding is specifically enabled. Drawing from interviews with nutrition scientists at universities and in the food industry, we demonstrate that (...)
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  9. How Should Researchers Cope with the Ethical Demands of Discovering Research Misconduct? Going Beyond Reporting and Whistleblowing.Knut Jørgen Vie - 2020 - Life Sciences, Society and Policy 16 (1):1-18.
    In this paper, I will argue that making it mandatory to report research misconduct is too demanding, as this kind of intervention can at times be self-destructive for the researcher reporting the misconduct. I will also argue that posing the question as a binary dilemma masks important ethical aspects of such situations. In situations that are too demanding for individual researchers to rectify through reporting, there can be other forms of social control available. I will argue that researchers should explore (...)
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