Re-examining the Gene in Personalized Genomics

Science and Education 22 (10):2529-2546 (2013)
Abstract
Personalized genomics companies (PG; also called ‘direct-to-consumer genetics’) are businesses marketing genetic testing to consumers over the Internet. While much has been written about these new businesses, little attention has been given to their roles in science communication. This paper provides an analysis of the gene concept presented to customers and the relation between the information given and the science behind PG. Two quite different gene concepts are present in company rhetoric, but only one features in the science. To explain this, we must appreciate the delicate tension between PG, academic science, public expectation, and market forces
Keywords DTC Genetic Testing  Personalized Genomics  Internet Genetics  Gene Concepts  Public Understanding of Genetics  Public Understanding of Biology  Representations of Genetics  Genetic Determinism
Categories (categorize this paper)
DOI 10.1007/s11191-012-9484-2
Options
 Save to my reading list
Follow the author(s)
My bibliography
Export citation
Find it on Scholar
Edit this record
Mark as duplicate
Revision history
Request removal from index
Download options
Our Archive
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library
References found in this work BETA

No references found.

Add more references

Citations of this work BETA

No citations found.

Add more citations

Similar books and articles
Genes Made Molecular.C. Kenneth Waters - 1994 - Philosophy of Science 61 (2):163-185.
The Gene Genie: Good Fairy or Wicked Witch?A. S. - 2001 - Studies in History and Philosophy of Science Part C 32 (4):723-739.
The Morality of Human Gene Patents.David B. Resnik - 1997 - Kennedy Institute of Ethics Journal 7 (1):43-61.
Gene Talk in Sociobiology.Henry Howe & John Lyne - 1992 - Social Epistemology 6 (2):109 – 163.
Gene Concepts and Genethics: Beyond Exceptionalism.Péter Kakuk - 2008 - Science and Engineering Ethics 14 (3):357-375.

Monthly downloads

Added to index

2012-07-19

Total downloads

128 ( #36,841 of 2,158,126 )

Recent downloads (6 months)

15 ( #23,333 of 2,158,126 )

How can I increase my downloads?

My notes
Sign in to use this feature


Discussion
Order:
There  are no threads in this forum
Nothing in this forum yet.

Other forums