Parents’ attitudes toward consent and data sharing in biobanks: A multisite experimental survey
Armand H. Matheny Antommaria, Kyle B. Brothers, John A. Myers, Yana B. Feygin, Sharon A. Aufox, Murray H. Brilliant, Pat Conway, Stephanie M. Fullerton, Nanibaa’ A. Garrison, Carol R. Horowitz, Gail P. Jarvik, Rongling Li, Evette J. Ludman, Catherine A. McCarty, Jennifer B. McCormick, Nathaniel D. Mercaldo, Melanie F. Myers, Saskia C. Sanderson, Martha J. Shrubsole, Jonathan S. Schildcrout, Janet L. Williams, Maureen E. Smith, Ellen Wright Clayton & Ingrid A. Holm
AJOB Empirical Bioethics 9 (3):128-142 (2018)
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10.1080/23294515.2018.1505783
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Citations of this work
Caregiver Perspectives on Informed Consent for a Pediatric Learning Healthcare System Model of Care.A. E. Pritchard, T. A. Zabel, L. A. Jacobson, E. Jones, C. Holingue & L. G. Kalb - 2021 - AJOB Empirical Bioethics 12 (2):92-100.
Research, Digital Health Information and Promises of Privacy: Revisiting the Issue of Consent.Timothy Caulfield, Blake Murdoch & Ubaka Ogbogu - 2020 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 3 (1):164-171.
References found in this work
Currents in Contemporary Bioethics: Open Access as Benefit Sharing? The Example of Publicly Funded Large-Scale Genomic Databases.Yann Joly, Clarissa Allen & Bartha M. Knoppers - 2012 - Journal of Law, Medicine and Ethics 40 (1):143-146.
