Theoretical Medicine and Bioethics 25 (5-6):387-398 (2004)

Charlie Blake
Liverpool Hope University
Should a growing market for genetic self-tests be welcomed or feared? From the point of view of personal autonomy the increasing availability of predictive health information seems promising. Yet it is frequently pointed out that genetic information about future health may cause anxiety, distress and even loss of “life-hopes.” In this article the argument that genetic self-tests undermine personal autonomy is assessed and criticized. I contend that opportunities for autonomous choice are not reduced by genetic information but by misperceptions and misunderstandings of the results of genetic tests. Since the interpretation of genetic information is sometimes distorted by the information provided about the genetic products, more attention should be given to deceitful marketing that overblows the utility of genetic products. Yet personal autonomy is reduced neither by genetic tests nor by genetic information and there is consequently no compelling case for the conclusion that genetic self-tests should be prohibited.
Keywords commercialization of genetic services  genetic information  genetic testing  personal autonomy  self-control  self-realization
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DOI 10.1007/s11017-004-2047-z
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Direct-to-Consumer Genomics on the Scales of Autonomy.Effy Vayena - 2015 - Journal of Medical Ethics 41 (4):310-314.
The Human Genome Project.Lisa Gannett - 2009 - Stanford Encyclopedia of Philosophy.

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